About 7 months ago I began to get a chronic ache in my upper back (bra strap level) with associated problems catching my breath. I visited a doctor and was told it was a common problem that women have with upper back problems and to rest!. I then started experiencing some very strange symptoms which started with pressures in my head and a very odd feeling that something was not right and that I was going to pass out. I then began having problems going to sleep as every time I close my eyes, I get a rushing feeling (like shivers) that goes all the way through my body and into my head and the only way to stop it is to open my eyes. I have visited the doctors on endless occassions and they have carried out all standard blood tests which were all negative. On top of this, I often experience loud ringing in my ears and my blood pressure spikes up and down. I am now on atenalol but this does not seem to keep it stable. The other associated symptom is severe depression which is something I have never before suffered from. I have had a test for Phynochromcitoma (tumour on adrenalin glands) but this was negative. They have discovered an intolarance to Insulin and I am taking metformin for this.
It is now 7 months on and I go through a week or so feeling OK and thinking I am back to normal and then out of the blue I wake up in the morning and my brain feels like it has become curdled in the night! My doctor has now referred me to an Immunologist as I had an undiagnosed problem 5 years ago that left me with Reynaulds Disease.
Any help or advice would be much appreciated.
I recommend that you ask your doctor to do a CAT scan of your abdomen especially your kidneys and adrenal glands. A urine test or blood test may not be accurate. Hope this helped.
BUT, now I am just starting a resurgence of the mid back fullness (need bra extender when really full) & pains...and RUQ fullness with dull pain and some edema thru lower thorax when at its worst. Plus nocturia when at its worst. Everything waxes & wanes: sleeping in a recliner seems better than lieing flat, early AM feels really good until I get up and start moving, but being really active seems to help relieve it.
So is it some sort of vascular spasms due to ???? a cytokine, enzyme, hormone????. Or some insideous vascular back up due to vascular damage or other?
My best ideas.
it began three months ago.... he felt like all the blood in his body had rushed to his head within a second...his face was blood red and he said he felt it in his nose at first. We went to the ER to get his blood pressure checked and it was high... they checked for the adrenal tumors through a 24 urine test and a CAT scan... they also did loads of blood tests.... so everything came back looking "normal". His heart was racing. they gave him some anxiety meds... sent him home and told us to contact our cardiologist. He has had a slow heartbeat since he was 15 (at lest that is when it was detected during a routine sports physical) so now the racing heart beat seemed even more scary than it would be for the normal person.
We went to the ER around 8 times before they decided to keep him.
They kept him for a week and then we were transferred to another hospital where his cardiologist worked and he was told he needed a pacemaker and that he had sick sinus arrhythmia.... He was put on two types of blood pressure meds... Ateninol and Lisinopril (I think I am spelling those wrong).... neither one have been working like they should because he has still been having the same problems...blood rushing to his head, red faced, weight loss, lightheadedness, face heart rate, waking up in the middle of the night feeling adrenalin jolt through his body, chest pain, high blood pressure and anxiety attacks (which happen AFTER he starts feeling weird from the other stuff!)
they RX'd Klonopin and upped his blood pressure meds.... still not working!!! We are so weary from this... it is ruining our lives, he can't work and has missed numerous days!!! WE NEED HELP QUICK!!!
im not stress and for once in my life things are ok, i even went to my optistion to see if it was my eyes but its the same no change my gp has run untold blood test which all came back fine.
because i have one or two other problems going on i feel like i cant tell my gp about this one as he may feel i am just moaning but this is worry me very much because now i feel it is effecting my behaviour i'm becoming clumsy and forgetful even sometime i sit still and feel like i'm swaying and feel all dizzy.
please can some one help i dont know what to do. :-(
Dizziness ( all the time)
vision going bad
Loads more. and i want a cat scan or something that will make me feel better. i know they will find something, if not i will accept that i am losing my mind and have a problem. what can i ask for? i cant walk in and say i want a cat scan id ont now wat to do someone help me please.
I have had mid back pain (bra strap level) for about 5 years, headaches, ringing in the ears etc and generally feeling rubbish....I have been to the doctors (about 7 times) and they all look at my like I am mad! :-D I am now attempting to get a CT scan which ill cost me £475 but i guess that's about £100 quid a year for each year I had felt like this! money well spent!
Just to let people know if they are over 40 they can get a ct scan without a refferral- altho it's still £475 for the full boona!!
I am pretty sure it has some adrenal connection- i have been on meds which i think have affected my adrenals and i think they were burnt out before i started the meds...not sure what the ct scan will show if i get it or where i can go from there- good luck on your searches- keep us posted!
1) HAVE YOU EVER TAKEN LARGE AMOUNTS OF ACETAMINOPHEN (PARACETAMOL)?
2) DO YOU FEEL DIZZY AT TIMES?
3) HAVE YOU EVER HAD A BENZODIAZEPINE (XANAX, KLONOPIN, VALIUM, ATIVAN)?
4) DO YOU HAVE ANY PSYCHIATRIC SYMPTOMS (DEPRESSION, ANXIETY, ETC.)
**The more answers I have, the better my chances are of figuring this out**
In the meantime, use broad treatments for both possibilities.
-Omega-3 Fatty Acids (BE CAREFUL, only take these if you do not have pronounced cardiovascular symptoms)
(Potassium can literally save your life but DO NOT take too much! (500mg max))
Find a GOOD internal medicine practitioner, who specializes in Lyme Disease. They will test you to see if you have evidence (antibodies) of ever being infected. If you don't start antibiotics, you won't get better. Make sure to ask for the Western Blot test for Lyme, and for tests for other tick-borne infections (Babesia, Ehrlichia, Bartonella).
Good luck to all of you. God Bless.