Duchenne muscular dystrophy

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  and I promise you will have your eyes opened and have hope. 

My son is 31 yrs old with DMD. he lives on his own and still has quality of life. Yes , he has been through alot of stuff, but is still here and enjoying life

My sister has a stepson with DMD and he turns 40 today! Happy Birthday Tim. So proud of your courage and determination and to everyone with a life threatnening condition. God Bless everyone.

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antuna wrote:

Hi, my 4 years old boy was diagnosed with Duchenne muscular dystrophy. I`ve learned that muscular dystrophy is a genetic disorder that weakens the muscles until they stop working. There is nobody to blame for his disease, it`s not contagious or something. And no point in blaming anyone at all. I just wanna know is there some comfort for him? Anybody know what is the life expectancy for persons with DMD?

Hi, my name is Joe. I was biopsied anddiagnosed with Duchenne muscular dystrophy at 7 yrs of age and as of May 8th 2012 I am 54. To the best of my research I'm the oldest on record. NEVER give up or give in; just give it over to God.

iI am an md patient i am fromindia chennai i have scoliosis i am 53 yam confined to a wheelchair at homee i am 53 yearsold my 

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I know a young man who just turned 21 and still going strong. He recently had surgery and went through it with flying colors. As long as you take the steps necessary, a person with DMD can be around for many many years. We pray for him everyday.

I lived with my friend who has DMD for 2 years and continue to be in the rotation to help him. He was wheel chair bound by 8 years old and June of 2012 celebrated his 50th Birthday! He like most of the guys who have commented on here is an amazing Godly man. He is one of the oldest living with DMD and has been a huge influence on my life. His brother also had DMD, he died in his 30's. I met him 16 years ago and he's continued over the years to lose strength and control of his muscles. However, he's had great advancements over the years on his wheel chair to help adapt to his lost of strength. May God be his strength and comfort. I couldn't imagine not having my friend around and he continues to be a blessing to all those he encounters. God bless!

Hullo,

My brother just turned 30 and is in relatively good health. He was diagnosed at 5 with DMD, but was misdiagnosed many times before that. My parents took him to doctors in a variety of countries, many of whom decided he had some kind of mental disorder. Not at all, he is a highly intelligent individual, and has accomplished much despite the challenges he faced. (Thank God, medicine has evolved tremendously since the 80's)

He writes a lot (he can still use a mouse), for his own pleasure, and paints, using a special brush that fits onto his fingertip. He's sold a number of paintings. He has a large circle of friends he sees regularly. He's a good son to my parents, and he's been the best big brother I could hope for. He might not have been able to stare down older kids bothering me at school (and I didn't need him for that), but he always offered good advice and guidance, interesting anecdotes and opinions, good humour and unconditional love.

 

My brother is 47 and had Duchine MDA, it's all about your will to live and the care you get, blessings and prayers to y'all!

what made you test at 6 months. I am worried my second son may also have duchenne as my first has it. Was there any symptoms you remember?

I HAVE AN UNCLE WITH THIS DESEASE...HE IS 54 YEARS OLD AND HE DID NOT NEED A WHEEL CHAIR UNTIL HE WAS IN HIS 30'S BUT HE DID WALK WITH A CANE IN HIS TWENTIES. UNTIL RECENTLY HE WORKED AS A COMPUTER TECHNICIAN. HE IS A HUSBAND AND FATHER OF 4 CHILDREN. THE DOCTORS TOLD MY GRANDPARENTS HE WOULD NOT LIVE PAST THE AGE OF 16. SO THERE IS REALLY NO WAY TO KNOW.

I have two sons with Duchenes. One is 25 years old and the other one is 18 years old. They have both been on prednisone since they were toddlers. My 18 year old is still walking and my oldest went into a wheelchair at age 21. Please ask your doctor about putting your son on steriods. The benifits for a longer life out weigh the side effects of the steroids. My brother also had Duchenes and passed away at the age of 19. He was never on steroids.

Hi...Are you taking any medicine? My son was also diagnosed with DMD. He will be 21 next month and also in his third year of college. The reason I am asking if you are taking any medicine because he is been taking prednisone and now he is asking us to stop giving him prednisone. Thanks!

Our close family friend Johnny has DMD and so did his brother. Chip passed in his late 30's and John is now 57 with no signs of stopping yet. He does karaoke, bowls with a special stick and has assisted support for typing. He hasn't been without his wheelchair and vent since his teens.

Hi. I am so glad to hear your age. How awesome. My brother just turned 50 and he has been bedridden for 25 years he absolutely can't move anything. He is such a light of joy for my family. It's hard because my parents are getting old and my mom I think is beginning to show signs she has it also. Makes me concerned of how we are going to care for him and her. But anyway super great to hear of another person who is in his 50s. You must have also had wonderful care as my brother has. He is so smart and in a good mood all the time. He is a great inspiration to me all the time. Thanks donna

Hi my name is Teresa I have a 19 year old son with dmd and would love to share my lifes views with u x