I have a 2 year old that was just diagnosed with this rare blood clotting disorder: hyperhomocystenemia.

I have found that only 200,000 in the US have this rare disease. I am reaching out to find some of them for questions/answers. She is currently being treated with 2 mg. of Folic Acid a day and monitoring her blood levels.

Any help and information you can get me would be so helpful in my search for answers.

Thank you. Jane