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My daughter-in-law has been diagnosed with POTS. However, her doctors seem to be at a loss as to how to proceed. We urgently need guidance. Thank you!

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National Dysautonomia Research Foundation (NDRF)

ndrf.org/ The NDRF has doctors list, discussion forum, and general information.

nymc.edu/fhp/centers/syncope/POTS.htm - Center For Hypotension

nymc.edu/fhp/centers/syncope/index.htm - POTS information page (Center for Hypotension)

"The Postural Tachycardia Syndrome (POTS): Pathophysiology, Diagnosis & Management" - excellent article

"Acetylcholinesterase inhibition improves tachycardia in postural tachycardia syndrome" - new treatment option

Dr. Julian Stewart's recent study is on the Web - Autonomic Nervous System Dysfunction in Adolescents with Postural Orthostatic Tachycardia Syndrome and Chronic Fatigue Syndrome Is Characterized by Attenuated Vagal Baroreflex and Potentiated Sympathetic Vasomotion.

content.nejm.org/cgi/content/abstract/343/14/1008 The Neuropathic Postural Tachycardia Syndrome

content.nejm.org/cgi/content/abstract/343/12/847 Autoantibodies to Ganglionic Acetylcholine Receptors in Autoimmune Autonomic Neuropathies

mc.vanderbilt.edu/gcrc/adc/oi.html Vanderbilt University on orthostatic intolerance

home.bluecrab.org/~health/sickids.html For Parents of Sick and Worn-Out Children

content.nejm.org/cgi/content/abstract/342/8/541 Norepinephrine-Transporter Deficiency

Here is a Mind Experiment for Doctors to help them appreciate the severe difficulties patients with chronic orthostatic intolerance syndromes face every day. Suggestions for reform of the medical profession are also detailed.
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In order to be diagnosed with POTS, a person is given what is called a head upright tilt table test (abbreviated HUT or TTT).If the person has POTS, the TTT will prove an excessive heart rate increase.
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Our immune system would have evolved to co-exist with intestinal parasites. As we are no longer part of evolution,we must therefore suffer the withdrawal symptoms.
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I have had many difficult years with POTS but am so grateful to have a wonderful cardiologist who has been a Godsend! His name is Dr. Grubb. He actually coined the term POTS and is widely respected. He is located in Toledo OH at UT Medical Center. I also went to a Dr at Cleveland Clinic who was amazing as well. Good Luck!
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I wanted to see Dr. Grubb because I have read some of his articles and he really seems to know his stuff, unfortunately he has a waiting list of over a year.  I am going to check out a treatment center in Dallas and has heard that Dr. Grubb has good things to say about it.  Would you know anything about it. 

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Hi there, I have heard the POTS treatment Center in Dallas has a really good program. I am taking my teen there this summer for treatment.
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