Looking for answers...

hey morsal

your intro intregued me..... let me know more and well see what we can do/come up with.....

if you want to know more about me i was just interviewed by the forum a couple weeks ago..... 8)

Hi, Bio major
Thanks for your interest. I posted another topic on here with the details of my boyfriends symptoms and a long list of tests we have had done. Several of the tests are gastro related and although the tests have come back irregular such as a test that tells us my boyfriends digestive system does not work properly, and there is a endoscopic surgery that could be done to help, but unfortunately the doctor says my boyfriend swallows air and the surgery cannot be done. There is only one medication that can help and it is not sold in the U.S. we were in the Phillippines about a year ago and he had gone into the hospital there and they had prescribed him this same medication and he couldn't take it because one of the rare side effects is to make you feel mentally dull and he said it made him feel like he should be in a insane asylum. We tried the medication at a very low dose since we still had a full box of it and the first day was ok and the second day was horrible and he felt the same way as he had before. We went driving around for a very long time, because thats what he likes to do when he feels bad so were close to a hospital incase something really bad happens. The other posting is titled: Years of doctor visits & Tests and no diagnosis Let me know what you think. Thanks

Quick question do you know anything about the endocrine system and some diseases that may be the cause of all this? If you do I'd really like to learn more. You can IM me at Thanks



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Hi morsal and welcome to the SteadyHealth.
I hope that you will be able to find good info here and also a lot of help from our community.

Regards

Thanks for the warm welcome Dark_Red. I hope to make some friends here who can relate to us and maybe we can all help each other. I am always online if you want to chat B4N :-)

hey morsal,


i do know a little about the endocrin system what were you hoping to learn??

i read briefly over your boyfriends condition but havent had time to really think about it as im pretty busy with school and exams coming up in a couple weeks.

how old is your boyfriend, does he have any allergies, has this sort of thing happened to anyone ealse in his family (wondering if it might be genetic) finally before all this started was he outside of the country visiting other countries or tropical regions?

thanks

Hey Biomajor I sent you a pretty long reply and it didn't get posted unfortunately, so I will rewrite it.

First, answers to your questions: He is not allergic to any meds, but he is very sensitive to them. He takes a 10 mg of propranolol beta blocker which doctors say is too little, but he feels like it is enough he used to take 60mg 2x per day, but when we were in the Phillippines hospital they said his heart rate was way too low and that is when we lowered the dose about a year ago.

He is 30 yrs old, eats very healthy and works out regularly when he doesn't feel horrible, he doesn't drink or smoke

No one in his family has these problems

His first heart episode happened when he was 15 yrs old immediately after he tried marijuana for the first time. He was rushed to the hospital and he felt like he was having a heart attack.

He drank alcohol regularly for about 8 years until he had a sip of alcohol one day when he was 25yrs old and was again rushed to the hospital he was not drunk, but felt like he was poisoned and he went into complete shock and was convulsing. He tried another day to have a single sip of alcohol and the same thing happened again.

He had already been to Canada, Europe, and the bahamas by the time he was 25 yrs old and he had not traveled before his heart episode.

He says when he had the alcohol episode he didn't do anything differently that day it just happened out of nowhere.

I have been looking into parts of the endocrine system that effect most of your major organs, since he has issues with digestion, heart and brain i'm thinking something that can directly effect all those organs at once if it is not working properly.

I have come up with two diseases that are kind of liked one is apart of the endocrine system which is hyperparathyroidism and the other is not apart of the endocrine system and it is called magnesium deficiency.

I say these are linked because magnesium deficiency is low magnesium and low potassium in the body and when you have this there is a higher amount of calcium in the body which makes your organs such as your kidneys more bonelike and alcohol actually is one of the factors that can make this condition worse. Hyperparathyroidism is the over production of calcium in your body and as I said before too much calcium and not enough magnesium and potassium turns your organs in to bone like organs and they stop working property.

Magnesium deficiency symptoms: fatigue, low energy, nervousness, insomnia, unusual change in heart rate, headaches, diabetyes, high blood pressure, asthma, anxiety etc. M<y boyfriend has almost all of these symptoms.

Let me know what you think. Thanks

hey there morsal,

I think you may be on to something with the endocrin system.... i'm sorry icant help much right now as finals for scool are next week and i have a ton of thing due for my classes this week but after finals are over i'll have more time.

Thanks it's greatly appreciated. We did find a endocrine specialist here in AZ and we plan on calling to set a appointment with him tomorrow after we get all our old medical records from the mayo clinic. I'll keep you updated though on any improvements. Thanks

thanks and bets of luck to the both of you 8)

hi to all..
I hope that you will be able to find good info here and also a lot of help from our community.


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hey morsalm

sorry it's been a while but I was finishing up school and it just got really crazy and i didnt have time for anything. i'm just checking in to see if you have found anything else out which might help explain why your bf has been so sick?

thanks 8)

No, but we went to a endocrinologist and they took alot of blood. We just need to wait and see if they find anythingBlood result should be back in 2 more weeks. We also sent some old xrays to chiari institute in new york. It's the only Chiari hospital in the U.S. It's very rare, but it would explain some of the symptoms. Even if they don't see signs of chiari, we are going to set a appointment to do a full workup with a neurologist. The doctors in NY are going to look at his Xrays today and get back to us. I'll keep you updated thanks for remembering me.

No problem sounds like you guys are really working at it. keep up the good work and i'll await some news 8)