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The 04/02/2013 Tysabri infusion was billed as $38.06 salt water, $376.27 hospital infusion costs and $5358.21 Tysabri. My IHC health insurance paid 40% lower rates for it...

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I beg to differ. My wife has been on it for several years now even after they took it off the shelf. She went back on it and found great results. Without this drug I don't know where we would be.
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My name is Wes and I'm 23. I've recently been diagnosed with MS myself. Thank you for putting those figures out there for us. This whole experience has been a seriously difficult transition into the next stage of my life. I have yet to begin treatment but Tysabri is the treatment that has been advised by my doctor. I haven't been able to find the statistics or numbers that you plainly listed above making this decision so much easier for me. You've been used as a blessing in my life today and i just thought I'd get on here and let you know.
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My daughter is enough proof for me.. and actually I know 5 people I personally consider proof.. you need to get your facts before you post people are dying from a drug that has given many people back their mobility
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Just an FYI - people DO die from MS! If it progresses rapidly, they can die within 6 months. Slow progressing MS can go on for 30-40 yrs.
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Wes - I found that the best results were obtained by Copaxone - I am currently on Tysabri due to eventual bad skin reaction to Copaxone.
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I'm kinda late here, but I have not had miraculous effects either from Tysbari

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As a nurse that formerly worked in an office that does infusions, I can assure you that Holly is not getting paid $336 and it is not just to poke you and shoot the breeze with you. She is responsible for knowing the side effects of this drug, monitoring you the patient for signs of problems and if severe enough knowing how to administer emergency aid if needed. She is probably being paid about $18/hour since it is a physisican's office so she does not come anywhere close to making $300 a day much less for one patient. The office is required to have staff properly trained to administer these drugs, properly trained to perform a venipuncture, properly trained to administer CPR or other emergency treatment if needed. The office must maintain drugs on sight that can be administered in case of emergency. I think $336 is a small price to pay for knowing that the staff responsible for giving me such a drug knows what they are doing. You do sound bitter. Studies have show that a positive attitude can make a huge difference in symptoms and disease progression. Betsy, RN
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good read/advice...ms for a bt 30 yrs, will try it!! thx!!
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wow, thx!! 51 yrs old had ms about 30 yrs

yuck!!

but Jesus is the One who helps me!!
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can you be on it forever?
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I have been using Tysabri as my disease modifing drug for 7+ years and have had no new leasions.  

It is safer to use Tysabri now.  There is a blood test that checks for the JC virus.   It is thought that if you are positive for the JC virus, you have a slightly higher risk of getting PML.  If you are negative than it is "safer".  Any doctor I have ever talked to has said that Tysabri is the best DMD to be on.  It really is a decision that you have to be comfortable with.   I am quite comfortable with my decision to take Tysabri (I have always tested negative for the JC Virus.

Good luck!

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Happy to hear you are going so well on this medication! You said you had difficulty seeing -- was your vision restored to normal on this medication?
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Thank you for your positive comment. I am about to start treatment and I'm scared to death so seeing this gives me hope I too may have my life back. Being a police officer and a mom, this my final step before chemotherapy. Praying I have that outcome and congrats on having your life back.
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You bloody id**t
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