Can any long term side-affects appear after suffering from viral encephalitis?

I have had Herpes Simplex Encephalitis. I am experiencing ringing in my ears. It varies from a dull ring to a strong pulsating buzz. Could the ringing in my ears be due to the Encephalitis? Suggested treatment for this would be?

My son is now a teenager, he had viral encephalitis from the West Nile Virus in 2011 and everything that you wrote sounds so much like what he goes through still today. He was on life support the first couple of days, he has time periods where he seems to do okay now, and other times not so well. I don't know how to comfort him during the bad times. He had to miss school today because he had a really bad night.

OMG I can't tell you how relieved I am to have found all these people with some of the same problems I am dealing with. I had viral encephalitis when I was 17. I had to learn to walk and talk after
spending a month in hospital. I have had a very productive life but now at 54 I have noticed balance issues. I'm bad on stairs, have to feel my toe on the kick plate and have a rail to hang on. My memory is suffering too, I think it's beyond what should be normal for my age. Now after finding all these people I know I'm fortunate to have issues I can cope with .

Never replied online to anything before so here goes. I'm 52. Had encephalitis when 8. Was in hospital in London. Had lumber puncture so was confirmed. Recovered in ten days after coma. Now and for years have struggled with mood swings and my memory is now appalling. Not done anything about it yet.

When I was 7 years old I had light encephalitis and affected memory and speech function. I could look at something but couldn't remember what it called. My skill memory was ok. I would ask for a something people said I was saying something else, but I my mind I was saying words correctly. Doctors in the 70's belived that it was a insect bite causing this . After 6 months I regained my memory. One year later, 1974, I had it again but it affected my right motor skills. Over the years I regained 85% of my right side. I'm 54 years old now and have had a normal life with this handicap.

Lisa I'm on the same boat as you ! Only I was a baby 9-12 months old I was in a come for 3 weeks I'm 52 now I've always had a hard time focusing staying on one task I have pain all over my body they diagnosed me with fibromyalgia I was in a major car accident in 2009 so I've been chalking it up to oh its from the accident but after reading yalls I'm positive its from the meningitis/ encephalitis I was a very sick baby I had to learn how to walk & talk . I'm in pain every day I have neuropthy I used to be so athletic always working out rollerblading swimming weights now I'm blessed to actually get up out of bed ! I to am wondering if there's something that can help us I feel for everyone on here that's going through this .May God Cure us All

I have never herd my story told in another's life. 12 when I got it. No memory for about 6 months and almost no memory of any thing before. Now being 54. I barley have any memories of raising my own children. While I have been successful as a scientist specializing in Humic and Fulvic acids for 30 years. I struggle every single day to keep my mind on point and focused. If I don't right things down they are gone. I have not slept without drugs since the insomnia is relentless as are the bouts with depression and the ever present anxiety

have you had any eye problem such as, a taping feeling on forehead.

I had Viral Encephalitis in 1995 in the middle of trying to write up my Ph.D. Thesis. Needless to say that all went to hell and I didnt get it (long sordid story), half of it was total gibberish,. As its so long ago now I've come to terms with that, but I still have ongoing effects. Immediately afterwards (for the first few years) I suffered significant mood swings, bouts of anger and a total collapse of confidence, it was the only time in my life when I considered ending it all (thankfully for a nano-second only and that terrified me).

The biggest effect was that I 'lost' myself. I havent had memory problems particularly, but I lost my sense of self, I had no idea what it meant to be me if that makes sense to anyone? It took around three years or so for me to calm down enough to start trying to build whom I thought I was or really should be. It was almost like I lost my personality (my wife, who is still with me noticed particularly, I'm not the person she first me and fell in love with.. thankfully our love endured and it was the main thing that pulled me through).

I've managed to rebuild a lot of my confidence, but no where near my earlier levels, when I read what I'd written before I got ill, I dont recognise, its clearly written by someone MUCH smarter than I feel so I guess I may have lost some intellectual horsepower.

On occasion ( a few times a year) I get what the family and I call a sad fart, I've learned to recognise it (Im in the middle of one now, probably why I'm searching for encephalitis and actually replying to this thread in attempt to drag myself out of it) I get terribly depressed (which is contrary to my normal disposition), I feel hopeless, self-destructive and miserable irregardless of whether the rest of my life is going well or not. It generally only lasts a day or so (I think sleep helps my brain sort itself out) and I'm best left alone (unfortunately I'm at work right now and getting nothing done as I cant focus on anything difficult or think straight)

If there is a silver lining (which there is), the personality I have today is a totally constructed one. There is nothing of my old self except where I have incorporated memories of how I think I was and want to be. I spent years deciding on what my values were, what I believed or valued, who I fundamentally was and am. One of the double edged upsides of this is that I simply cannot lie to myself, I always know if I'm trying to justify something and always have to call myself or own any decision I make. Its not a bad thing I don't think and it helps with my confidence.

