What is the cost of Tysabri infusion?

JimB186894 over a year ago

I have been Tysabri for 13 months now and have not had an attack or flare since starting tysabri. Prior to this I was on Avonex for 8 months and had several flares- switched to copaxone and was on it for about 2.5 years. While on capaxone flares were less often than while on Avonex, but every mri I had indicated new lesions. Flares while on copaxone occurred every 5-7 months. I had a mri the day prior to my first infusion with Tysabri and then another mri after 12 months of infusions.. Results of the last mri show no new lesions and some of the existing lesions have diminished in size.. Common side effects that I have are headaches for 3-4 days after the infusion and then a general weakening (fatique) the week prior to my next infusion..

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mark over a year ago

im on tysabri - its fine - but i had the CCSVI procedure done and the changes are amazing! ***this post is edited by moderator *** *** web addresses not allowed***

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Speedtrap over a year ago

I am on Tysabri and it works. Get your facts straight first. The people did not die because they took Tysabri rather most likely they had PML Diease.

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Sangitapuri07 over a year ago

Hi Lauren....

My sister has MS and she cant walk.....do you think tysabri ll help her. I showed her to best docs of AIIMS in INDIA, she use to work but she is very much dependent, Pls ask your doc if he can suggest her EDSS is 7 upto our assumption.... tc

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sarahgt61 over a year ago

I have been on tysabri for more than 3 years and have an IV port and have had NO side affect... no flu like issues at all. I love it and with the IV port it is fantastic... you don't get any shots!

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mmotaz19j over a year ago

people don't die from MS, they have died from taking tysabri

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Guest over a year ago

To those thinking that MS cannot be fatal, I'm sure you do know that it affects every aspect of your CNS. All it takes is one negative change to a vital part of your body (think of heart, lungs, etc), and you're dead. I haven't died yet lol, but I will take the very small chance of PML occurring, over a rampant uncontrolled disease. And I've already exhausted all the other therapy options since starting in 2007, so there's not much in the way of other choices.

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Guest over a year ago

i'm not sure where this cost for copaxone came from... mine is $4,800/30 days. so roughly $4,800 x 12 (months). amounting in $57,600/year. granted i DO NOT actually pay that much thanks to shared solutions, but i'm not sure how someone came up with only $16k.

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concerned over a year ago

I was on copaxone from September 2011 to Aug 2012 and the cost was $ 4300/30 days which equal $51,600 per year. I switched to Tysabri in October 2012 and each infusion has cost $15,900 at Piedmont in Atlanta

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Sue over a year ago

I was diagnosed with MS over 20 years ago and have been on Betaseron every since my doc has just got my latest mri and I have 4 more leasions than I had 7 years ago so he said it may be time to start Tysabri, as for myself im still not sure.

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melinsaff over a year ago

All I can say is if you haven't lived it don't talk! Same for me! I was relapsing with everything! I had a 16 mth relapse I would not come out of! Had 2 treatments of Mitoxantrone Chemotherapy, went back on Rebif and STILL relapsed again! Thank God for Tysabri put me back in place. Best drug there is for MS! A lot of people with MS can get away with just doing the shots, for those that need something stronger.....Tysabri is a true God send!!

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dreamangel over a year ago

the reason for the deaths on the early onset of taking tysabri was due to the patients not having a blood test for a virus. they had no blood test because as with any therapy the beginning of a new therapy they have to try. now they have blood tests which I have taken to see if you carry the virus before you consider tysabri. I have tried four different therapies in eleven years and nothing has slowed down the progression. therefore I have to keep trying something new and god knows I sure hope tysabri helps me. m.s. and therapies are different for each m.s. person. you can not compare any two remember that. with that said don't ask anyone because you and that person are not the same. it is good to research and read for yourself and never expect any therapy to work for you as it does for someone else.

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Yellerie over a year ago

Really??? I'm not selling anything. But I am devastated that I can no longer take it. Tysabri was the best MS medicine I have ever been on for 3 yrs while on it I didn't have a single issue. Unfortunately for me I developed the JC Virus putting me at high risk of PML so I had to come off of it & my MS has been horrible ever since I am now going on Tecfidera hopefully it will be effective.

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Guest over a year ago

I am in a study which, among other things, is trying to judge at what value of the JCvirus the test should be positive and what actual dangers there are to low + JC.

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gwen over a year ago

My Husband has MS ( 30yrs) He is on Tysabri and he did have good results for the first 3-6 months. After that time he leveled off and still has exerbations ... His recent MRI shows No new lesions thank God.. He has been on the drug almost 2yrs (Feb 2014). and his Dr. said he will continue After the two yr mark...increased chance of PML. It is a scary drug and we sure had a very hard time chooosing to do so, but the alternative was he was without eyesight for two years and basically lost freedom to drive.

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