Hi! My name's Tyoma, I'm from Russia... Actually I don't know much about this decease earlier. I just finished watching "1 Litter Of Tears" and I just cried all the time watching it. Even thou I'm 30 years old, I was crying like a child. This movie definitely has changed my heart and soul, and now I need a new heart cause mine is broken. To say the truth, until now I wasn't completely understand what people feeling in such a situations. I think most people just ignores this and don't want to spent their time thinking about this people. I really want to share the pain with all of you, cause now I understand much more than before. Please, Julie, all of you guys, don't give up, try to live as much happier as you can, and know that there are people that really loves you all. I just want you to know that even we have some complicated political relationships between our countries, I think that here, there are many people that feel as I am. Also I'm planning on translating "1 Litter Of Tears" to russian, so many people can watch it and live through this movie to understand much about all the pain that has people with this decease.
Don't give up!
Don't give up!
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Hi! My name's Tyoma, I'm from Russia... Actually I don't know much about this decease earlier. I just finished watching "1 Litter Of Tears" and I just cried all the time watching it. Even thou I'm 30 years old, I was crying like a child. This movie definitely has changed my heart and soul, and now I need a new heart cause mine is broken. To say the truth, until now I wasn't completely understand what people feeling in such a situations. I think most people just ignores this and don't want to spent their time thinking about this people. I really want to share the pain with all of you, cause now I understand much more than before. Please, Julie, all of you guys, don't give up, try to live as much happier as you can, and know that there are people that really loves you all. I just want you to know that here, there are many other people that feel as I am. Also I'm planning on translating "1 Litter Of Tears" to russian, so many people can watch it and live through this movie to understand much about all the pain that has people with this decease.
Don't give up!
Don't give up!
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although I'm not like the others who had been diagnoses to have a spinocerebellar degeneration. in my little age I've got a interest in that disease since I've watch the Japanese drama entitled "1 liter of tears"that movie make any person who has been a carrier of that disease makes themselves to go on in their lives.to fight that disease happily i know that im not in the right position to say this because I'm don't have that kind of disease.i am not saying this because I'm too proud of myself because i don't have that kind of disease but to encourages all of you who have this disease to continue to live with a happy life, don't waste the time that you have here in the earth as long as you still alive make your life happy and not regretful like what they say,"having this disease is not unlucky but just inconvenient".i hope that this message helps you....thanks for reading....live a life happily.....
until today their still no cure for spinocerebellar degeneration disease but still there are some rehabilitation center that is fitted for that disease it cant cure you but still i can prolonged your life...
thankz...
have a nice day.... :-) AJA!!!! :-D
until today their still no cure for spinocerebellar degeneration disease but still there are some rehabilitation center that is fitted for that disease it cant cure you but still i can prolonged your life...
thankz...
have a nice day.... :-) AJA!!!! :-D
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I suggest you watch One Litre of Tears.
The girl in this story had the same disease.
She courageously and hopefully did all she can to survive.
It will surely help you! :-)
The girl in this story had the same disease.
She courageously and hopefully did all she can to survive.
It will surely help you! :-)
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It's so heart-breaking to know a lot of people suffer from this disease. It's been 9 years since you've posted this, and I don't know if you could still write or walk. I just hope you are well.
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hey... the movie "1 liter of tears" is presently aired here in the Philippines... i find it very exaggerated because based on the research that i conducted in the net... the disease is "slow" develops slowly...
but anyway... God has a good plan for all of those people who are suffering from that condition... have faith... nothing is impossible...
j
but anyway... God has a good plan for all of those people who are suffering from that condition... have faith... nothing is impossible...
j
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Good Day to you guys. I am Jerp from the Philippines. I actually am not the same as some of you guys are but the thing that i have you in common is that i am concern about the patients who are suffering from this disease.
I am actually a nursing student, currently, on my final year. Ever since, i really wanted to be a doctor. but i just don't know what kind to pursue.. But you know guys, after watching the Japanese TV series "One Liter of Tears", i found myself very eager to be of help to those who are like Aya ( the main character in the series who had suffered from SCA)! and i won't just render supportive care, but will be the one to discover the cure of this cruel disease ! guys, i am just not recommending that you watch this series, but i am BEGGING you to. I know, it would be troublesome to some of you. but im sure, you'll absolutely be a better person after watching it !! especially to those who are having the same disease..
Fight !! Fight !! never lose hope !! for the only thing that could not be stole away, even by such a cruel disease is HOPE !!]
Thanks to all of you. Let us all fight this Disease !!)
I am actually a nursing student, currently, on my final year. Ever since, i really wanted to be a doctor. but i just don't know what kind to pursue.. But you know guys, after watching the Japanese TV series "One Liter of Tears", i found myself very eager to be of help to those who are like Aya ( the main character in the series who had suffered from SCA)! and i won't just render supportive care, but will be the one to discover the cure of this cruel disease ! guys, i am just not recommending that you watch this series, but i am BEGGING you to. I know, it would be troublesome to some of you. but im sure, you'll absolutely be a better person after watching it !! especially to those who are having the same disease..
Fight !! Fight !! never lose hope !! for the only thing that could not be stole away, even by such a cruel disease is HOPE !!]
Thanks to all of you. Let us all fight this Disease !!)
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Although, I am not like you guys who was suffering that disease. I am actually concerned about it. After watching 1 litre of tears, I really wanna help people who was suffering from it. You should watch 1 litre of tears, it will really make you a better person and be faithful. :-)
I hope doctors will find how to cure that disease. GodBless!
