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From West Palm Bch:



Pain management docs are so full of themselves (I remind my doc who HAS to be the largest boil on the butt of pain sufferers down here in So. FL but don't despair. YOU ARE STILL CONSIDERED TO BE UNDER HIS CARE FOR 30 DAYS BUT HAVE MERCY ON YOURSELF AND GO TO YOUR LOCAL EMERGENCY ROOM - THEY'LL KNOW WHO YOUR DOC WAS AND REFER YOU TO A NEW ONE AND WHEN AN ER DOC REFERS YOU TO THE DUDE IN THIS SPECIALTY, THEY HAVE AN OBLIGATION TO TAKE YOU ON.

I'm a now-disabled RN, MSN and manager of an ER for 12 years. I also use Duragesic on 200mcg/hr (2x100mcg patches) and I really want off of this. But I'd never do it alone; it's the wicked withdrawal that keeps me putting them on.

FENTANYL PRISONER
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Hey guest,
I swear I read your post somewhere else a few weeks ago. Huh? Little skeptical of your story. Not sure what your motives are.

I was on 100, the 75, then, 50, 25, 12 now I just decided yesterday to just stop. I still have some left but what is the point the don't help and I just want the hell to start and finish. BUT, nothing really has happened yet, It is almost 24 hours, I have felt some leg cramps, but my doctor gave me clonadine for that and then have since stopped. I had anxiety but I took a clonipin with put me to sleep and that stopped. I woke up with a little more anxiety and a weird off kinda feeling so I took ONE percocet. and now I woke up and I feel fine. I am wondering when does it start. At 17 hours 50% has left your body then the rest takes 3 to 4 days, OK, I am over 17 hours and nothing has happened. I prayed a lot and continued to, I even had preisthood holders from my church give me a blessing of confort and strength. Maybe I am just being cared for in a divine way. I mean I even had some withdrawals three days ago when the patch wore out after two days, which led me to just ending this since I was already suffering. I am happy for my comfort but wonder if it is short lived and if I will wake up tomorrow in hell! Can someone please help me undertsand. I have read so many forums and I gathered the withdrawals started fairly quickly, at least they would 24 hours after they took it off, even at 12 mcgs, I have read horror story. It may be God, and his angels.

God bless,

Diane
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Just wondering how your husband is doing? My mom is on day 6 and ready to give up. I don't know what to tell her to help her make it through. This is her third attempt to get off the patch. She's been on them for 8 years and is on 50 mcg. Any advice would be helpful.
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Hi All I was on 50 mg patches for 4 years and in the summer went down to 25's and then every winter raised again to 50mg. I decided to stop the patches because i lost 50 pds on them and just never felt right.I was given perkicet to help me with the withdraw and clonazapam.It has helped me allot but even after 4 weeks of this i am still having problems with y legs shaking all the time.I am very tired and still feel a bit ill but not as bad as last time when i tried with nothing to help me.I am now weaning off the percs also but then my legs get really bad.Does anyone else every get this leg thing its like restless leg syndrome but i know its not. Good luck to everyone and I will pray for you all and your pain problems. I have fibromyalgia,had 2 back operations lost 2 disc's and have myafacial syndrom and arthritis. K take care God Bless
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i went from a 75 patch to 50 to 25 and i just stopped taking the 25 on my own a couple days ago. i had no withdraw symptoms but they do make a 12 if you cant kick the 25 if you do go into withdrawal the physical symptoms never lasted me more than a week.
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to everybody that has had to go through the withdraw of this horrible drug i know the pain and frustration of going through it. i used fetanyl once as a street drug.....i overdosed on a 80 mg patch by chewing it. going through the withdraw is not only painful but is also humiliating. the day after my overdose i checked into a detox center. the center gave me drugs to help with the pain but it was still intense. not being able to move without hurting your stomach, not being able to do anything without hurting is the most frustrating feeling in the world.
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To all speaking of current or previous use of Fentanyl duragesic patches for pain,
My name is Mary and I am 31 years old. I was in a car accident in 2005. I suffered a pretty critical case of whiplash. I injured my neck/head in the sub occipital area in a way that surgery is not an option. I was in chronic pain and had headaches constantly.
In the beginning, I tried to avoid taking anything more than naproxen and amitriptyline. I still did not have any relief from my chronic neck problems and severe headaches, in fact these were getting worse. I gave in and began taking hydrocodone for over a year. During this time I still did not give up my quest in finding a doctor to tell me yes I can be fixed. MRI, after MRI and brain scan, etc. I ran through 6 different pain management doctors in the course of 3.5 years. I have had epidurals, nerve blocks, trigger points, rhizotomys, etc. One doctor even ignored the actual MRI of the injury and told me it was all in my head!
After seeing a neurologist in Sept 2007, I that I had found the answer. He convinced me that the migraines I was having were rebound migraines from the pain meds. I quit cold turkey and began using topomax. He was certain this would cure my ailments and all would be better. He was wrong.
I gave up. I did not want to see anymore doctors and did not want to take anymore pain medication. I took my topomax and that was it. I just quit. But finally I couldn't take it I was so miserable and in so much pain
that I begged my doctor for help that was when the fentanyl patch entered my life. This was great! I felt no ups or downs like the other pain medication. I just felt normal. I could not believe it. Other than sweating when I first started using it, it really helped. Finally something that helped. So I have been on this since July of 2008. I am using a patch of 50 and a patch of 12, so 62.
I have really wanted to go off of the medication recently due to my mothers recent death. It made me look at my own mortality and realize I need to be off this medication. Afterall I am 31.
I have read what all of you have said about going off the medication and it is all wonderful advice.
The advice I am looking for is what have you done afterward? What other pain remedies have you sought out in place of fentanyl. Can anyone help?
I was so desperate when I got the fentanyl. I remember thinking that I cannot even function a whole day to be with my two beautiful kids that I will do anything to be there for them and this allowed me too. I don't want to go back to only making it through 8 hours and collapsing on the couch.
My doctors say the only way is staying on medicine, but I don't want to live this way.

