Pineal cyst and various symptoms

Did you have the surgery? How did it go? Are your symptoms gone? What was your recovery like? What was the size of your cyst?

Who was the neurosurgeon, and how are you doing now? What procedure did you have.

Earl, how are you doing? Did Dr. S. do your surgery? Are you problems going away?
Thanks.

How are you doing? Have you had any treatment or surgery? Did you see the specialist in Louisville? How did that go?
Thanks,
Pattie

Had the surgery, then stroke, then meningitis. Eyes are still crazy but I do have BALANCE back!

 

What is your nationality? if you are a filipino I can give you a call to discuss your symtoms. I have also a pineal cyst, we can compare notes related in our case. My e-mail address is

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. Thanks.

Who is your doctor that removed your cyst and told you that you could come back to work in 2 days and the recovery period would be in 3 weeks only?

Contact Dr, Shahinian @ Skull Base institute. Look him up online & you can even see the procedures he uses. Very cool! He has a very good reputation! He does the surgery through an endoscope & a dime size insision in back of head & you will be out of hospital in 2 days. Everyone I have heard that has gone to him says they are symptom free after surgery. I also suffer from pineal gland cyst & I have done alot of research & it seems he is the best. Oh & age doesnt matter...He was on the daytime show "The Doctors" & he said he will remove the cyst from any age. I hope this information helps! Good Luck & God Bless!! :)

see:

 

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especially this comment:

ycompanys

Oct 22, 2009

To: dana663

Neurologists may be very quick to tell you that you are fine with a pineal cyst and that it is not causing your symptoms. But beware: 1) Doctors in general don't really undestand what the pineal gland does; and 2) Some don't seem to understand the difference between symptomatic and asymptomatic pineal glands and tell their patients not to worry about pineal cysts.Some things to keep in mind, according to the medical literature: 1) The most common symptom is headaches, followed by vision problems and dizziness, and in some cases insomnia, nausea and cognitive deficits, particularly if cognitive deficits are involved. 2) Pineal cysts can be symptomatic if they are larger than 0.5 cm. Problems occur when the cysts cause compression in the brain, or when they are associated with apoplexy or hydrocephalus. 3) Radiologists cannot easily distinguish between cysts and benign tumors, often leading to misdiagnosis. NOTE: A benign tumor is not metastatic, not malignant. 4) If you are in the 18-34 age group, your cyst can grow, so you should get MRIs every 3-6 months. If your doctor does not want to, get a new doctor. 5) If you have to get surgery, get the following one but only if you have compression or hydrocephalus and your symptoms are incapacitating: Suboccipital craniotomt with infratentorial-supracerebellar approach and microsurgical resection of pineal cyst. Contrary to what is stated above, this is NOT brain surgery. They access your pineal region from beneath the brain, so they do not affect your brain at all. It sounds like a scary procedure but is actually straightforward for a good brain neurosurgeon. The surgeon essentially inserts a microscopic endoscope that magnifies the area by 50x and uses a navigation system to get him there. It is minimally invasive. The medical literature says that most patients whose pineal cysts are not too large (e.g., < 4.5 cm) become completely asymptomatic after surgery. The surgery entails a 6-8 week recovery, and a small incision in the head and removal of skull bone, which grows back after surgery.The most important thing is to get a doctor who takes your pineal cyst seriously. It is a rare disorder, and few doctors understand it well. So you will need to be persistent.

 

 

I too have a pineal cyst pressing on my brain , I have hydrocephalus which is causing me problems, The neurologist wants to drain the cyst but I am scared.

hello. my name is Dana. I also have empty sella syndrome AND a large pineal gland cyst. There
has to be a link. Of course I have been getting light-headed, Im ALWAYS tired and I am living a half life.,
at least that's how I feel. I think everyone that has this should find a GOOD endocrinologist. The
empty sella is only empty because the pituitary gland is underdeveloped and should be tested or u
will have normal pituitary function and some will not OR they will have normal function for a while. My has
begun to only function at 50%,. I will be taking cortisol for the rest of my life and hopefully that will help my
fatigue. These are all endocrine issues. They in turn affect the thyroid and possibly reproductive activity. I have
been affected by all. Again, I searched for YEARS until I found a GOOD endocrinologist that can treat this
complex system. The neurologist can diagnose from the MRI and recommend a neurosurgeon if necessary.
Good luck! It is all treatable ! Keep looking.

Hi,

I am looking for a pineal gland neurologist in the NYC area. I was diagnosed with a 3mm two years ago.  Any recs will be greatly appreciated.

 

Warmly,

Erin

hello abbygirl,

i was recently diagnosed with 5.8 mm pineal gland cyst, my physician is from nyu as well. he has requested the disk from my radiological group located here on li,ny as he wants to interpret the disk himself. i have all the classic symptoms, discomfort etc. that we all here on this board are trying desperately to cope with. i would like to know who is your physician @ nyu. YOU are courageous having had the surgery - would love to hear your story. best wishes on you continuing recovery...hope!

Hi, There is a 10 x 9 x 8 mm pineal cyst in my brain and I thought my 8 years headache is caused by it. I have done 5 MRI for the last 3 years and no neurologists correctly identified that a flat pouch-like arachanoid cyst is behind my cerebellar which is the real cause of my headache. (my headache turned into severe positional headache since 2012). A famous neurosurgeon removed my arachanoid cyst using endoscope and my position headache is gone. My MRI scan showed that the 10 mm pineal cyst is 1 mm above the aquaduct and it does not compress the auuaduct. There is no sign of hydrocephalus. Check you MRI scan to see any obstruction of your aquaduct. If no, you don't need to worry about your pineal cyst. You can search Ashley pineal cyst and you will find her blog showing her surgery to remove pineal cyst. I hope the above will help you.

I have multiple sclerosis and was recently admitted to the ER due to symptoms.  They did an MRI and come to find that I have a 12mm pineal cyst.  It turns out that I have had it since 2008 and it has grown 3mm within the past 3 years.  I understand the headaches, fatigue, irritablility and such.  I don't know if it's the fact that I have multiple sclerosis as well, but my physicians took it seriously.  I am on Ritalin which actually gives me energy since I don't have ADHD. I cannot say that it has taken all of the fatigue, but it's really helped and I'm not as irritable because i'm as tired as I once was.  Maybe that might help some of you as well!