Not healing after 3 months from Throat Cancer treatment

Please help me. Despite everything i have read. I can find no answers, I finished 2 chemo and 35 radiotherapy in April 8months ago. I have a big ulcer in my throat which may not heal. I am on a PEG tube and have had only Ensure drinks for 8 7 months. I can't go on without drinking water or having a cup of tea or eating something normal. Please is there any hope/ if so where?

I had my last radiation treatment on June 10, 2016. I had 6 treatments for 7 weeks. No chemo. I was lucky I never needed a feeding tube. I have cancer of the larynx. I hurt more now than I have in the months following treatment. I still have some mucus but not much. I have no voice as all my swelling is strangling my vocal chords. I have lost 80 pounds so far. I am not sure when or if I will ever heal. My doctors say it can take 2 years. I am working and trying to live normally but hard to do. All I know is today is another day to heal. I take it one day at a time. I have been told the pain peeks in 3 to 8 months. Looking forward to a new day tomorrow. Know you aren't alone. One day this will pass and we will be cancer free and healthy.

Same positive experience here in Calgary Alberta Tom Baker Cancer Center. Could mNot ask for better care

How is your throats and energy now?
Chris

I'm 9 mos out and have improved significantly- finished rad and chemo April. Still occasionally have raspy irritated throat and dry mouth especially at night. Hang in there and hydrate.
Like to hear from someone that is say 12-14 mos out. I'm looking for another breakthrough. Taste and saliva back 70% approximately.
Chris

Hello I was diagnosed with throat cancer in June of 2016. I was lucky and caught it early. I was Stage 1 N-0. I had 32 radiation treatments. The pain in my throat was horrible. I believe i believe the magic mouthwash attached to my lips. Between that and the hydrocodone i made it thru. I lost 30 pounds but i didnt want the feeding tube so i forced myself to eat. For me warm food and drink felt better than cold although i did drink a lot of water. I slowly started feelng better and by thsnksgiving i was swallowing well with minimal pain. Last week my throat started getting sore again and im losing losing my voice again. Back on the mouthwash. Has this happened to anyone else? Scary for me. I go back to docs every two months. CT scan said i we got it all and it was gone.

there has got to be something better to treat this malady other than these barbaric modalities!!?? look where we have come from... we had house 100 ibm 360's into a space of a cell phone, and we can't treat throat cancer or most cancers without putting the patient into a state of degradation, pain, mutilation..!!

Can you give me more details on which product you are using and where can I get that because my mom is a cancer patient and went through radiation, chemotherapy,peg, treachestomy etc but still she is not able to recover from past 2 years...can anyone guide me

My last treatment was in December 2016 (6 x chemo and 30 x radiation) for cancer at the base of my tongue. PET scan a few months ago shows I am clear. Now 7 month after I am still having problems eating. Can't give you a clear reason why. All I know is I struggle to eat. Today is not better than yesterday or a month ago or 2 months ago. I can swallow - so whats the problem? Anyone else have any advise?

I understand his fear, I had throats cancer removed a year ago and my healing is so slow, my throat is swollen now so bad I can't swallow water it comes out my nose , I'll choke and I live with this fear of strangleing or choking to death, the fear is so bad my doctor had to put me on attivan to take , she couldn't give me anything stronger because of the medication I'm on for pain to treat a spinal degeneration I have had for years, just to let you know so you can understand his fear you actually feel as tho your airway has shut off and this reoccurs over and over again,

Hi my mane is Steve and I had throat cancer in 2016-17 and I am still recovering
From it I no longer have a score throat but my taste buds are still only at about 70 per cent I hope you feel better soon God Bless

I had Squares Cell throat cancer 16 yrs ago. I had chemo and radiation treatments and a feeding tube for over a year. I couldn't hold down any thing and became dehydrated and needed to be hospitalized and fed intravenously for a couple of months during radiation treatments. I was taken by ambulance from hospital for radiation treatments Mon-Fri because I had become so weak I could not walk. They cut radiation treatments because I was so weak. I finally was able to hold down 120 calories and water but kept feeding tube for over a year. Throat was raw and sore and I couldn't taste anything. It took about a year and a half before I was able to taste anything. The radiation burned out my thyroid gland and Saliva glands,so I take thyroid pills and I am constantly drinking something to keep mouth and throat moist. I wake up every morning with a sore throat and Saliva so thick I could use it for wallpaper paste. So I brush my teeth and drink a hot cup of tea and I am good to go.
P.S. They wanted me to have all my teeth pulled and I didn't do it, I managed to keep them until last year. I had to go through 30 hyperbaric treatments before they extracted the teeth and even after all that you run the risk of infection of the jaw bone. Getting an infection in bone that has been radiated is a really seriously bad thing. Good Luck and God Bless you all.