Thank you!!!
Mary
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hi mi mother had a stroke and was on percs and oxy for a few months but constipation was a problem so the doc recommended the patch,they have helped with the pain and constipation,she went from 25-50 and is now on 75mrg and the pain is now evened out but i am afraid of all the horror stories about them, i tryed 25mrg myself just to see what they do and have only tryed 3 patches and i am getting withdrawals pretty bad so i can't imagine what the high dose dose and i am worried now bout my mom...i want to get her of them now but don't know what to do,now i wish i never put her on them and stuck with the percs cause i know what those do to you and you can get off them with alot less withdrawal
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I was in a bad crash almost 9 months ago....

I have been on a75 patch for over 8 months now. I have started those cold shakes on the third day. I got sick this last time.

The only reason I found this site is because of what my doc did today.
He has to write out a prescription with every refill, he should have yesterday. My wife go's to the office today to see what is going on. My Doc said he was not going to re-fill the order because I missed an office visit. I can almost understand that if the visit were with him.!. The visit was with my SPINAL SURGEN !!! I never even said anything to my family Doc about going to my spinal surgen. Im not on the medication for reasons having to do with my spinal surgen. I have had those pains for years now, NOTHING to do with that pain.

As I said in the first line...... I had a bad crash 9/11/08. I have been on the med from that time.

Is what my family doc doing even legal? No way he could cut me from a75 for 8 months to nothing overnight, right?! I would be in the ER that same day.
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Not to scare you, but you need to either be seriously looking for a new doc to replace the one that died, or finding yourself a treatment facility to get off these drugs. I quit fentanyl cold turkey 2 years ago. ON day 4 I seized and spent 9 days in the hospital. I'll never again try cold turkey. Start wearing your patch as long as you can without changing, until you get new scripts..but do not try to just stop all at once. Espeically with your health problems
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Hello All, and thank you so much for everyone that has written about their experience of Hell with the worst Medication on Earth!

I too am a Fentanyl Survivor!!! It is Day 8...and yes, I am still suffering Withdrawl Symptoms from this Crud. And yes...I was one of those people foolish enough to a. trust their Doctor that put them on this SH*T, and b. tried to get off of it the good old fashion Cold Turkey Way....well...yah...ummm...about that...I would rather give birth unmedicated, which I have done, several times over instead of going through these horrible Symptoms!

