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Hi dear I also wish u all the best it takes a strong mum to understand her child's pain. I see my child in this state daily yes it breaks my heart it's so sad. God bless you and your child I will keep her in my prayers. Stay strong
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Hi Eva

I had this wen I was 32 , I was in a coma for 2 weeks and had to learn to walk again. I am now 46. I have peripheral neuropathy of my hands and feet , aches in my joints and rally odd sensations of tingling, numbness and burning that happens on my limbs. since the encephalitis I was diagnosed with type 2 diabetes even though I don't fit the profile , my eyesight as gone back wards and I often feel off balance. I really believe that even though it seems everything is fine on the outside the encephalitis has done damage on the inside.
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Yep I just recently found this site as I'm looking for answers because I also suffer from many of these issues but have never seemed professional help since I had seizures back in 2012 I started seeing myself slip away amd overcame a deep depression I have had dr tell me everything from add depression anxiety to even alcohol induced phycosis ...scares me the most is out burst I'm recently getting I feel like I'm pushing evey one around me away and that nobody will ever understand the thoughts racing threw my head on a daily basis if let this effect me threw out my life and recently am looking for answers and help it's such a reliefs to find this and feel I'm not alone please messege message back if you receive this

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I agree with you as I'm in the same situation with the 20 year recovery. When I visit my gp it's like they look at me & say you look fine & it's all just in the mind. All I'm asking for was a second opinion on how I'm copping after 20 yrs with no medications but stuck with the pain that only I can see. To prove a point since I joined a page with taking others experience on the virus actualy cleared part of trapped thoughts in my mind which disturbed my concentration within 20 years. The heavy feeling in arms legs shoulder & chest the dr says it's just wear & tear? I've been self diagnosed for no help was offered as gp knows not much at all. Psychology talking I think I need to somehow find someone to talk to professionally to give an answer to it all. As far as I know it's my left templobe that's had damage. Dr classes it as all in the past & time to move on. Help is needed but so far no help in 20 years.
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I am dealing with this as well. It has only been a year since I got it but have major depression. I you doing any better?
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Sorry to reply so late, but can you tell me more about the endocrine issues? I have a family member with at brain stem tumor who is having endocrine issues.
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I'm also a survivor I'm 30 years old now and had severe viral encephalitis at the age of 3 .im just now realizing how long term effects have impacted my life ...
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I have very simular questions im 27 after viral encephalitis
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Hi I had a mumps encephalitis as a 7 years old boy - was in intensive care for weeks on end. I remember it very clearly. I am now 50. I made a full recovery but I do also have a low pain threshold and also my immune system is also very poor - even though outwardly i look healthy and young for my age I always pick up colds and general ailments. I also suffered from migraines as a child.
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Hello i am 46 years old and suffered with encephalitis at the age of 7, i was in a coma for a while and suffered ever since, now i am still suffering with a side effect and no one know how to help me, just wondered if anyone was suffering the same problem and if they had any problems getting on with life, going to work etc. I suffer with Hemiplegic Migraine or that what they are calling it but i don't believe. I get a pain in my eye cant see flashing light and also go paralyzed down one side cant walk cant talk its horrible like i am having a stroke, but it goes away, i also suffer with anxiety, panic attacks and depression and after my attack i lose my memory cant think properly. if this was only a migraine how comes tablets dont help, and it don't take the side effect away i am really scared to get on a train or go anywhere. Every time i get it takes me back again and i cant go out feel soo scared i am going to get another one don't no when i am going to get it, but no when its coming on. its very frightening
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Sophie, I to had encephalites with (measles). The year was 1963, Spring. We lived in a small town named Clute, Texas. About 50 miles south of Houston,Tx. I was 8 yrs old, 2 weeks before school would be out for the summer. I was taken to the local hospital pronounced DOA. 1 Dr. said that I had 1 chance, Texas Children's Hospital in Houston, Texas. I was in a coma for 6 days and nights. Upon wakeing my memory was as plank as a piece of typing paper. I to couldn't walk, talk, and I had to be strapted down as well as you.I spent 84 days it that hospital, 54 nights in a Iron lung.(If you don't know what that is check it out on Google) There was constant physical therapy. I started out learning to talk , and walk. They would also strsp my down to a large comfortable mat, stand it vertical. This was to teach my heart to pump blood up and down, from head to toe. It took many, many years of rehabilitation, patients, and understanding and excepting what went wrong as well as why. There were 2 boys from our small area whom that summer cam down with encephlaities, we were both in the same ward. Years later, a few years after I met, and married the love of my life. I took her back to that hospital that I was in that summer of 1963. I was giving her a tour of the facility, it all came flooding back to me. A young nurse approached us and ask if she could help us? I told her that I had, gad encephlaities here in the summer of 1963, and was giving my wife a tour of the place. The nurse gasp, covering her mouth with her hand,and then exclaimed, so your 1 of the 2. I said yes. She escorted us to a specil room. A room in which held the original Iron Lung from 1963, along with a plack that stated something about the 2 boys who were brougt here and survived Encephlaities in the summer of 1963. It made my proud, but I started crying openly, remembering all of what we had to be put through to get to where we are now. I've been happily married to my wife for 41yrs, Dec 18, 2017. We have 1 wonderful daughter, a wonderful son-in-law, and 3 beautiful grandchildren.
Sadly, I do not remember anything before waking up in the Hospital. I didnt remember friends,relatives, not anyone. Along with that I didn't have any of the maternal loving feelings that you would expect a child would have for Mom & Dad, or any one else. When I said it was gone, it was gone, and i never got it back.
Trusting in our Lord Jesus Christ, and believing in him, as well as putting it all into his healing hands is simetimes the only thing we can do, and that takes Prayer and lots of it.

