I too have fertility,and have been in pain continually for over a year. I am on tons of pain meds and have had all sorts of injections with no relief. My quality of life has gone down the scrapper. I am a busy active person,so this has been awful. There really is no surgery to be had for this. I've done the research. Basically I believe I will be on pain meds the rest of my life. Goody goody humorous......
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My daughter (age 21) has also had a spinal fusion to correct this syndrome and it has not worked. She is in constant pain and has tried everything. No one seems to be able to help her. I am so sad for her future, and I regret that she had the surgery. Your post was over a year ago. If you are reading this, were you able to get any relief in the past year? Is there anyone that can point us in the right direction now? She doesn't want to go back to her surgeon because she feels he did not help her by performing the surgery. I don't know what to say to her to help this terrible situation she is in.
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Hej, min dotter skulle kunna ha samma problem och gått igenom samma saker. Nu försöker vi få någon läkare att titta på denna diagnos. Vi bor i Stockholm. Har du någon läkare som du kan rekommendera. De säger ju att det är hittapå-sjukdom, eftersom denna missbildning inte ska ge problem. Hon har haft fruktansvärd värk i 5 år nu och är 23 år. Tacksam för hjälp!
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Hi i have been reading all the posts .and a lot sound what i have . I am 48 years old and have been haveing lower back pain and muscle spazams since i was 30 . I have trouble sleeping on left hand side for years now .and wake up with pain in the night .then i have to turn over to try to sleep on right hand side .if i am lucky some times the pain does not follow to right hand side.over the years i take tabets for pain .i have seen lots of docters and had xrays but no one said what the problem was .untill i saw some one from the spinal side of hospital in london hospial were he looked at exray from 2008 and 2014 were he said it looks like you have bellotie sydrome i have just had a mri scan waiting results .i feel like after all these years i am geting some were now .how i cope a lot is trying to keep fit .going to gym swimming or running in park with dog were i do 3 miles .but some times i can be to tired if i had a bad night sleep .i would like to hear other peoples storys .sorry about spelling .
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I believe I have Bertolotti syndrome but it is so difficult to tell doctors r skeptical anyways my surgery is April 27 for a rescectioning of the transverse vertebrae so anyone wants to know the results or has questions to what happens feel free to ask .
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We just had surgery for Bertilotti's Syndrome performed on our 28 year old daughter at Johns Hopkins. I will update you as to her pain relief. Her surgeon was a Pediatric Scoliosis surgeon who had performed surgery on her when she was younger. There is a strong link between Bertolotti's Syndrome and Scoliosis in the literature and studies.
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I'd also like to know who did your daughters surgery, and how the surgery outcome was. Thanks in advance, Regards.
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Have you found any BS specialists. The new papers I have read had good outcomes when the false joint or transverse process has been resected (removed) by MIS surgery. I could have had this done back in 1982 and it would have saved me a total lose of my career and life. I'm now on opiates and have had a number of fusions due to the 1st fusion which caused bone to keep growing. Finally in 1991 we tried to fuse the SI joint, but that doesnt/didnt work. All I needed was for the false joint resulting from the transverse process to be resected and it would have been fine. This is a nightmare. I've dealt with CLL - leukemia cancer etc, and it was a walk in the park compared to the spinal ordeal, and it could have been avoided. I asked for the transverse process to be removed years ago .... it was suppose to be removed in 1991, but they did not do it, just tried to fuse the SI. Ummmm. Please let me know if you have any contacts regarding BS. They are up on BS in UK, etc, but only have found one Dr in Cleveland here in US. I assume it is to late for me since they broke my SI joint in order to fuse it. Enough ... please reply if you know of any Drs. Regards, Dan.
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Who did your operation? Please advise. and glad it has helped you. I need help bad. Thanks.
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I'd like to know about your resecting ... please post who do it, and where, and how you are doing.
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I have the same Bertolotti's syndrome as you do --- 6 Lumbar segments with 6th being lumbarized 1st sacral segment with a disc below L6, etc. I've dealt with the many fusions, etc, but its getting worse now since they tried to fuse my left SI, and ended up putting screwed in it. I can no longer force myself to walk --- this is bad if I cannot walk. It just causes to much swelling and hard pain at night when I am motionless. My issues are mechanical, and if I'm in a neutral position with no motion, the pain is manageable, but that is not doeable 24/7. I'm getting despondent and want to find a good Bertolotti's Dr and have the resection. I was suppose to have the resection when I had the left SI fusion attempted,1991. My Dr saw the pseudo articulation joint very clearly. I need a Bertolotti's Dr. I've been dealing with CLL since 2006, so my efforts to address my spine have been on hold. If anyone knows of a BS doctor, please advise. Please.
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