Hey guys. I had suboccipital craniotomy to remove my 12mm pineal gland cyst/tumor/mass, with a 3 mm rim of enhancement just 4 weeks ago in Boston, MA and guess what? I am symptom free! Only recovering from the surgery site itself. I created a blog to document and chronicle my uphill battle with diagnosis to treatment to recovery thus far. I hope this helps all you others out there somehow. Hope is out there and do not give up! No one will ever understand our debilitating daily symptoms and loss of quality of life unless they suffer from this very real, rare, misdiagnosed and misunderstood brain tumor!
Hugs and good wishes to you all!
Mindy - a Survivor
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