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Hello! I am a person who has a question. This is probably a good place to do so. I want to ask something about neuro behcet's disorder. In this case would like to ask someone what is recommended treatment for such disorder? I really don’t know anyone right now. If you know I would like to share that opinion with you. Thanks for your respond.

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Hi! As I see you need information. I will try to answer to your question with my experience. You want to know something about neuro behcet's treatment. Infliximab treatment is one of the very efficient. I know that is practical for sore orogenital ulceration in Behcet's disorder. Form my sense that is one but maybe is not the best.
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Hi,

I've had Behcet's for 30+ years, and have been writing/researching about it since 1996.

Neuro-Behcet's is hard to treat, because many of the drugs that are used for other BD symptoms don't work well on the neurological problems. Here is a 2009 article that you might want to share with your doctor(s) about managing and treating neuro-BD:
https://docs.google.com/fileview?id=0ByK8sf4DJhvjY2U5YThhOTYtNGZkZS00ZGIxLWE5ZDgtY2E5M2U3ZDhkNWE3&hl=en&authkey=CJbpwZQH

Some sites that might provide extra info for you include:

American Behcet's Disease Association
http://www.behcets.com

Behcet's Syndrome Society (U.K.)
http://www.behcets.org.uk

A link to the Discovery Health show about my 17-year search for a Behcet's diagnosis
http://www.behcetsdisease.com/videos.html

All the best,
Joanne Zeis
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