bertolotti syndrome

sam over a year ago

dear simon,thank u for sharing ur experience.i have a same kind of problem called bertolotti's syndrome.it wld be useful if u giv more information later.thanks

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Guest over a year ago

I'm not sure of your location, but I found a great dr that does miniimal invasive procedure to correct this. He seperates muscles vs cutting them. He removes the bone abnormality, does not do fusion. Fusion was the last option he would consider. The best part is the recovery time is 14 days!!! Yes I said 14 days. I had it done 3 days ago and I'm sleeping most of my days away, but the pain is miniimal. He expects no pain after I heal up and no other issues. My range of motion is remarkable.

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Guest over a year ago

I too was born and raised in AK, Wasilla actually. Anyhow I have just found a fantastic dr that does mini minimally invasive removal of the bone that's causing the pain and problems. I moved to California in 94 and never knew why I had the back pain I had. It's gotten progressively worse. I found a doctor that had seen this condition before and referred me to a specialist that does this corrective procedure. Like I said I had it done 3days ago and the pain is tolerable and the muscles were seperated and not cut, so I have some cramping. I can already feel a better range of motion in my hip. The doctor feels I should be pain free and ready to go back to my regular schedule after 14 days, yes 14 DAYS!!! I'm not sure if I can send you the link to his office, but I will give you my email and will send it to you from there. I can also help you with rapid transit in the area as well as possible transportation to the office.

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Guest over a year ago

Well I thought my email could get booted . I can't see where I can or can't list a link to a doctors office that specializes in this condition. His name is Dr Lawerance Dickenson his office is in Castro Valley CA, Pacific Brain and spine institute. I hope this has the opportunity to help someone who needs it. I had my surgery 3days ago and can see improvement already.

http://www.pacbrain.com/physicians.html

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sam over a year ago

hi have u done ur operation??n how was it??can u write it down for me please..

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Tallwoman1972 over a year ago

Yes, I had the operation the 4th of June. It went without any complications. Every person has a different outcome depending on how involved the bone/muscle/nerve is. I'm still having nerve issues, but having steady healing. It's just a matter of time.

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george53 over a year ago

i just found this site,i also have a transitional vertabra in lower back.i could hardly walk any more,been told by dr. nothing is wrong with my back? i live here in eastern PA. looking for specalist in bertottis syndrom/.thanks in advance.george

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Tallwoman1972 over a year ago

I know there is a specialist in Boston. Not sure of the name. That's strange that they tell you nothing is wronge. No one ever doughted my pain. I do have severe austeo arthritis in the faciet joints of the L5-L2. I found the specialist thru a pain clinic. Just start searching, and making calls. The hospital I went to has the most advanced neuro department. I have not seen what the charge was for the surgery, which was covered by my insurance.

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george53 over a year ago

hoping to find someone more local,pa. or nj..i have hmo,so i must stay in network.i am starting to have severe pain and loss of leg movement.was told it was my hips,so i had resurfacing,but no improvement.not alowed to return to work until lthis is repaired. george

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michelle wood over a year ago

i have been suffering with my back for the last 5 years and was diagnosed with bertolotti syndrome a year ago. in that time i've had 3 lots of steriod/cortisone injections. 1 lot in my facet joints which didnt give me any relief and theninto my sacro-illiac joint which gave me a weeks relief, ive just had another lot as a test as the next thing would be radio frequency to burn out the nerves. its been a week and so far i,'m not having any relief. i'm feeling so deflated and fed up and would love to find a longer term solution! does anyone know of a specialist in the UK?

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mmm245 over a year ago

Hey Just had re-section surgery and posted a new thread, I think I titled it Just had Surgery for Bertolotti's. Thought I'd let you know in case there is any info that you might find useful. Good luck

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courtneypatch over a year ago

I had a spinal fusion in 2009 for bertolittis. my body did not accept the cadaver bone so I'm going in again December 14. not to sure if it will make a difference in my pain level. anybody have it done a second time with good results?

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Guest over a year ago

I have it as well. After six long, painful years, I finally have some relief. I saw a number of physicians in an effort to get treatment. I tried injections, severing nerves, and experimental treatment with no avail. I was a lucky person when I found Dr. Manos at the Spine Institute of Idaho in Boise. Dr. Manos was the only physician willing and able to do a minimally invasive surgery. I am three months post-op, and I feel great. I never thought I would get my life back. I was in such bad shape that I could not take care of myself on my own anymore. If you are suffering so severely, it is worth traveling to see Dr. Manos. He has great credentials, amazing bed side manner, and well, what can I say? He has given me my life back.

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SaraM over a year ago

Wow, I live in the Greenville, SC area. I have Tarlov Cyst Disease. Yes, disease. So named by the Tarlov Cyst Disease Foundation. I plan to contact Dr. Hodge's office asap, after reading this post. I am in acute pain if I do almost any work at all.

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Enginer over a year ago

I was diagnosed with this condition in my teens (I am 70, now) and it has not been fun. Maintaining good posture, tilting the pelvis under, and good musculature has helped me lead a productive life. The most common problem is inability to lay flat on my back for extended periods. Two recent TKR surgeries have brought this last problem to crisis stage. I have to be very careful to sleep (on my side(s) ) with careful knee flexure to avoid damaging the healing joint.

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