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I'm 60 years old and had a meatal stenosis when I was a child and had meatotomy surgery to correct the problem.  I have had chronic pain inside the tip of the penis most of my life and have seen 7 different Urologists and endured cystoscopies, dilations, IVP's, MRI's, cultures, etc without any diagnosis or relief,  It is believed that i have some sort of neuropathy from the surgery and I'm currently on a heavy daily dosage of Lyrica,  I feel like I'm caught between Urology and Neurology without any solution to alleviate my pain.  What course of action am I missing?  Feel miserable and pain is worst after each urination until it settles down to normal discomfort.

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Hi.

I'm sorry to hear about the chronic pain you've been experiencing. It sounds like you've already undergone extensive urological evaluations without a clear resolution. Considering the complexity of your situation, here are some potential steps and considerations that might help in seeking further treatment:

If you haven't already, seeing a pain management specialist could be beneficial. These professionals are trained in managing chronic pain, including neuropathic pain, and might offer different approaches or treatments that haven't been explored yet.

A multidisciplinary approach, involving urologists, neurologists, pain management specialists, and perhaps a psychologist specializing in chronic pain, could provide a more holistic treatment plan. Chronic pain can often be multifactorial, involving both physical and psychological components.

Since neuropathy is suspected, a thorough neurological evaluation, if not already done, could be helpful. This may include nerve conduction studies or other specialized tests to assess nerve function.

Techniques such as acupuncture, physical therapy, biofeedback, or other alternative therapies might provide some relief, especially if the pain is neuropathic in nature.

Since you're already on Lyrica (pregabalin), which is commonly used for neuropathic pain, discussing the effectiveness and dosage with your doctor is important. Sometimes adjusting the medication or trying a different neuropathic pain medication can make a difference.

Adjusting lifestyle factors that might exacerbate pain, such as diet, hydration, exercise, and stress management, can sometimes provide relief.

Hope this helps a bit.

 

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