IM 36 YEARS OLD AND LAST MONTH I WAS TOLD I HAD A PINEOCYTOMA OR A PINEAL CYST. I HAVE NOT SEEN ANYOND FOR THIS MATER BECOUSE IM HAVEING A HARD TIME GETING ANYONE TO HELP ME.I HAVE A HEADACHE EVERYDAY,NAUSEA,VISUAL PROBLEMS,I GET VERY HOT,LEG PAIN,LOSS OF SENSATION IN THE MORNING,MEMORY PROBLEMS,AND TREMORS.I DONT KNOW WHAT TO DO OR HOW I CAN GET SOMEONE TO HELP ME
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I'm sorry if this sounds silly, but why couldn't the doctor who diagnosed the pineocytoma help you?
While most pineocytomas are benign, they can still be problematic and exhibit the symptoms you are having. It needs to be taken care of for sure.
My suggestion, obvious as it seems, is to contact your doctor for advice and help.
While most pineocytomas are benign, they can still be problematic and exhibit the symptoms you are having. It needs to be taken care of for sure.
My suggestion, obvious as it seems, is to contact your doctor for advice and help.
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IT BEEN A FEW AND I HAVE BEEN TO SEE A DOCTOR FOR MY HEAD AND ITS ALWAYS A WAIT AND SEE THING. NOW I HAVE TO TAKE ALL KINDS OF MEDS. JUST TO GET THOUGH THE DAY. I HAD A LOWER LUMBAR TAP AND MY PRESSURE WAS AT 43.I NEED TO FIND A DOCTOR TO REMOVE IT SO I CAN GET MY LIFE BACK.
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I have recently been diagnosed with pineocytoma and I have all of the same symptoms as you. I saw a neurosurgeon and was told to hold off on surgery as long as possible because of how invasive it is. I believe that growths in this area is so rare that the doctors don't know what to do- from what I've been told.
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