Hi all,

I just recently finally got diagnosed with Wilson’s disease, after spending 7 days at psychiatric ward and almost being diagnosed with epilepsy. I have severe neurological symptoms and mild epileptic attacks which almost led me to be misdiagnosed, but luckily my psychiatrist ordered a full blood panel and when it turned out all my liver enzymes pointed I have severe liver cirrhosis even though I’m 21 and never drank or used drugs, I was transferred to a different hospital and that’ when i got diagnosed with wilson’s disease.

Now I’m on liver transplant waiting list, and I have went through one round of chelation to get rid of copper, with more chelation to come. In the meantime, if there are any fellow Wilson’s sufferers, I’d love to hear how you’re dealing with the disease,

Tammy