What do I have? 

 

  • November 2016 

 

They told me I might have fibromyalgia. (Expert rheumatologist from Hospital). I did blood tests. Everything ok.

  • I have chronic pain in the left side of the neck, which spreads to the left collarbone, breastbone, shoulder blade, shoulder and upper arm due to the loss of lordosis of the cervical spine. My work requires sitting a lot of time with the head facing down or turning and I don’t exercise enough. I do physiotherapy from time to time the last 15 years.
  • I have chronic pain in the right side of my waist due to a muscle spasm 20 years ago. I also do physiotherapy from time to time the last 20 years.
  • In 2010, I had a surgery and a nurse “hit” a nerve at the right side of sacrum with a needle. Since then I hurt all the time if something touches me there, so I have cut all my underwear and I wear larger pants. In order to sleep in the evening I have to put a little amount of Voltaren.
  • When I get too hot, I get red and very sweaty.
  • During the physiotherapy I use:
  • TENS is an abbreviation of Transcutaneous Electrical Nerve Stimulation

I can withstand tension up to 11, while the rest go from 20 and up.

  • Ultrasound

I don’t feel anything.

  • Machine that has hot plates.

I blush within 2 minutes at the lowest level and I feel burning, while the rest don’t bother for at least 5 min at the higher level.

  • I feel the cold very easily.
  • I suffer from irritable bowel syndrome
  • I get stressed easily (stomach pain, feeling hot, cold hands etc)
  • I have many allergies to pills, foods and grass.
  • I have a great sense of smell, taste and hearing.
  • I have to eat every 3 h, otherwise I feel shaking, hot, dizziness, headache and my stomach hurts.
  • However, if I eat too much, I can’t breathe and I feel very hot. 

This has been my medical profile since I remember myself. I was used to live with it. By the way, I have to underline that I didn’t take medicine, not even vitamins, because my stomach is too sensitive (gastritis). I get very hot and my stomach hurts.

  22 February 2017

Muscle spasm in the left side of my neck after 15 days of great stress and pain. I didn’t have time to do physiotherapy.  - I had a similar episode in 2006 and the only thing that made me better was a visit to an osteopath (chiropractor) who controlled the problem with only one manipulation and by using a small “gun”, I believe it was electromagnetic something.-

After being in bed for 3 days, because I was very dizzy to move, I threw up etc – no pills, only Voltaren in the usual place – I managed to stand on my feet. But every time I woke up from my bed my head was spinning. I had to go to work, so the first day I took a Depon and the second a Neurgestic. They made me so sleepy, so I stopped them.

 However, I couldn’t sleep at night. To be more specific, I didn’t have a good night sleep since September 2016. I slept for 4 hours and then I woke up and couldn’t sleep either from pain or from thoughts. After 2 hours, I went to sleep for 3-4 h and the next day I was like zombie.   

  • 20 March 2017

I visit again the hospital. I am better, but I feel dizzy every time I lie down or get up. I do physiotherapy. My neck and all the other places hurt as usual. The doctor tells me to have a MRI for the neck.

  • 10 April 2017

 

I have the MRI for my neck:

Soft retention of the fibrous ring of the intervertebral disc A4-A5. It is in contact with the spinal bag.  

Soft retention of the fibrous ring of the intervertebral disc A5-A6.

Sometime after 17/4/2017 and before 8/5/2017

 

This is the period of time that I have in my mind when everything started to change, but I can’t trace exactly when. I have notes from then that describe my situation like that:

 

  • I don’t feel my pains at all, even those at the neck, only the dizziness. 
  • I don’t feel thrust, hunger, full of food, like I don’t have stomach or guts.
  • Ι fall to sleep with a full stomach and it is ok.
  • I don’t feel like going to the toilet
  • I don’t have saliva and tears, but my eyes don’t hurt me.
  • I don’t feel I am sweaty.
  • The tense of smell, taste and hearing is lower.
  • I don’t feel the consequences of stress at all.

 

At the physiotherapy, I blush, but I don’t feel it. I can’t stand the TENS at all, but they don’t hurt, it is just a feeling of discomfort. With the ultrasound it is the same discomfort. At the massage, I don’t feel my pains at the upper body. Great, I say. I am well. But why am I not feeling all the other things?

  • 31/5/2017

 

I went to a neurologist, who told me that I had fibromyalgia, but he couldn’t explain why I didn’t feel all the other. He told me to do a MRI for the brain, which he saw after a week and the only thing he found was a small formation of increased signal intensity on the right side of adenoypophisy with dimensions 5 x 4 mm.

He told me to take cortisone in serum for a day. I was afraid to do it, so I avoid it. But the feelings were getting worse after the second MRI.

