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Thank you for this information !!!!
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Your story is so similar to mine - thank U for sharing !! :)
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Thank u for info on med to relax muscle !!!
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Are you still Happy with your results. I was just diagnosed with bertolotti's syndrome. I don't know which direction to go in.
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Hi, my 9yrs daughter was diagnosed with Bertolotti's Syndrome few months ago and the last 1 and half is being a complete nightmare. Even doctors don't understand sometimes what causes this, special in someone so young. She have done hydrotherapy,Physiotherapy,she is taking Gabapentin. With the cold weather the pain is getting worse again.
I'm 33 yrs and I have a similar problem on my back and my dad has 62 yrs and and is the same situation.
Can someone help me to know cases of children diagnose with Bertolotti's Syndrome.
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I know this is a very old post, and I'm not sure that you still receive notifications.

Just in case you see this, I am curious, what did Dr. Sponseller do for your daughter? Another fusion?

How is her pain all these years later?

We have been to see numerous surgeons over the last year in our attempt to help our daughter. She's 17 and has been in pain for 4 years. We've seen Dr. Sponseller twice (once a year ago and again yesterday). She's tried PT and injections and they don't help, so I think we're going to try a L5-S1 fusion on both sides.

Her transverse process is so large none of the surgeons we've met with want to risk resecting it.

If anyone else has any recommendations for a surgeon in the DC/Baltimore/Richmond area who has experience treating Bertolotti's, I would love a name!
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Im sorry to hear that! Why did you have to use a cadaver bone?
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I am 29 years old and have had Bertlotti’s for 1 year now. I am in constant pain and it only continues to get worse. How long ago was your surgery? Im skeptical of surgery bc I hear often times the surgery is only a temporary fix as patients get worse in a few years.
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I am 29 years old and have had Bertlotti’s for 1 year now. I am in constant pain while sitting, standing, walking, any activity and it only continues to get worse. How long ago was your surgery? Im skeptical of surgery bc I hear often times the surgery is only a temporary fix as patients get worse in a few years. I am desperate to find a solution.
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Dan — Im sorry to hear that. Did you get it removed?
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To Simon E64705. Do you know the names of the treatment. People? I’d like to talk with them
Eric
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Hi Guest
Just wondered if you are still available - I'm desperate to get back to exercise but am very confused about what I should and shouldnt do - would love to find out more if I may
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I have Bertolotti's Syndrome. I currently have a neurosurgeon that knows nothing about it. I have an MRI and a CT scan that supports it. I am trying to find a surgeon who knows what it's all about. I live in Sacramento California. If anyone knows where I can find one please let me know. I can't find any neurosurgeons in my area that know Bout it. Ty
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If you have a Facebook account you can join the Bertolotti's Syndrome (USA) group. There are lots of resources on that page.

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The Bertolotti's Syndrome (USA) group on Facebook has a lot of good information in their files. And the members are very helpful.

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