I have a sister n law who is going through a situation similar to u? She can sit up straight in a chair..has the tremors, and muscle spasms...
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I think I have the same problem as you do. I also had encephalitis when I was 6 months old in 1959 I am 54 now.Fortunately I had a wonderful Doctor at that time. I came to find out about my illness when I was 16 years old. My parents were over protective and thought it was best at the time not to tell me about my illness to let me grow up normal... I had trouble concentrating in school, still get easily distracted, I have a great long term memory that concerns the wonderful times that I had with others during my life time. But what concerns me is how I hear things and then how I comprehend things...I really have to concentrate on what I am listening to and how I am going to reply. I have to admit my short term memory loss started shortly after chemo 13 years ago and it comes and it goes. Also I find myself when I am stressed out being unmanageable somewhat and depressed. If you had found help regarding our issues please notify me. There has to be some study concerning this from someone..
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Thank you! You have just described, almost perfectly, my son. He has suffered with alcoholism, drug abuse, and I believe his pre frontal cortex was damaged. He makes poor decisions like driving without a license, lying, stealing, and fitting in socially. He has been in jail several times. He tries to go to college, and has the equivalent of an associates degree, but has unrealistic hopes of becoming a doctor. He has never been able to hold down a job. All these things point to damage of his pre-frontal cortex, and they had told us that any long-term effects would not be realized until later in life. He goes from doctor to doctor and most of them just say they can't help him. He is draining his father and me financially and emotionally! I'm wondering if he can collect Social Security Disability. He also fell down a flight of stairs about 9 months ago and has sustained a closed head injury which left him unable to function at a job or at his probation duties. Does anyone know if he can collect Social Security Disability? He is very dysfunctional and has caused stress to all our family members. I just have a suspicion that his brain was damaged when he was seven and hospitalized for almost 4 weeks due to meningitis and encephalitis. He had to learn to walk and write again. Thanks for any feedback!
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I'm searching for answers. I had viral encephalitis when I was 12 years old. Since then I've had concentration problems my coordination is not quite right I get angry and depressed. I am now 52 years old will these things get worse?
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Sometimes docs say hmm because they don't really know enough about the specific illness to discuss so I wouldn't take it personally.
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Had encephalitis when i was six. Am now 38 and have had trouble concentrating ever since, have to make lists to get anything done. Also have trouble with facial recognition and hearing in crowds, prefer one on one conversations. Have an intermittant muscle spasm which cause me to drop things or stumble, typically with repeatative motions, eg climbing stairs. Suffer from depression and often have a feeling of hopelessness. Live in Canada and have found doctors don't know much about treating the long term effects of encephalitis, if you can walk out of the hospital you're on your own. Once read a british study which recommended survivors have long term counselling and therapy. thought it wouldn't hurt to add this to the list.
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I am also an encephalitis victim and yes there are long term affect like headaches speech issues seeing and hearing problems and sometimes during the migraines hallucination and some metal and physical scars I feel really sorry for you friend I think no one not even the world's most terrible person should go through this
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Hi, I had encephalitis at 3 now am 54 I was told I was in a coma for 4 weeks when I woke I to had to relearn everything I wince knew. I grew up a very accident prone child fell allot grew up deaf on the right side, childhood is very vague I don't remember allot. I to the day have memory issues ,I still fall All the time ,bad balance sometimes I feel paralyzed can't move anything, at the age of 43 maybe earlier started having seizures I have chronic pain every where cant sleep without a script sometimes I think I going crazy no one to talk to. I have ask if the encephalitis could be the cause I am always told no . I had the triple EEE type of encephalitis what do I have to look forward in the future?
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I am 54 I to wonder if things will keep getting worse I forget , can't stay on task, fall have lots of pain, can't sleep worry that With all my problems that I may have my kids may have been deprived of a healthy childhood,
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it is not all in your head or maybe it is for the illness because I also have the same problem and that's why I'm on here i'm to the point I have to have a walker and wheelchair I fall down all the time and am very weak the doctors have did all the same test and asked the same questions now they have decided it is from the viral Encephalitis the doctor told me the older I get the worst it will get I am only 53 what I need to know is how much worse is it going to get I'm like the rest of you I'm scared I want to know what to look forward two somebody out there has to know something someone has to have the answer's were looking for please help us
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I worry of this. That movie has "haunted" me for years as, now 44. I continue to struggle with ADHD, deoression etc and almost fear as though I'm in early stages of Alzheimer's or dimensia? Thank all of you for this info as now i feel I am not alone, but what can I do? Research study? Anything to she'd lift on these symptoms/after effects.
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Sophie --Taking a chance on this being answered. Was always in good health. At 72 I had a quad bypass, improved my golf to the 80"s. life was grand. Five years ago at 76 had a mysterious illness Hospitals in Ocala FL unable to identify. After two spinal taps, Univ of Mich and Calif came back with virile enceph.. Had to learn to type again, my kids and grandkids' names, unable to play golf or walk around block, limp, right toes became hammer, worst, unable to do physical
My lungs don't have it .In one year I had 80 dr. apppointments, travelled over 3000 miles including trips to Jacksonville Mayo (waste of time>). Today I live in pain on right foot, unable to swing a club, go dancing. To hang a 26x20 picture is exhausting.I don't know where to turn. One MD said it was equivalent to a double stroke. Others said tsk, tsk
I am not ready to fold. Am allergic to the oxy drugs. About the only thing that obliterates pain is whiskey. But that is not covered by Medicare -- even though one MD said I might have to use it daily.. (He made no offer to pay for it) You made it to MD. I had a brain before and had MA+15. It's there. I have the drive --- but don't know where to turn.
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I had mumps encephalitis in 1957. Remember daily spinal injections &corrective shoes &physical therapy.I was 3.
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just have a question, I had two different types of cancer. But after my transplant for the second one I developed encephalitis. I lost my memery. it made me epileptic. Now I have short term memory. Lack of patience, get mad quick. Leaned to shut up so I don't say the wrong things. Conflictive problems too. is this kinda a normal thing for encephalitis?
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I'm 47 and also had encephalitis. I experience very similar that you do. You are definitely not alone.
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