About 2.5 years ago I fractured a Vertabrae falling down a flight of stairs at night. It ended up being a compression Fracture with a wedge, at the T-8 Level. For you Ladies, T-8 is right where your Bra Closure sits, guys...it's right where you undo it! Well...it should have been fixed via Surgery, but Army willing we had to move about 3 weeks after it was finally diagnosed. I was on 5/500mg Vicodin, or any of the generic versions thereof, for about 1.5 years when that stopped working. So doc put me on 5/325mg Percocet. I never took more than 8 a day, for a fractured Vertabrae that by then had healed wrongly and with a 30% loss in Body Height. My doc left the Clinic he worked in about 3 month after starting me on the Perc's and I was left having to find another doc in that very same clinic that would do the right thing. Well, in hindsight, I don't think the Prick I got was what I was looking for. Again, I never took more then 8 5/325mg Perc's a day and this "Doctor" thought Fentanyl Patches would be the way to go since, and watch out that you don't spew Coffee all over the Computer Screen, one would not be able to ABUSE FENTANYL!!! I am waving the Flag bigger then Stuttgart, crying foul, calling BS, whatever you want to name it! SO this Prick put me on 50mcg/hr of this. Mind you, 50mcg/hr Fentanyl is equal to about 16 - 20 5/325mg Perc's a day! Which I swear I was never taking! Well, unbeknownst to everyone, I had an undiagnosed Hypothyroid Condition which we would not find out until 6 month into my Fentanyl Hell. So...Hypothyroid makes you sweat like a little Pig, or a big one, and makes you tired. So since the Patch is on your Skin, when your sweating like a pig, you draw the meds faster. So within a month after he put me on it, I was back crying foul asking him to either take me off, increase the dose, or decrease the time between changes. So increase we did to 75mcg/hr. Two month later, there I was again, asking the same questions...begging him to take me off. But, increase we did, again! I was at 100mcg/hr after a few month, and then was told to change every 48 hrs. Then I got diagnosed with the Thyroid condition, and all of a sudden a light bulb came on and we knew why I was getting so used to it so quick. I was referred to a Neurosurgeon who told me that herniated bulging discs where no reason for Surgery. The Disc between T-8 and T-9 is protruding, but not impinging on my Spinal Cord. But we're not sure where the pain is from, and it's certainly no reason for surgery. I finally got referred to a Pain Doctor who actually gave a rats ass, and he started me on Neurontin (Gabapentin). That stuff is really good for Nerve Pain. I worked my way up to 3600mg of that a day, and then started reducing the Fentanyl on my own. From 100 down to 75, and then down to 50. And then I told the Pain Clinic Doc that I was doing so. He asked how it worked, and I told him I was fine, and that I wanted to get off of this sh*t. He supported me 110%...and then my husband retired from the Army and we moved again. Well I was in a tight spot, up here in Michigan there are apparently alot of people that make a habbit of Doctor shopping, and as a result no Physician outside of a Pain Clinic will perscribe ANY NARCOTICS! >;)

So, last week when I had my first appointment with my new Family Doc I told him I had just taken off my last Patch and he told me to hang tight and referred me. I don't blame the man, he didn't know me from Eve and to be frank, I didn't want the sh*t had he offered it.

I was pinging, couldn't sleep yet was dead tired, was in the most agonizing Pain ever, had the Hot and Cold Sweats, was a very, very angry Person to be around, had the creepy crawlies, lashed out...but not at my kids...until on the afternoon of day two I begged my hubby to take me to the ER! The Nurse and the Doc both asked my why I did the Turkey thing, and after I told them that I had no choice since I had run out, the Doc said well...Clonidene, which is a Blood Pressure Med (alpha2 agonist) that binds to the same receptors in the Brain as Opiates and Valium is what we usually use for Withdrawls and if that was ok with me. I am not kidding, had he told me clubbing me over the Head with a Sledgehammer would help I would have given him a thumbs up! At this point I did not give a sh*t what he did, or how he did it, as long as I could just go to sleep. So he did prescribe the aforementioned Meds, Clonidene 0.1 mg, and 5mg Valium. And by the time I got home...I was so sleepy that I just kind of fell into bed. I slept for the most part the next few days, until this past Saturday. I am still very shaky, my back still hurts like a son of a gun, I am weak, can barely eat or sleep, but I am alive. I am a Survivor!

I did ask my doc for sleeping pills and more clonidene today and he happily obliged! Also...switched to Lyrica a week ago. Really good medication, you have to take far less then of the Gabapentin and it works better, I think. Newer Med, some Insurances seem to take an issue with that.

During the time I was on Fentanyl, before the Gabapentin, I contemplated Suicide many, many times. I am alive because I have 4 beautiful Angels to live for! And now that I am not there anymore, I am glad that I didn't, but man at the time it sure seemed like the solution! Now I can not listen to Sissy's Song by Alan Jackson without crying and being reminded of the sh*t Hole I was in.

If you want to stop taking Fentanyl, do it! Do not, not a doc but a fellow Survivor and Hater, stop taking this sh*t Cold Turkey! Wean yourself down all the way to a 12mcg/hr patch, and then ask your doc for the meds i mentioned, at least the Clonidene. Fentanyl Withdrawl can kill you, it can cause Seizures that can kill you, and it is a horribly messy place to be in!

For all of you out there still suffering on Fentanyl, go for it, I am cheering for you! For all of you on here that have managed to get off, thank you so very much for sharing your Stories. One way or the other, we all are Survivors!!!

