I am sorry that you are going through this also! I know it is hard to study around these episodes. I research for my daughter on a daily basis trying to find her help. I recognize the fear and depression part. When it hits her the fear is overwhelming. Lately I am trying to record the episodes for evidence and I often have to reach out and take her hand to comfort her. She often needs me to hug her until the episode has passed, which it does within 1 minute to 1.50 minutes. Wrapping yourself in a blanket is probably the same need to that extreme and sudden fear. Have you considered that this could be temporal lobe seizures? They can be very mild and more of a feeling or experience without loss of consciousness. The fear response, mood, etc is located there and can also trigger deja vu feelings and past memories.
Do you experience brain fog after?
I believe my daughter may be dealing with catamenial seizures also.
Do you experience brain fog after?
I believe my daughter may be dealing with catamenial seizures also.
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These started for me in 1990. I was walking across campus and a thought of "Syracuse Basketball" came to mind. It was a random thought that then cascaded into a strange yet dare I say a pleasurable moment that then became unpleasant. A slight nausea, light headedness and a intense desire to understand the thoughts or images I was getting. At a point, I just wanted it stop. Strangely enough, and I know this sounds weird but, part of me wants to experience it again until it actually happens. This whole things lasts for under two minutes and then can return unexpectedly. So its intriguing then uncomfortable.
Went to the ER and the next thing I know, I was being asked questions by another person that I am sure was a psychological evaluation. I am sure I was tested for drugs as well. It is so hard to explain to people the sensation. Seems that we all are having the same issue.
Has someone actually been diagnosed with anything specific?
Went to the ER and the next thing I know, I was being asked questions by another person that I am sure was a psychological evaluation. I am sure I was tested for drugs as well. It is so hard to explain to people the sensation. Seems that we all are having the same issue.
Has someone actually been diagnosed with anything specific?
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6mo update: I have been on keppra for 6 months now without any episodes at all. I felt a few triggers when I first started the medicine but no full episodes. I will go back to see my nuero in 3 months.
However. . . My memory is still sh*t. I dont know if i would call it short term or long term memory loss. Its more like I don't remember things that are irrelevant or things that arent super important. This could be a recipe I made last month or something I make throughout the year (such as pies) which I usually remember my mothers recipe off the top of my head. Also if someone asks me about a minor detail from yesterday or the day before, then I usually wont remember. Also I still have word finding difficulty. I still haven't taken any supplements to help w memory (such as B12 or fish oil) but I know I should research it & start asap if it will help
Anyone have any suggestions about how to improve memory?
However. . . My memory is still sh*t. I dont know if i would call it short term or long term memory loss. Its more like I don't remember things that are irrelevant or things that arent super important. This could be a recipe I made last month or something I make throughout the year (such as pies) which I usually remember my mothers recipe off the top of my head. Also if someone asks me about a minor detail from yesterday or the day before, then I usually wont remember. Also I still have word finding difficulty. I still haven't taken any supplements to help w memory (such as B12 or fish oil) but I know I should research it & start asap if it will help
Anyone have any suggestions about how to improve memory?
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Yes, Yes and yes!!!! I didn't even know what to search for since I was 100% sure it was just me and I am losing my mind!! The same things you mentioned happen to me, out of nowhere for no reason. Maybe I will see something or hear something that will trigger a flashback type image in my head but it isn't anything I can aver remember.....Then I get a flash of heat through my body and get tingly and light headed. I want to go to my doctor but don't want to sound crazy! It IS good to know that other people experience it too....I wonder what it is????
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The episodes for my daughter are so complex at times. Temporal lope seizures do not explain everything but many symptoms cross match for her, which can be simple partial seizures without loss of awareness. I so understand your fear of telling your doctor. My daughter and I have gone rounds with so many doctors trying to make them believe in her suffering. You are not alone in this! Stay strong!
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Thank you so much for this!!! I'm calling my doctor today. I looked this up and it appears to be the exact symptoms I have!!! At least I can go in with a suggestion, so I don't sound crazy!!!!❤❤❤
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I am a 51 year old female, registered nurse and have not gone through menopause yet. I had this same thing happen to me 6 months ago late one night. I had gotten out of bed to go to the restroom and when I returned to bed I started having a very vague dajavu feeling or thought that was curiously difficult to pin point in my mind. As I struggled to remember the memory I became very lightheaded followed by intense anxiety and rapid heart rate. I felt just like I was about to faint then felt a flash of heat down my torso into my legs and then feet. The whole time this was happening I had an intense fear that could only be helped by my husband or son holding my hand or standing near. This happened 3 or 4 times in the matter of 30 minutes so I decided to go to the emergency room. I felt so foolish explaining the symptoms and the ER doctor kind of brushed it off and diagnosed me with hot flashes. In the ER it happened several times. My heart would race and my BP would go up but not high. I left the ER and never have had another episode. It’s been 6 months and I am still trying to find out what happened to me. I’m so afraid it will happen again. By the way, my CT scan and EKG were normal. Can anybody tell me anything about this?
