Hi I started to have muscle pain and weakness in my left arm when using or after using arm , or whenever I tried to lift my to shoulder hight , this problem started at the age of 22yrs. I am now 46 and I have the same problem with both arms , both legs and sometimes if I am trying to hold a conversation my throat gets very tired and my speach becomes slurred and sometimes I just cannot say some words while speaking it is somewhat like a stutter ) my doctor rang me once and thought I was drunk as other people have , I have also done this while speaking to my doctor or visiting hospital so people have experienced it I cannot eat a meal because eating causes throat muscle pain and weakness and sometimes food gets stuck I only snack now it is less painfull ,I can only walk a short distance before having to stop due to the pain and muscle weakness, the more I walk /stand the worse the symptoms get ,but rest helps a lot, there are days when I can be sitting talking to family or friends when I can suddenly fall asleep some days I get out of bed sit in a armchair and keep falling off to sleep only to wake for a couple of mins then back off to sleep without warning ( I call this my sleep prison ) because I have no power over it and the only way to control it is to stand on my feet and not sit , but due to the pain and weakness I cannot stand for long before feel ill and feeling sick. Last week when I got out of bed we had some workmen doing repairs but my wife had to go to put our grandson into school ( the school is about 2 mins away) she said will I stay put in the sitting room while they finish repairing the fire ' and I said yes i will be fine and then she left...anyway the next thing I remember is the wife waking me up the workmen had finished the job and left but I had fell asleep, like I say I get no warning ,I have to be locked in when she goes out plus there is some new problems that have appeared I have started to sleep walk ( I fell a couple of months ago while sleepwalking and fell and cut my cheek I have the scar still ) The most worrying thing is while sleepwalking I can open locked doors so the keys get taken out of the doors ( I was woke by my wife last week outside my house looking for the F B I ...I had dreamt they wanted to come in to look for evidence , I know this because that is what my wife said I had told her this when she asked what I was doing outside . I have Osteoparosis and she is a light sleeper so when I do sleepwalk she has to watch me in case I try to walk downstairs.
I have seen a Neurologist /Dr ?? about it and I was tested for M S , but after performing other tests a Tensilon Test ( which almost instantly improved my symptoms ) and blood tests , I was diagnosed the next day as having Myasthinia Gravis and started on medication , after taking the medication for 4 days I was sent for the muscle electrode test ( which tested negative ) my blood tests results were boarderline possitive . however 1 day I had cause to complain about a male nurse and within 2 hours I was aproached by a hospital doctor who stopped my medication and said the test results had tested "Falsly possitive " and ever since then I have been treat badly the Neurologist now says it is Fibromyalgia .I was however sent to see a specialist but he has told me I do not have Fibromyalgia , and that tests need to be done. I have also developed a problem some time trying keep my left eye from shuttingSome days I wake up contemplating ending it all