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I just found out that my girlfriend has metabolic muscle disorder. I am very concerned about her. I don’t know anything about it. Is there anyone with muscle disease who can give me some input what to expect.

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I learned at age 25 that I had muscle phosphorylase deficiency and it was a great relief to have a name and an explanation for a problem I'd had since early childhood. Metabolic muscle diseases affect each person differently, but for most of us, it doesn't limit our lives. In my 30s now, I'm able to work in my chosen field and I don't use a wheelchair or any orthopedic equipment.
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