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If it is something like a temporal lope seizure just remember that even EEGs MRIs etc can come back normal. A good neurologist, and good is sometimes hard to find, can help through just listening to the symptoms instead of relying on just test results. Catamenial epilepsy is also a possibility if you are at the age of a hormone shift, puberty or menopause. There is a neuroendocrynologist in NY that specializes in catamenial issues. There are very few that do this apparently. His name is Alan Jacobs. U.C. Irvine also does some work with possible hormonal epilepsy in women and Cedars-Siani. Just something to consider. I have come across these while trying to find help for my daughter. Deja vu is absolutely considered a micro seizure and also a migraine symptom.
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Wow I'm in shock how many people suffer from these "episodes " that are debilitating to me. I've had them many times over the past couple years. I even went to the ER bc after the deja vu I experienced dizziness, nausea and uncontrollably crying. I felt stupid trying to explain what had happened and was discharged with anxiety/panic attack. Sometimes I can feel it coming on and I can redirect myself avoiding the "episode." I'm not an anxious person and I don't feel stressed. I have never done any drugs and I drink once in a blue moon. Anyone that saw a neurologist, did it help?
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The uncontrollable crying or any emotion like sadness or anger can be a symptom of the focal seizures. The nausea is also a symptom of seizures. Do you have a rising feeling in your stomach when the episodes start? My daughter describes it as a flip flop sort of feeling.
My daughter has sudden fear that happens during the episode but ends quickly. I have read that some people have an emotional rush at the end that might be crying or sadness or irritation. It is extremely unfortunate that the go to diagnosis for many doctors, even neurologist, is to claim the patient has anxiety attacks. The episodes in themselves can cause anxiety because we soon find out how hard it is to get the help we need and are left alone to deal with the effects. A neurpsychologist even told my daughter to seek counseling to learn ways to deal with the unnamed episodes because she had no idea how to treat them.
My daughter can sometimes help to avoid the episode by doing something very dull or rhythmic that requires no thinking. , For her it is flipping through pinterest just looking at photos. She does this whenever she feels the episodes coming on from over-stimulation. Sometimes this works, sometimes not.
I think we have to all commit to looking for the right neurologist. Just because they have a degree in neurology does not mean that they have what is need to take care of a certain set of episodes. If they try to label you as an "anxiety patient" and you feel that you are not, do not let them convince you of it too. You know better then them what it is like to live inside your body. The neuropsycologist taught my daughter a great lesson. Go to two doctors. If one is better then the other fire the other. If the second one does not please you or treat you the way you need, fire them too. You are their customer, not their subject to obey them. I think this is a great lesson for all of us trying to navigate an unknown disorder.
My daughter has sudden fear that happens during the episode but ends quickly. I have read that some people have an emotional rush at the end that might be crying or sadness or irritation. It is extremely unfortunate that the go to diagnosis for many doctors, even neurologist, is to claim the patient has anxiety attacks. The episodes in themselves can cause anxiety because we soon find out how hard it is to get the help we need and are left alone to deal with the effects. A neurpsychologist even told my daughter to seek counseling to learn ways to deal with the unnamed episodes because she had no idea how to treat them.
My daughter can sometimes help to avoid the episode by doing something very dull or rhythmic that requires no thinking. , For her it is flipping through pinterest just looking at photos. She does this whenever she feels the episodes coming on from over-stimulation. Sometimes this works, sometimes not.
I think we have to all commit to looking for the right neurologist. Just because they have a degree in neurology does not mean that they have what is need to take care of a certain set of episodes. If they try to label you as an "anxiety patient" and you feel that you are not, do not let them convince you of it too. You know better then them what it is like to live inside your body. The neuropsycologist taught my daughter a great lesson. Go to two doctors. If one is better then the other fire the other. If the second one does not please you or treat you the way you need, fire them too. You are their customer, not their subject to obey them. I think this is a great lesson for all of us trying to navigate an unknown disorder.
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Hi, I just randomly decided to google these symptoms as I use to have "attacks" like these since I was quite young. I could never understand what was going on and sounded crazy if I tried to tell anyone including neurologists. Anyhow I havent had any of these attacks for years now and truly believe it is because I am taking a cardio disprin on a daily basis. It worked for me and might work for your daughter....all the best.
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I just had this experience for the first time today. I'm a 44-year old male, and after returning to my office after a lunchtime workout, experienced intense deja-vu 3 times within a 1-hour period. The last episode I was sitting in a meeting eating lunch, and felt as if it was a very familiar dream I may have had this morning. I was intensely trying to recall the details of the dream and suddenly felt nauseous and that I might pass out. I don't often experience deja-vu (once a year), so multiple times in one afternoon was odd, but the dreamlike feeling and nausea was even more unnerving.
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It sound like some type of seizure. Deja Vu is a symptom of seizure for sure. Did you ever get an answer?
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