Start a Vegan diet and water regimen. I took Neem pills. When my throat, wind pipe was so swollen a 9, the neem got it down to a 1 in less then 7 hours. Take Chlorophyll drops in your water. Watch for amazing results. No more dairy. No more meat w red dyes. No more msg.
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Go on Vegan diet and water. Take Neem pills. Use Chlorophyll drops in your water daily. No meat w dye. No msg. No food w additives. No sulfites in wine. Do this for a month. Your relapsing polychrondritus should be in remission. No dairy. Follow strictly. You will see results my friend.
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Tried methotrexate, azathropine, steroids with little success and gradual decline in quality of life with persistent worsening of symptoms. Am now considering Humara. There are a few cases in literature where this drug has helped with sustained response.
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I've been diagnosed with rpolychondritis,and I feel like you, no one where I live has ever heard of this, and don't know how to treat it ,I've been on prednisone for 5 months,and Methotrexate for 4 months, finally got down to I prednisone a day along with folic acid and I take 10 methotrexate every Monday,would love any advice anyone could give me,
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Hi! I hope that all of you on this forum are feeling well.
I was diagnosed with relapsing polychondritis at the age of 34.
14 years ago I met this amazing rheumatologist who prescribed Chloroquine aka Plaquenil (400 mg daily) and Meloxicam (15mg daily).
I am grateful that this treatment worked well for me for over a decade.
In 2013 I signed a form for an anatomical donation to NYU in hopes that in my death I can help find answers to this rare disease.
I am not well now because several other medical conditions due to the RP have arisen. I have been hospitalized three times in less than 3 months due to these other medical conditions.
I am unable to work now so I will be applying for Social Security disability as soon as I can pull myself together.
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I'm 43 and live in Houston. Was diagnosed in 06'. I'm on steroids, azathioprine, celcept, and Advair. I have noticed a clean/natural nutrition lifestyle (no processed foods, limited dairy, no artificial flavors or colors and limited whole grains) has helped keep flares in check. Took a while to dial all that stuff in. Flares are fewer and farther between but not completely gone. So clean up nutrition and go from there.
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Don't lose hope! I was diagnosed with RP in 2003 and am completely cured in 2008.
As this disease hits 3 in a million, very few doctors have heard of it. Like many of you, I felt hopeless and did not know how to help myself. I was on loads of Prednisolone and had to be airflown by SOS from my work base in Shanghai to Hong Kong for emergency treatment. I searched the Internet for answers and after much self-analysis, I narrowed down to two main reasons that caused my RP -- Stress and Anger. So apart from many of the great suggestions already mentioned here -- strictly no PROCESSED food or drinks and having plenty of rest, making a conscious effort to reduce your stress and anger will help you to recover. Do not lose faith, I have cured myself of RP and so can you!
As this disease hits 3 in a million, very few doctors have heard of it. Like many of you, I felt hopeless and did not know how to help myself. I was on loads of Prednisolone and had to be airflown by SOS from my work base in Shanghai to Hong Kong for emergency treatment. I searched the Internet for answers and after much self-analysis, I narrowed down to two main reasons that caused my RP -- Stress and Anger. So apart from many of the great suggestions already mentioned here -- strictly no PROCESSED food or drinks and having plenty of rest, making a conscious effort to reduce your stress and anger will help you to recover. Do not lose faith, I have cured myself of RP and so can you!
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Don't lose hope! I was diagnosed with RP in 2003 and am completely cured in 2008.
As this disease hits 3 in a million, very few doctors have heard of it. Like many of you, I felt hopeless and did not know how to help myself. I was on loads of Prednisolone and had to be airflown by SOS from my work base in Shanghai to Hong Kong for emergency treatment. I searched the Internet for answers and after much self-analysis, I narrowed down to two main reasons that caused my RP -- Stress and Anger. So apart from many of the great suggestions already mentioned here -- strictly no PROCESSED food or drinks and having plenty of rest, making a conscious effort to reduce your stress and anger will help you to recover. Do not lose faith, I have cured myself of RP and so can you!
As this disease hits 3 in a million, very few doctors have heard of it. Like many of you, I felt hopeless and did not know how to help myself. I was on loads of Prednisolone and had to be airflown by SOS from my work base in Shanghai to Hong Kong for emergency treatment. I searched the Internet for answers and after much self-analysis, I narrowed down to two main reasons that caused my RP -- Stress and Anger. So apart from many of the great suggestions already mentioned here -- strictly no PROCESSED food or drinks and having plenty of rest, making a conscious effort to reduce your stress and anger will help you to recover. Do not lose faith, I have cured myself of RP and so can you!
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Don't lose hope! I was diagnosed with RP in 2003 and am completely cured in 2008.
As this disease hits 3 in a million, very few doctors have heard of it. Like many of you, I felt hopeless and did not know how to help myself. I was on loads of Prednisolone and had to be airflown by SOS from my work base in Shanghai to Hong Kong for emergency treatment. I searched the Internet for answers and after much self-analysis, I narrowed down to two main reasons that caused my RP -- Stress and Anger. So apart from many of the great suggestions already mentioned here -- strictly no PROCESSED food or drinks and having plenty of rest, making a conscious effort to reduce your stress and anger will help you to recover. Do not lose faith, I have cured myself of RP and so can you!
As this disease hits 3 in a million, very few doctors have heard of it. Like many of you, I felt hopeless and did not know how to help myself. I was on loads of Prednisolone and had to be airflown by SOS from my work base in Shanghai to Hong Kong for emergency treatment. I searched the Internet for answers and after much self-analysis, I narrowed down to two main reasons that caused my RP -- Stress and Anger. So apart from many of the great suggestions already mentioned here -- strictly no PROCESSED food or drinks and having plenty of rest, making a conscious effort to reduce your stress and anger will help you to recover. Do not lose faith, I have cured myself of RP and so can you!
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