Hello Hello. I have had DM for 18 months and have been on several different medications. I am 45 years old and also have the same symptoms as most of you, muscle weakness, fatigue, not been able to climb stairs etc. My condition effected my lungs straight away and I have been on oxygen 24/7 for over a year. I had prednisone at 60mg with Cellcept at the beginning of 2016 which didn't help. I was then given 6 months of chemo Cytoxin and that made me worse. I am now on Rituxan and that has kept me stable for 4 months. I use a wheelchair to get around and my life has changed tremendously. I have 23% lung capacity. My breathing is very hard and I am working with the doctors at UCSF to have a lung transplant. I would really like to hear from anyone who has had a transplant with this autoimmune condition. My name is Jan