I had encephalitis when I was a child.All I remember are blurps..such as hospital room on easter and a big bunny
came to say hi and find a candy for me, mabie a wheel chair, and then sticky wires on my head.
My mother did what she could to explain(appropriatly) on what had happened. She said, from what I can
recall, measels on my blood stream, swelled left brain, I could not talk,walk, and they had to strap me
down when I had convultions in the hospital bed.She also told me that I had to re learn to walk and talk,
and they called me bullet because how I did in a wheel chair.I do not remember this at all!
She stated to me that she was told that my chances were slim, to be either a vegtable or die.
I was born in Quebec, and Roman Catholic was how she was raised as well as my biological father,
so they prayed and put a catholic necklace around me. My mom said I was a miricle.
My name is Sophie. I don't believe this always because I only remember blurps.
is it possible?
I have had 3 children,a career of over 15 years, own my home and more, but I do get
fuzzy with remembering,I always have to write things down.It's like long term memory issue,I suppose.
Its deeper than that but brief explaination, I do get anxiety, forgetfullnes, mabie normal, but
Are there things I should pay attention too(I am 37),or am I in the clear regarding encephalitis?
There are other things I could add to this, however, I want to be realistic and not self diognos.
I have told my doctors(2 in my life since),and they don't even budge, they simply say"interesting"
I am here,alive, and doing good, just want to have more information regarding this so I can self check,
because this is the best thing to do and check. Thank you.
Sophie is a good name:)
I read with interest your reply to the question of viral encephalitis as it affected you. I had a severe viral encephalitis too when I was 12, it had great affects upon me as it created exactly what you described as blurps (which I interpret to mean gaps of no memory) this is precisely what I had. What I found is that my recovery was far longer than what people and doctors around thought. I personally didn't feel right for many years. I am 43 now, am an MD now, and have gone on to do many high achievement things in my life but there is no doubt I have some residual affects from that time in my life.
I have had a hard time trusting others as during that time everyone around was very dismissive of how I felt and despite my own protestations my parents always had the stock answer "you are fine" I had many a tearful night alone during those adolescent years, knowing I didn't feel right and not having anyone to share it with.
I don't think it affected my intelligence as when I got to it, I obviously completed a rigorous academic path and have gone on to have a family of my own. I have never seen anything meaningful written on childhood viral encephalitis and its psychological sequelae but am certain there are many. I hope this helps you to know that you are not alone and others out there understand what you mean.
We both however should be grateful that we have survived and done okay. I am grateful for the recovery I have made as I know it could have been alot worse.
If you would like to talk further about it let me know.
i am just frustrated with the way i feel, the way the doctors look at me like i am making this all up. there is something going on in my body, weather it is MS or residual symptoms of encephalitis, i am sick and i just want some answers.
If all this has something to do with the Encephalitis, I want to know if there's something I can do about it. If there's any treatment or any way I can manage it, it makes my life even more complicated as a teenager %-) And those of you who became doctors and had families even with this struggle... wow, that is so inspirational.
he had said that it is from having had encephalitis, does anyone else experience any of these symptoms or after affects? Does anyone feel that it is harder for pain management like your very sensitive to pain?
I had a bout of encephalitis at age 13 ish. I had hemi-paralytic attacks followed by horrible headaches every few days for a few weeks until one onset of and incident put me into a coma. After the EEGs, spinal taps, etc., etc. encephalitis was determined.
Because of research I did for my kids who were born with cerebral palsy and had siezure condidtions, I began to learn that whenever the cortex of the brain swells the thalamus and/or hypothalamus can be "squished" and damaged permanently ... I've had all sorts of endocrine system problems that don't show up on routine Thyroid tests. I had significant, if not total, memory loss of years prior to that oonset of viral encephalitis. I also struggle with overweight, etc. Wish we could get Drs to consider these common after affects years later. I'M MOST FRUSTRATED WITH, LIKE SOMEONE ELSE SAID ... THE DRs JUST SAY HHHmmm, at best, but usually before you're even done making the connections ... the Dr. says ... it's unlikely that these symptoms would be related ... so frustrating!
Blessings to All, Louise
p.s. Did we all notice that the movie "Awakenings" with Robin Williams was about patients (including Rober DeNiro's character) who had previously suffered from encephalitis?
He has also complained of numbness in his body,He had a ct scan but they said that there was no concern but it all seems so coincidental to me
Otherwise my health is very good, except for osteoarthritis. I would be interested if anyone knows how to control the after affects from progressing.
I also have balance problems -[- especially when I want to turn. It is very frustrating as docs seem to ignore it.
From the ages of 15 - 19, I suffered from vasculitis and the physicians didn’t think the encephalitis had anything to do with it but I’ve always been curious if the two could be tied together.
I still stutter on occasion but have trained my brain to anticipate when I will struggle with a word. I can just sense it and will change the word in a split second. Most people don’t notice it but I become very uncomfortable. For the most part I’m a happy well adjusted person but there are times when depression, anxiety (in crowds), mood swings, and mistrust appear.