I hope the very best for the people on here, I know I'm lucky in many ways with the effects its had on me, but I am still feeling its effect over 20 years on, as do the people around me. I guess I've tried to build enough compassion into my new personality to feel for those my Encephalitis affected too, we all need to try and be consciously aware of the effect it has on others. When my personality was effectively wiped, it was terrifying, I felt capable of absolutely anything with no filters or limits on behavior or action and while I that's still the case at my core, being able to build those pieces of personality others take for granted to protect myself and others has been a 20 year gift that I think has made me a more honest, kinder and more empathic person because those aspects of personality were a conscious choice rather than the results of experience and environment.

Well I've rambled enough my very best wishes to everyone

I know this is an old post but if you have idiopathic neuropathy, I would check prescription medicine or possibly even over the counter drugs meant to replicate a prescription medicine as a possible cause. I developed within a year of starting a medicine and even once they believed me no doctors or specialists (6) could find a cause. 4 months after stopping the medicine my pain cleared immensely (nerves take a long time to heal). Fyi the epileptic medicine helps with the pain (thank goodness!), but doesn't stop the nerve damage :(

Thank You .. I am 68 .. Had mumps + encephalitis when I was 6 years old .. unconscious for several days .. Just remember blips of event .. Afterwards suffered from terrible headaches .. anger .. awful horrid realistic dreams ... difficulty focusing for any length of time. I dealt with serious emotional problems with unbelievable anxiety and became an alcoholic by the age of 18 .. Still deal with anxiety and insomnia. Insomnia developed from a fear of going to sleep. I equated going to sleep with dying. I remember telling my aunt when I first got out of the hospital that I really had to fight my brain while unconscious to keep from dying!!
This is the first time I have been able to express these things with others that have had similar problems. I have been very successful in life but have always known I'm not quite normal. My faith in Jesus Christ pulled me out of a dark hole of depression, anxiety, and torment. I thank God for every day of almost normality !!

Hello. I also contracted encephalitis when I was an infant, probably in late 1957 or early 1958. I have no first-hand memory of it. It left me with these nasty scars on my ankles where I was told that they fed me intravenously. I just turned 60 and have not experienced cognitive issue; in fact, folks marvel at my ability to memorize things and recall them. I've had a satisfying and rewarding career as a tax accountant, but have been retired for the past five years. My family was also devoutly Catholic, I was treated in a Catholic hospital where nuns put relics of St. Gerard (patron saint of mothers) and conferred his name on me as my middle name. Like you, my survival was considered miraculous. I have suffered from tinnitus since I was 14, and I seem to have an aversion to bright lights. I've often thought either or both of these conditions might be a side-effect left by the disease.

I had mononucleosis when I was 4 .my fever kept getting higher and resulted in seizures and encephalitus,the doctor told my mom i might die but i made it.i remember my early childhood years ,from age 1.5 and up with vivid detail except for this time period,only recall the stiff sore neck.I began to have embarrasing tremors my entire life.when i was 16 the mono came back but i was okay 2 months later,then again at 18,a month of rest and i was okay.also at 18 I was in the E.R. due to a concussion from a wreck and the doctor told my i have abnormally large brain
ventracles . I am now 43 ,2 years ago i started doing this weird thing where i try to say something but another word comes out.for example i will ask my boyfriend to hand me my socks but instead say " hand me my ashtray"???????i also have an arm or leg that starts jerking and shaking fast amd i cant stop but then it stops after a minute or two.iistwo.ii

my mom is 73.about a decade ago was very bad needed iv for months
she is very un alert many memory issues and moody
we were thrown out of Riu plaza due to her having night accidents offered to pay for new sheets and not very understanding. I have heard many people do well after bought but my mom's short term memory poor.We never found out her cause of encehalitus just mite have been from measles

this is the second time I have tried to comment on this post. I happy to see someone else is sharing their experience of encephalitis and the things they are going through. I had encephalitis when 7 years old with measles I didn't realize I am still so emotional about it so it is hard to write about my experiences. I think my thought jumble when I try to put it on paper. I can' type worth beans anyway and the stress make it worse. my biggest things after encephalitis is feeling inadequate never able to do anything good enough, and there is anxiety, fear, trust issues and negativity, impatience, and feeling rushed to do everything. I am not the person I used to be everything seemed harder for me school was not good but got better. I have been trying to find out if there were any encephalitis survivors for many years and only found three.. I am happy to have finally found all of you on the blog. I hope we can help each other. I too am concerned about after effects of encephalitis. I have many of the same issues as many of you. You are all correct that most DRs say Hmmmmm, We need to tell people about our experiences and problems so and if they will listen and believe us. I also trip over invisible things. We are not crazy were are struggling against the effects of disease. One Dr told me I still have the measles it has not left it is still in my blood causing inflammation. I had measles and encephalitis over 50 years ago. I also felt I was alone and misunderstood, I do have a very loving kind understanding husband, who supports me and stands up for me, sometimes he surprises me by defending me when I feel really down or stupid around others. We need to keep trying to push forward and also support each other, Hang in there, and hope for help. sorry about the scattered thoughts.