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Hope this is of some help to whomever reads this post. Without the fentanyl at first, my wife did not want to live. However, the nausea that came later caused the same worries. Now hopefully we can do away with most of her side affects.
God Bless all of you who are in pain. As a caregiver for my wife, I know how tough it is for a spouse. However, this is when our spouse's need even more help and through God's grace we should supply all we can. Remember the shoe could be on the other foot one day.
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I'm going to try and find a dr who can give my something to help with the w/d symptoms so it's not pure hell to get off them. I wish I'd never, ever started in the 1st place and saw a show on HBO about opiates that said that synthetic drugs are so much harder to get off of then the natural or partial synthetic. Wish me luck and good luck to everyone else who's trying to get off this drug :)
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I'm new here, first post, but have read all the messages and have something to add. I'm trying to withdraw from the Fentanyl patch too. I'm at 12mcg's now and having no problems. I have been as high as 50mcg's for 10 years just recently beginning withdrawal. The reason being that the VA will not rx the Fentanyl patches and they are my sole source for medical care beginning this year. I HAVE to get off of them. What I will do about the pain is not made clear to me yet. The VA is that way. I hope none of you are at the mercy of a gov't Dr!
The reason I am writing is to say that I have read a message or two about cutting the patches Mylan being the ones to cut BUT I talked with my pharmacist and he says "No" very emphatically. He says he's heard of it but when you cut the Mylan brand you destroy the matrix of the patch and can kill yourself doing that. He said if you have read or heard any reports from Lawyers about people dying on the patch that's what they are talking about. So, whatever you do don't take the chance. Leave the patch intact. He did say you can fold it however and wear it to only get half the amount. Please don't take chances with your life.
That's all I needed to say. Good luck and warm thoughts to all of you trying to rid yourself of this drug. For some it is a life saver for others a very large burden.
Liz
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I just feel like dieing :$
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Least theres one plus for me,It'll take it up to 8 times a day....
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If you're fortunate to have the gel-less patches you can do for yourself what your dr's won't but even stepping down you can still have significant withdrawal symptoms. If you are diligent about know everything about your medication as I am, and I mean ALL of it, (wikipedia, PDR"s, google) you might be surprised to know what you have in your very medicine cabinet that can help you. (i.e. certain bp medications can help with withdrawal) I however didn't have any of that. :-(
I'm a little concerned because as I've mentioned, it's been almost a full week without any pain med what so ever, and my tolerance is surely down, so throwing on a full 150mcg might be too much.
Also, for some of you that have several pain meds as do I for BTP, try google-ing a opiod equalinegesic calculator, and you can calculate how much of one opiod it takes to roughly be similiar to another. Just remember the only CURE for opiate withdrawal is an opiate, but as soon as you do, it basically starts over the process. As I'm sure alot of you know, the medication binds to receptors in our brain (I imagine it like a ping pong ball on the end of a vacuum cleaner hose) as it prevents and blocks dopamine from being sucked up, and as soon as it wears away, (the ping pong ball) the hose begins to suck up all good feeling and regulating chemicals in our brain. Few other substances precipitate physical dependence as do Opiates, but even their mechanisms aren't quite as complex. (Benzos and Alcohol) I believe cause physical symptoms. But Sorry, I digress...I taught for a couple years before becoming disabled.
Good luck to you all, hope this will help someone.
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hello,
I have been on 100mcg durogesic patch for 6mths now, when i first changed from oxycontins to the patch i suffered withdrawals, let me explain! the doc gave me 50mcg patch which was not strong enough to be the equivilent to my dose of oxy's. I suffered for 12 days before i could no longer handle the withdrawals any more. Now i want to stop taking the patches as i am having side effects anyway still. now I am not looking forward to the withdrawals again but I am determind to get through it even though I have been told it will last for MONTHS... I am currently getting KETAMINE infusions to help with pain receptors in brain to reduce pain levels - so far so good! My withdrawal experience was bad...sweats, chills, convoltions, pulpitations, chest pain, nausia, vomiting bile, diarrea,weight loss due to the fact that food disgusted me, the smell, taste, I could not eat for the whole 12days. I lives off hydrolite iceblocks and sipped water. I would take baths up to 6 times a day and i would lay in bed and cry just waiting to die! i could not sleep and time felt like it stood still. Mentally I was a mess! I was only on 50mcg patch so it will be interesting to see how I go with the reduction from 100mcg back to the 50mcg and so on! My pain level is alot lower thanks to the ketamine, stretches and exercises learnt from a physio and relaxation techniques taught by my shrink, positive thinking and a never say I can't do it attitude has and will get me through this. I have nerve damage to my thorasic spine for 3 yrs now. I have lost my kids, my job, my dignity, my friends, my independence, and a big part of my personality and I refuse to lose any more!! I am claiming back my life piece by piece... Yes I am depressed, frustrated, lost and lonely but reading these blogs gives me strength in knowing I am not alone, I am not the only one out there fighting to get their life back. GOOD LUCK TO ALL OUT THERE WHO ARE DITCHING THE PATCHES.
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god bless all who are in my shoes...Kat
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