I have carried a giant bottle of water with me for 15 years. Never knew why I was so thirsty and had no saliva. Difficult as a singer. After hearing about this syndrome I started going to doctors..all kinds of doctors including rheumatologists. They will not even discuss this with me yet I have every single symptom. Extreme sed rate, M spike or protein in blood, dry eyes that flunked the Schirmers test, can no longer sing, extreme fatigue, you name it. Why don't these docs want to put their names on this diagnosis? One doc even told me there's nothing you can do if you are diagnosed so why bother with it? I did not have RA factor. What do you think they are using for logic??? What have I missed?