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I've had Ulcerative Colitis for 11 years (diagnosed when I was 13 years old). Recently I had my diagnosis change from moderate to severe. If I had to choose between "pooping my pants" and prednisone (both of which I have had), I would choose the former. Prednisone is hard on the entire body and controlling symptoms comes at a high cost. I firmly believe that there should be a time (and possibly dosage) legal limit to what doctors can prescribe especially considering a patient's age. It is meant to calm symptoms, but NOT CURE (which is how doctors seem to use it as). I refuse to take any other Prednisone other than a week "maintenance pack" and never more than a month at the absolute most. Treating the cause of the symptoms is more important than the symptoms them selves.
With prednisone I have severe anxiety attacks, insomnia, weight gain, moon face, and horrid mood swings. I took it for a year when I was a sophomore in high school. Talking to my friends later, they said I was suspicious of everything, became reclusive and agitated, and overall was difficult to be around because I became so extremely different from myself.
Not worth it. There are other options thanot long term/extremely high dose Prednisone.
It's awesome that you've done research to be able to help and understand your niece. However, the best thing you can do is listen, be supportive, and let her listen to her body and advocate for what makes her feel at her best.
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