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Hi, my neighbor has a child which has myotubular myopathy. These people are very nice and pleasant but I don't know how to act when I saw their kid as I know he is very sick. I would like to know something more about this disease because I don't want to make impression on them that I am afraid of their kid or something like that.

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Hi, myotubular myopathy really is very serious disease but there are kids who live with it. It is rare inherited disease which cause low muscle tone and affected children have diminished respiratory capacity because of what they are ventilator dependent. I suggest you to act normally and naturally and to make normal contact as these children are mentally healthy as other children.
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