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Good evening, 1st I am not a Dr.but my wife in the past has had a lot of similar problems. My statments and information are souly based on our experiences. We have been married for 44yrs.
With that being said. Are you a lady, it doesn't matter,but one of the reasons that I ask is that my wife had all of the symptoms that you have described. Part of her head ache, blurred vision, tingling, nombness, was caused by harmons. I met her when she was 17, I was 19, and yes we're still together. There is, or was a Headache clinic in Houston,Texas, a Dr Matthews runs it. He is wourld renowned. Also there is a Dr in a small town in east Texas, Athens,Texas. Athens, is about an hour or so south of Tyler, Texas on I-35. His name is Dr.Job Mongare. He is a Nuroligest who studied, and mintored under Dr Mattews, in Houston.
I know that it is scary, we put up with it for many years. I'm not advising you ,if you are a lady to get a hysterectomy, but it dramitly helped my wife. She is 61yrs old and I'm 63.
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I, too, am an Encephalitis survivor. I was diagnosed in 1993 right after I turned 30 - Some birthday gift. I was misdiagnosed, and there was much delay before treating it correctly. Unfortunately, I have come to notice the last few years that I may be experiencing the longterm side-effects of this virus, such as poor concentration, depression, memory loss, autoimmune hypothyroidism, and uterine cancer. This deadly virus triggered a volcano in my body, and I've had to become my own advocate, especially since I am in the alternative health field, and most conventional MDs don't understand or know about alternative therapies that may be helpful for people like myself. It's so important to dig deep for answers and to not give up because it can become a frustrating journey when you are dealing the longterm effects from the Encephalitis experience.
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Hi! Were you able to get any relief or assistance? I am experiencing the identical symptoms.
Thanks for an update.
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I know what you are going through. My husband is 48 years old and got a tick bite last spring. He was diagnosed with encephalitis and almost died. Now he is having same residual affects, loss of balance and falling , sometimes 3 times a day. He has broken 3 ribs, his nose and almost his good leg.we are desperate. Unable to work, unable to pay bills, takes 2 years for long term disability in nj. I’m working full time and doing everything around house. Just afraid when I come home one day he will be dead. It’s really bad. Going to NYU Langone again in 2 weeks for more testing. They have him on Synemet for Parkinson’s. Showing some sign of small improvement. Also seeing dr. Sage at Robert Wood Johnson.
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