i am looking for as many other people who have suffered from this syndrom as i have for the last 16 yrs/17 yrs ive had numerous ops and surgery freezing nerve ends drugs ect ect ending in losing most of my testes(ball) i have been reading that this is very rare but the more i delve the more t seems to be about although in america i also think the medical profession seem to find it unusual and not much advice is given about it i was done in the nhs in Britain and was one the biggest regrets of my life too add to that my wife died a yr laterwhich made it more like a stab i the back from life once again but if you have suffered i would like to know thank you