hi, i have spinocerebella deceise, and it has made to come to one conclusion one hat i hope you will find usefull. if at any time you feel down or confused about what is happpening or you fell the need to o on to web sites to see how bad things are going to get dont.
go and spend time with your family or some time doing something you love it helps me peciate just how lucky i am. best wishes scunner :-D :-D :-D :-D
go and spend time with your family or some time doing something you love it helps me peciate just how lucky i am. best wishes scunner :-D :-D :-D :-D
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Yeah Hello there!! I'm really very sorry, but I just want to cheer you up.. You really should never give up.. and you should accept yourself as you are... you can watch the Japaneese Drama ( 1 Litre Of Tears) and this all I can Help with .. I wonder how old were you when you were diagnosed... and Hope for you all the best wishes from my heart...
Good Luck,
Eva...
Good Luck,
Eva...
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Hello. ^^ i don't know what to say because i'm only 12 y.o. Have you ever watched the drama" One Liter Of Tears " ?
The story is about a girl who is suffering from SpinoCerebellar. Maybe it can inspire you a lot.
I wish that there will be a cure in SpinoCerebellar. God bless
The story is about a girl who is suffering from SpinoCerebellar. Maybe it can inspire you a lot.
I wish that there will be a cure in SpinoCerebellar. God bless
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i watched one litre of tears many times and cried damn bad.
everyone here who's affected by this disease, nvr lose hope!!
i am sure they will find a cure for it one day!
i am so proud of all of you fighters!!
stay brave forever and live life to the fullest. we nvr know what's going to happen next in life who knows tmr there might be a cure for it already!
i'll be praying for all of you!
everyone here who's affected by this disease, nvr lose hope!!
i am sure they will find a cure for it one day!
i am so proud of all of you fighters!!
stay brave forever and live life to the fullest. we nvr know what's going to happen next in life who knows tmr there might be a cure for it already!
i'll be praying for all of you!
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HI if you have spinocerebellar ataxia try to have neural stem implantation... for details here are the sites.
***edited by moderator*** web addresses not allowed
***edited by moderator*** web addresses not allowed
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Hi, many people have recommended watching the Japanese movie titled "1 Litre of Tears" or "Ichi Rittorou no Namida". There is also a drama about it. It is based on a true story about a girl named Aya Kitou who was diagnosed with Spinocerebellar Degeneration Disease. Professionals were approached before production of the drama. It gives you plenty of information and shows viewers the struggles of what Aya had to go through. It brought myself and millions of others to tears. It's simply excellent (:
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If u are now suffering spinocerebellar degeneration, then u should know what happens, right ?
U will slowly lose control of yourself. And right now, it still isnt curable. That disease will make u suffer little by little, till the end.
U cant move like u want to, and when u want to say something, you arent able to. U cant move freely, and its hard to speak. It will be hard to swallow, and u will lose ur walking ability, like speak ability, and others. U will neew a wheelchair.
I propose that you watch a drama called 1 litre of tears. It's a story about a girl, who had spinocerebellar degeneration. In real life. And now, they made a drama about her life. Cuz she wrote a diary, till the end, she wrote diaries 10 years. That drama will help u !
U will slowly lose control of yourself. And right now, it still isnt curable. That disease will make u suffer little by little, till the end.
U cant move like u want to, and when u want to say something, you arent able to. U cant move freely, and its hard to speak. It will be hard to swallow, and u will lose ur walking ability, like speak ability, and others. U will neew a wheelchair.
I propose that you watch a drama called 1 litre of tears. It's a story about a girl, who had spinocerebellar degeneration. In real life. And now, they made a drama about her life. Cuz she wrote a diary, till the end, she wrote diaries 10 years. That drama will help u !
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=/ As others said, you really should watch 1 Litre of Tears...it was soo touching D: and gives alot of information from
her own affected moving habits... There is also one that i think is sort of like 1 Litre of Tears, that is called 'Yuuki' which is a Japanese Movie.
At the beginning, it is sort of boring, but dont skip it, cause the beginning shows something...:-)
how they couldnt cure the boy there...D; Also very touching, that i still remember.
ihateit how i cant forget about these at school, its soo bothering when i hear the word 'sad' )':
Hopeee you get better ):
her own affected moving habits... There is also one that i think is sort of like 1 Litre of Tears, that is called 'Yuuki' which is a Japanese Movie.
At the beginning, it is sort of boring, but dont skip it, cause the beginning shows something...:-)
how they couldnt cure the boy there...D; Also very touching, that i still remember.
ihateit how i cant forget about these at school, its soo bothering when i hear the word 'sad' )':
Hopeee you get better ):
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ELLOW THERE....
I was shock that sninocerebellar disease is already occured...
i thought it is only in the 1 liter of tears,....
just pray and pray coz nothing is impossible to God... He is our healer... :'(
I was shock that sninocerebellar disease is already occured...
i thought it is only in the 1 liter of tears,....
just pray and pray coz nothing is impossible to God... He is our healer... :'(
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4 the people out the that have spinocerebellar degeneration there is a japanese drama called 1 letre of tears if you have this disease or you dont this drama gives you hope and a meaning to live. i cryed more than 1 leters of tears,it is so uplifting please watch it !!!!T-T :'(
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they say.. spinocerebellar degeneration desease is a incurable..that's only i know..
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Hello people i have spinocellebar from past 10 years i was really disturbed all doc i met gave me no hope but finally i met a doc he suggested me to undergo stemcell surgery and i underwent this surggery costs more money, today after 8 months of surgery i can see good signs in me, but people if u have this problem please do physio therapy , be positive nothing is imposssible in world only thing it works a bit slow , ***this post is edited by moderator *** *** private e-mails not allowed*** Please read our Terms of Use
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