Blessings from Wellston, MI!!! :-D
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Hi All,

I started with a Pain Doc about 3 years ago for lower back pain.I had surgery on l4-l5,removed all but 1/4 of that disk 15 years ago and now problems with degin.disks too.I worked up to 2 years ago when I could not take pain and/or side-effects from meds...I've tried 6 or 7 different drugs,Kadain,Oxycotin,ect...I Loved actiq pops( I got up to taking 3 1600m a day until insurance stopped paying for them,talk about withdrawls,phew...I've been on Fentanyl Patches (50's) for the last 6 months.I'm just tired of the sleeping most of the day and not at night,the sweats,depression..And then last week I saw a tv commercal from a lawyer firm about folks dieing from the Fentanyl Patches,So the plan is to get off these things.. It is Day 4...and I am still suffering Withdrawl Symptoms.I'm taking my breakthrough pain med,lortab 10/500mg, 2 every 5 to 6 hours and have some Robaxin for the musle Spasms .But still have the Leg thing going on,bad sweats,not sleeping good at night and that feeling of being in a Bubble,just disconnected from everything and very very depressed...I hope it gets better as the days go by,I really do not want to go to my pain doc right now $$$$,I just want off this drug.I am taking Budeprion xl 150mg twice a day for the depression that I've had for months now..
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Hello fellow Survivor!

I am the Lady that posted above yours...no need to go to the pain doc right now, if you want to make things easier on yourself try going to your regular doc and telling him about the withdrawls. Your Legs are restless, and that is the most uncomfortable thing in the freaking world. The problem with withdrawing from the Fentanyl is that the 50's are equal to about 80 to 90 mg of Percocet a day. It sounds like you are taking about 80mg a Lortab a day which doesn't cover the same amount as the Percocet or Oxycontin would. Plus that means that you are at a max dose of Acetaminophen every day, and that is damaging to your Liver, regardless of what you have been taking up to now. This also means that your Blood Pressure is pretty high, due to the Withdrawls themselves and the undue Anxiety. Mine was 148/98 with a Pulse of 105 when I went to the ER. Ask for Clonidene...it lowers that Blood Pressure (dosage goes from 0.1, 0.2, to 0.3 mg). It is an Alpha2 Agonist, and just so happens to attach itself to the same receptors as opiates. Also, if you can get the doc to write a script for some 5 mg Valium, you'll be good to go. I am now on day 10, still get the shakes, am not taking any Painmeds, but I am taking the Clonidene. I also take Lyrica, which is Pregabalin, and a Nerve Pain Medication. My husband takes Keppra, which also works very well. Just ask your regular doc which he thinks would be better. The clonidene is a must, everything else not so much! You deserve to be rid of these things...

Not sure if you are familiar with the Show Dr. G on Discovery Channel? Anyways, she was doing an Autopsy on a guy one day that she got in the Morgue from an ER...He died of Fentanyl Overdose...unintentionally!!!

Get help, please!!! :-)
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Just thought you guys should know...i was on serious opiates for 3 years solid...very high doses and a lot of them in a day.When i decided to quit, i had looked up a doctor and found one in my area that prescribes Suboxone. Tell you what...after feeling the horrible withdrawal symptoms, i was skeptical that anything would work. Suboxone works great, and it definitely saved me big time. It works within a half hour and last 24 hrs. at a time. If your insurance doesn't cover it then its like 7 $ a pill.I would pay more if i had to because of its effect.That's the best thing available in my opinion!
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LISTEN AND LISTEN GOOD!!! I WAS ADDICTED TO FENTANYL AND THOUGHT I WOULD DIE!! I TOOK OFF THE LAST 100MCG PATCH A COUPLE OF DAYS AGO AND I TOOK 4, .5 MILLIGRAM ATIVANS...THEY COMPLETELY STOPPED THE WITHDRAWL SYMTOMS!!!! IT WAS A MIRACLE!!!! I HAVE NONE OF THE WITHDRAWL SYMPTOMS WHEREAS BEFORE I WAS BECOMING SICK WITHIN A FEW HOURS. I THOUGHT I WAS IN FOR THE NIGHTMARE OF MY LIFE!!!! BUT, INSTEAD I HAVE BEEN SAVED BY A TINY WHITE PILL (ATIVAN). I DID NOT RESEARCH FENTANYL BEFORE I STARTED TAKING IT-----AND I WILL NEVER TAKE IT AGAIN!!!!! THE DRUG IS PURE EVIL...SPREAD THE WORD TO ANYONE AND EVERYONE AND FOR GOD'S SAKE TRY THE ATIVAN. ITS AS IF I HAD'NT BEEN ON THOSE DAMN PATCHES AT ALL.......THERE IS HOPE!!!! ATIVAN
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