Sometimes I had that kind of hypoesthesia and other times I felt something like an electric current on my fingers or when I was sitting cross-legged. Every where I was touching and normally I would rather be hurting or numb (mouth, fingers, feet) was like electricity flows.   

But the strangest feeling was that my body, my clothes even my cell phone was too heavy that I was in pain.

 

  • 24/7/2017

 

I went to a neurosurgeon. I couldn’t feel the heat even though it was 40o C. It felt only like discomfort. I hurt very much, but it is not pain, it is electric current.  After seeing the 2 MRI, he laughed and he told me that if he had an MRI, it would be worse. “The pain is only in your head. You can’t hurt so much”. So he prescribed me Lyrica 25mg / twice a day.

After the first pill, the electricity current stopped, but I felt all the other senses to the maximum. I said: “it may happen, because all that time I wasn’t feeling them!”     

Initially, my body reacts excessively to the heat, whether it comes from the environment or inside (from movement, digestion, anger, laughter). Instead of feeling "hot", I feel an incredible "relaxation" in the muscles and I cannot even lift a full glass. If I feel cold, then I can pick up everything - in logical contexts ... Last summer was a hell. Living in Greece with 40 degrees, after I walked 2 steps, I fell down without realizing why, but I could swim for 1 hour without getting tired!

My senses generally work, but I feel them mixed up.  It depends on the external stimuli, one is normal in intensity, one becomes excessive or nothing.  For example, once I can feel the same object cold and once frozen. One time my eyes blurred I do not see clearly and after a while I can spotlessly distinguish a tiny piece of ice that falls from the cheese and melts on the toaster.  A few days ago I parked next to a garbage box and I haven’t noticed it. Sometime I turned my head to the right and then I smell it very well!

    The worst is with the messages I get from my body. I do not understand that I am hungry and then I feel shawls running, events that I understand them to the superlative degree. I also do not feel getting full from food, meaning I can’t feel my stomach and my guts. However, when I get up and walk 2 steps, I throw up - not on purpose. I do not understand muscle pain after exercise, at least not continuously. My sweat is sticky, not wet. Sometimes, when I'm crying or being afraid, my jaws knock uncontrollably - I have video of it. I also do not understand that I want to go to the toilet, unless it is an “emergency". I do not feel my gut at all, even though I have irritable bowel syndrome. I eat greens, spinach, milk and even though my belly swells, I do not feel pain or something. Sometimes, when I feel relaxed from the heat, my head turns fast on its own on the right or left, depending on which part of my neck I'm hurting, on the other side.

  The best. I have tendonitis in my right hand from my index until the wrist and from my shoulder to the neck. One time it hurts and when I get hot (after a few moves) I  feel nothing. But it is there, because when I am cold, it hurts. The same happens with the muscle spasm I have in the waist. I went to a supermarket yesterday and I could not turn the stroller and after 5 seconds I pushed it and it felt like it did not exist ....

I can talk with hours….

 

13/4/2018

 

What I am feeling now:

 

  • I do not feel my breast hurting, “burning” or swelling before period. It is just “soft”.
  • All my muscles are softening when I move and I don’t have saliva. Then something happens and my mouth is full of saliva.
  • I don’t feel the heat unless it is like a hot stream-hair dresser.
  • It seems like my senses are mixed up.
  • Most of the time, when I am hot, I am so relaxed that I feel I live in “slow motion”. It is like being in nirvana all of the time.
  • But when I feel cold, I have the feeling of fear and anxiety and I want to throw up. Sometimes it seems as normal, but other times not.   
  • Sometimes I don’t feel pain at all, when someone pulls slowly my hair from the back of my neck.
  • My face is swollen, even though I have lost 10 kg.
  • My sweat is sticky, not wet.(fingers, below breast, everywhere)
  • When I was hitting the homeopathic injections, the nurse took suction and twice pulled air out of my belly (one cm deep).
  • The craziest thing: all my underwear gets looser every time I wear them. Meaning, I wear a pant or a bra in the morning and in the evening it is 6-7 cm larger and I have to throw it away! I store them for evidence, in case someone wants to examine them. And I take photos before and after.

 

Tomorrow morning I will have an MRI for the hypophysis.

 

  1. Medical exams and results:

 

  • Bio-resonance (Asyra): Nervous system
  • Bio-resonance (EIS- brain hyperemia)  
  • MRI for the neck:  Soft retention of the fibrous ring of the intervertebral disc A4-A5. It is in contact with the spinal bag.  Soft retention of the fibrous ring of the intervertebral disc A5-A6.
  • MRI for the brain:  small formation of increased signal intensity on the right side of adenoypophisy with dimensions 5 x 4 mm.
  • I am waiting for blood results for autoimmune syndromes.

Do you have any idea what it might be?  Sorry for my English. It is not my native language.