Light headed, headache, spacey feeling. Tons of tests done, no result.

Stippett, yes you do, I'm sorry I didn't mean to over look that. How are you, ok?

Im honestly at a loss for words about how shocked but at the same time relieved I am that im not the only one. Reading your posts has brought tears to my eyes for the past 3 hours. My nightmare started almost a year ago when I woke up from a party. Felt abnormally dizzy and as if I took some kind of drug (not a drug user). I figured I was just extremely hungover so I just drove home. When I walked upstairs and into my room I got hit by a ton of bricks. The walls seemed to cave in on me I fell on my bed from ringing in my ear, headache, dizziness. A thought came to me "am I in the wrong house? Where am I? Am I dreaming?" I was at home from school on summer break when this happend. I am a 21 year old just incase that helps. My symptoms that seem to match all of yours is the mental fog dream sensation, dizziness, pressure by my eyes, slurring of speech, memory loss mostly short term, neck pain, cracking in my jaw as if were out of place, and inability to focus my eyes. A few months after I received whatever we are suffering from, I received a serious concussion which ended my football career and took me out of school for a semester. During the semester I had to do eye therapy and balance therapy. Some of my symptoms such as headaches went away but the foggy dream feeling and everything else has remained. I have gotten many tests done MRI blood tests you name it i got it done. My dctrs and parents dont believe me when I say it happened Before my injury. There has been times where I cry myself to sleep because I just want my life back. No memory of depression or anxiety I was know for a happy go lucky kid before this. Now im getting mood swings and I just want to sleep all day. If anyone has found anything out please PLEASE give me information. Im sick of this. It is no way to live life and I pray we all find a way out of this battle. I am going to try acupuncture and the chiropracture soon. God bless you all thank you.

Mike, you had me crying too. I'm so sorry and it must stink that people don't believe you. You probably got hurt due to not being 100% because of what was going on with you. You know what, it doesn't matter what other people believe, you know it and all of us on here know exactly what you're talking about, so don't even bother trying to convince anyone, it's not important. I have people telling, maybe it's an allergy, maybe you just need more rest and they mean well but I know something is very off with me. I can't believe how many people have symptoms like this and can't get any answers, it's really blowing my mind. I've have some not so bothersome symptoms hat'd I've just shrugged off for about a year but only just started with the major neurological ones recently. I really really can't believe how long some have issues without answers. I don't even know what to say....hang in there!! I think we could all some sort of autoimmune disorders that manifest in different disorders due to DNA make up, chemistry and the body's ability or lack of ability to fight it off but the underlying cause could be from the same source Borrelia burgdorferi...but hey I'm in a fog so what do I know :)

To Gambs, hold on there, you will get used to it. I have been that way for over ten years and all I do is just continue my life like nothings i wrong. AT first it was sort of crippling, but then I took control of mylife and I toldmyself that if I am still alive after all this time I will be here tomorrow. It gets better when you ignore it. You will get scared from time to time but relax or breathe and remind youself that you will be fine. This forum helped me alot cuz before I thought I was alone. This is either anxiety or some sort of silent migraine. I notice it is worse when the weather is cold or cloudy. I have helping so many people cope with this, so hang on there, and stay safe.

Thanks Helpinghand :) Oh boy 10yrs, congratulations to you hopefully I learn to cope as well as you but yes, still alive and breathing :)

Gambs, thank you very much for your positive feedback its honestly so refreshing to finally be able to talk and hear from people who know where I am coming from. Finding this forum is such a blessing to me im very thankful. This gives me a little ounce of hope