Hi my name is Mark age 60 as of July 24th 2019 I made it to 60. I did not realize I had anything going on until I went in for a bad infection and a mass was found in my throat. They did a biopsy of my mass which in fact confirmed it was cancer. I had no insurance although I had been in the military for 6 and a half years the VA said I did not qualify. I finally got to talk to a human at our local VA center and they in fact qualified me for their Insurance. I had been told by one of the Doctor's that I had no insurance I had no hope. I was also told I could go to the Cleveland Clinic for treatment but would have to find a place to stay and have someone to go with me to help me through the process. Although I have been a religious person I thought this one might be passed a prayer. I was wrong my Brother -In-Law travels a lot with his work and had accumulated 800,000 thousand comp hours at Marriott. So I stayed in Cleveland at a Marriott free but for the last day of treatment. My brother came in from Atlanta Ga. and drove me to Cleveland and stayed with me for the entire time. SO hum Prayer does work!! I had also been told in March of this year that I would not be here for Fathers Day if I had no treatment. When I got to Cleveland Clinic I was meet with a team of Doctors who all examined me one after the other. They decided instead of Stage 4 I had Stage 2 Throat Cancer. Instead of operating they would recommend Radiation and Chemo. Of course I took that recommendation. They started the process that next day . I found I was unable to lay on my back while the mask was made and the Dr. ordered a sedation medication that worked for me and I as able to except the time I had to lay still on that table. We think that the Tumor was blocking my air way and giving me the feeling of choking. The radiation Dr. ordered me a throat numbing solution when the Radiation first started but really stressed the Baking Powder solution from the start of treatment. He told me that I might need to use this 7 or 8 times a day. I would clean my mouth when I thought I needed to and found out he was right. SO I started doing it like he said to do it. I would not like to be gross but clear my throat any way I could . My Uvula would bleed a little bit but I kept it clear. The Chemo was the hardest but somehow I kept eating. I had my brother stop and get me what ever I craved . If I got it quick I usually ate it. If I did not eat it I drank the shakes until I got 2000 cal's a day down. I also drank the heck out of the water that I hated. I also am a diabetic which was always a concern, but the DR'S although concerned about my levels wanted to make sure I was getting the 2000 cals a day down. I did the 17 weeks of radiation and only 2 of the 3 doses of Chemo doses as my blood levels would let me do. I felt the Tumor going down about the 4th Radiation Treatment. I had watched my other family members taking Chemo and not doing well with it. So a few times after the treatment I went back to the room and just really put it in the hands of my Higher Power. I was ready to let happen what ever was going to happen. I woke up the next morning and went to treatment. My throat got so sore I asked for Pain medication and was given Oxycodone Liquid 5ml every 6 hrs. That dose worked for about another 2 weeks . I asked for more and was given it 5ml every 4hrs. as needed. The pain meds helped me continue to eat along with the clearing of my throat which was as important as the meds. I completed my rounds of Chemo and Radiation my Mass is completely gone at least to the touch . I have been traveling back and forth to Cleveland Clinic which is rated Number 2 in the World in Cancer behind Mayo Clinic. My wish is that everyone had the option of going to Cleveland Clinic they treated me like I was the number one patient they had moving my appointments while in treatment and even through out my treatment after . I am a little bit of a different case cause I have not lost my taste or my saliva . I was told that I would but I have not . I have some idea's as to why I did not but I might be wrong, I did what they told me about cleaning out the junk in my throat even when I did not feel like doing it. I continued to eat when I did not want to eat. The threat of a feeding tube did that for me. I made sure I got 2000 cal's a day when I did not want to, and I drank so much water that I thought I might drown. I hated water but it would keep me Peeing. Cleaning out the stuff that needed to get out was helpful. I took enough milkameg to buy stock in the company . The pain meds might have caused that but what ever it takes right. All this might change as I go back Sept 10th for my PET SCAN that will tell the real story . I am Scared to death still . I read somewhere that if I did not have these side effects that the treatment probably did not work. Oh I also had my teeth pulled before treatment. I felt that the teeth could deflect the Radiation and cause cell damage to other parts of me. Like I said I have no Idea why I did not get the no taste results or no other side effects other than the physical side of being tired . I lost 30 lbs. and still weigh 200.8 Lbs. I have maintained that weight since my last Chemo treatment so every body is happy. It does get better it has taken 3 months I have been to the beach with the family got tired early laid down when I got tired. Off the pain meds had a few days of the sweats but got through that. I continue to ask for Prayer and gladly except it. There is no reason that the Dr's can give for my not having the side effects of the treatment and they still ask me if I have gotten any of the side effects. I think it is just what was meant to happen . I continue to play the lottery and continue to throw my money away, but this lottery I seem to be winning. I hated to write this here but felt I needed to do it. I am just hoping that Sept. 10 my PET SCAN shows well nothing. I don't know if pulling my teeth was a great idea but they do have new procedures that replace them. I don't know if cleaning my throat worked but if you are having this problem maybe by following what I did might help . I pray that it will work for you and that you have a GREAT OUTCOME . Sincerely Mark G.

Prayers for your Pet Scan on Sept. 10th to show NO CANCER.

I just finished my radiation for throat cancer 36 treatments, and I want to eat everything I see, don't know how long until I can swallow. , but as long as I bring glory to God I'm in good hands AMEN. IN THE NAME OF JESUS.