I hope doctors will find how to cure that disease. GodBless!
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oh yes. the 1 litre of tears. its now showing in the philippines but i already finished watching it. even though im not diagnosed with spinocerebellar degeneration, i found this disease very cruel. rehabilitation can help the disease progress slowly, i think. im just 13 year old.. from the philippines.. goodluck to the victims of this disease..
Arra.
Arra.
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my older sister have this disease...and i can see, it is a very cruel disease. we cannot do anything or help her about it by now she cannot write with her own hands she cannot walk properly we're hurt to see her like that, but for those who have family members who are diagnosed with this disease, never show any weaknesses for they lean on us...and i recommend you to watch the movie "liter of tears" whenever i see this movie i want to cry but it surely gives hope to those who have it.
this disease is called "spinocerebellar ataxia"...those who are have this disease...are often out-balanced at first and will certainly end up with a wheelchair, they cannot write properly and they also have difficulty in speaking, difficulty with almost or i may say "all" in everything they do, in time...now, there's no cure for this disease, but there are treatments that can slow it down...like encompass rehab intervention, there are physical and vitamin therapies, that help slow it down...
it's best to check the movie...
this disease is called "spinocerebellar ataxia"...those who are have this disease...are often out-balanced at first and will certainly end up with a wheelchair, they cannot write properly and they also have difficulty in speaking, difficulty with almost or i may say "all" in everything they do, in time...now, there's no cure for this disease, but there are treatments that can slow it down...like encompass rehab intervention, there are physical and vitamin therapies, that help slow it down...
it's best to check the movie...
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my older sister have this disease...and i can see, it is a very cruel disease. we cannot do anything or help her about it by now she cannot write with her own hands she cannot walk properly we're hurt to see her like that, but for those who have family members who are diagnosed with this disease, never show any weaknesses for they lean on us...and i recommend you to watch the movie "liter of tears" whenever i see this movie i want to cry but it surely gives hope to those who have it.
this disease is called "spinocerebellar ataxia"...those who are have this disease...are often out-balanced at first and will certainly end up with a wheelchair, they cannot write properly and they also have difficulty in speaking, difficulty with almost or i may say "all" in everything they do, in time...now, there's no cure for this disease, but there are treatments that can slow it down...like encompass rehab intervention, there are physical and vitamin therapies, that help slow it down...
it's best to check the movie...God bless to those who have it...
this disease is called "spinocerebellar ataxia"...those who are have this disease...are often out-balanced at first and will certainly end up with a wheelchair, they cannot write properly and they also have difficulty in speaking, difficulty with almost or i may say "all" in everything they do, in time...now, there's no cure for this disease, but there are treatments that can slow it down...like encompass rehab intervention, there are physical and vitamin therapies, that help slow it down...
it's best to check the movie...God bless to those who have it...
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:$ everyday i wake in the morning i'm so stuffed because i have the same disease that is discuss
im from the philippines.
i was diagnosed last week because of my disease
how could i wish to make my life more longer~ i'm only 10 yrs. old
i thought that thi is the end but may friends told me to fight to make my dreams good and successful
im from the philippines.
i was diagnosed last week because of my disease
how could i wish to make my life more longer~ i'm only 10 yrs. old
i thought that thi is the end but may friends told me to fight to make my dreams good and successful
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hello, I have a friend who is suffering from this kind of disease. He suffered from it way back 2006. Actually his parents cant describe properly the name of his disease. All they say is that their child has lost its body coordination and then the following months they discovered that he is suffering from that disease. So I made a research about his disease and I found out that he is suffering from spinocerebellar degeneration also known as spinocerebellar ataxia. The cine novela 1 liter of tears in GMA 7 will help you provide a lot of information about SCA disease. My friend is a lively person until this disease hit him. Now he is bed ridden and stays most of the time seating on his wheelchair. He cant talk, walk, nor eat properly, not even recognize his friends. Last week we went to his house. My eyes are teary after seeing his condition. Despite of what had happened to him, I still can see some hope despite of the pain in his eyes. Dont worry, its not the end of the world. Have faith that one day, God will send brilliant people through forms of scientist that could invent cure on this disease. Good Luck to you GUEST..
your friend,
cris
your friend,
cris
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To add a little something about the SCA.. Spinocerebral Degeneration/Ataxia manifests in different ages. The degeneration speed and sysmptoms also varies according to type. According to wikipedia, SCA has 29 types and not all types cause equally severe disability.
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to those who have this kind of sickness, i'm recommending you to watch the japanese drama entitled "1 Liter of Tears". this is a story of a 15 year old girl who suffered the same disease. yet, she struggle to live her life at its best.
this drama will encourage you to live on and to do the best in whatever you are doing right now. she also influenced other people with the same sickness through her inspirational writing in her diary.
this is a true story and i guarantee you that you will learn a lot from it, especially about the importance of life.
if you are interested, this is a link where you can watch the drama.
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i'm only gonna warn everyone that this is a heart melting story. its already been a week since i've watched this and i still can't get over with it. well, i just hope i helped..
**edited by moderator** **web addresses are not allowed**
this drama will encourage you to live on and to do the best in whatever you are doing right now. she also influenced other people with the same sickness through her inspirational writing in her diary.
this is a true story and i guarantee you that you will learn a lot from it, especially about the importance of life.
if you are interested, this is a link where you can watch the drama.
****
i'm only gonna warn everyone that this is a heart melting story. its already been a week since i've watched this and i still can't get over with it. well, i just hope i helped..
**edited by moderator** **web addresses are not allowed**
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