Hi Gamb..
I have been on Bactrum DS just over a month now.. know that Lyme is a funny thing.. it will hit everyone in a different manor depending on your immune system and/or if one was infected with a tick carrying any coagents.. ex. rocky moutain.. babesiosis, ehrlichiosis, bartonella, mycoplasma, STARI, tularemia and other tick borne co-infections. know that parasites and yeast/fungal problems come hand in hand with this infectionknow that MANY others have the disease and their tests came back negative.. band 42 if positive is most common for basic Lyme is/has been in your system.. the CDC created a test that is NOT sensitive enough to determine if one is infected.. many are walking away with a negative initial Western Blot and continue years with no answers because most doctors ARE illiterate with the subject.. to detect Lyme via a Western Blot the bacterial has to be in your blood system.. too early it will not be seen.. late stage the L- bacteria most likely has parked itself in a muscle.. nerves.. nueral,, organ.. one can have a late stage with a kick @ss immune system where you have been creating anti-gens of your own to combat it.. in short the standard test is do-do.. lol.. ones own immune system can back bacteria against the wall putting them into a cyst form - Lyme when attacked change their form into a cyst for protection waiting for a tramatic event in your like to weaken you and show itself.. so do antibiotics to them.. this is why long couses are required to rid of them.. mandatory to take a cyst buster along with your treatment so that now can run n hide.. so in short.. no is not no.. best test is thru Igenx in CA.. best advice don't go thru your family doctor.. search out a Lyme specialist.. they will know best treatment.. ways to offset Herx reactions.. and ways to balance keeping your immune system up while stressing out your body while they - treatment/Lyme are at war within you.. crazy how so many are going untreated for a bacterial parasite that is running rampant with most doctors knowledge being based on a flawed cdc test

How can it be lyme when all blood tests come back normal? Wouldn't something be off a little somewhere?

You have to be careful with Lyme.... consider the area you live in ,and the likelyhood of on infection.  Lupus, MS,and other brain inflamations can cause many oft he symptoms. I personally had 14 lesions on my brain, but my MS specialist said people can be symptomatic of MS for years without picking up anything that can be clinically diagnosable. The fatigue that increases during the day, the non-specificness of oddball seemingly non-connective symptoms is what my doctor says he looks for the most.  I hav found some days that I wake up, feeling amazing, then within hours, and down for the count.  I am really lucky to have had clear diagnosable symptoms in my MRI, but dont rule it out if you dont.

 

For those who think its lyme, I live in a part of the world where it doesnt exist and it would not have lasted 10yrs with no harm to my body. However it is generally good to check for parasites in your system though.

No that's just it, it you are tested in early stage and the CDC even agrees with this, it might not show up in the standard Lyme tests and if you are in later stages, which the CDC does not address it can hide. Ro's post is very accurate, the best bet is testing through Igenx and to find a doctor who's a LLMD, Lyme Literate MD, you can go to http://www.lymediseaseassociation.org and they will send you names of good ones in your area. There are so many documented cases of people who tested negative and then years later after going from doctor to doctor found out it was Lyme problems due to it. I'm not saying this is what everyone has and yes to the below you have to take into consideration where you live or have been. I just got a call from my doctors office, the Lyme results came back negative and thyroid is negative. I have an appointment with an ENT tomorrow so will see what he says. If everything with that is fine then I guess I'm in the same boat :(

morning..
ask for the paper results.. see what bands might be affected.. cdc says 5 bands must be + to declare a+ result.. you could have a false + or - and they are telling you you are - ... band 41 is most common.. some other bands are more specific for Lyme that to a Lyme doctor you can have 3 bands say 41.. 31.. with 21 midline (not + nor - )and he will probably treat you according to symptoms.. history.. ect.. odds are better to treat if questionable because even in later stage after a few months one will feel symptoms lowering.. more energy.. and even the herx reactions .. worst case you washed your system of the bad bacteria floating around and you then know it is not a bacterial/parasite/yeast-fungal issue

Good morning and thanks Ro :)

I accessed the Quest website and can view a copy of the results, There's no range, 10 bands including 41 say nonreactive but 31 and 21 aren't on there. I'm going to see what the ETN says today and if that's not it see about a LLMD. My family practitioner told me to stop taking the antibiotics maybe I hold off on that suggestion for the time being. Thanks again sooo much Ro and everyone. I can see why you guys come on here, it does really help :)

Okay, back from ENT, ruled out any inner ear issues and he suggests next steps MRI and neurologist, which I'll do but right now am like why bother...I'm already fed up and it's only been about a month since the dizziness started, the exhaustion much longer but some of you have being going through this for years and I have no right to complain but am just feeling fed up. I'm sure I'll be back to my norm in an hr or by tomorrow at the latest. I'm normally very hard to bring down and don't believe in having pity parties for myself :(