Light headed, headache, spacey feeling. Tons of tests done, no result.

I had mri done, normal except little increased csf. Neurologist saw mri, said nothing there from that and symptoms don't match anything. Neurologist said it's just anxiety or stress..gave me Xanax. Did nothing for symptoms. Nobody knows anything when you see all doctors

You have every right to complain, its how you feel. When you are not accustomed to be sick this thng really sucks and thats how it was for me but after doing all the tests and knowing folks who did even more tests and they came up blank i decided to just take it easy. One doc told me if it had to kill me I would have been dead already so live my life as best as I can. You will get used to it trust me and my ten years, lol.

i said getting this when i was 12, it was when the whooping cough was going around. i got the whooping cough and started feeling tryed and WEIRD , i thought it was all apart o the whooping cough. put then the coughing went put the lightheaded/dizzyiness / dreamy feeling stayed. i had to stop doing everything. literally destoryed me. i was really active. had to give up soccer. stopped me from living they way i did.

i got put in hospital for 2 weeks, for scans etc. all results came back 100 % perfect which is awesome! but still i have no idea whats wrong with me.

doctor then said its anxeity, and not to worry. but HOW ON EARTH CAN IT BE ANXIETY WHEN THE ONLY THING IS MAKING ME SCARED IS FEELING LIKE THIS.

MY LIFE CHANGED IN JUST ONE DAY!!! im now 18 and i still have it. everyday i have to insure myself that im still alive. that this isnt a dream. i get so tired. people keep telling me its different things, depression, blaaaaaah how cann it be depression when i LOVE MY LIFE!! i just want to be able to enjoy it again without struggling with the tired and spacey feeling.

ive come to the point where ive had enough of it. i wanna live!!! normally. but how can i when i dont feel right?

the future scares me now, i use to look forward to it . but now everythings different. there is no future for me. not like this

Buterflys, I feel your pain.. Actually all of us do. Whatever this is ruined my football career also. Its the must frustrating and devastating thing that has ever happened to me. I also loved my life and had no depression or anxiety before this happened. This forum has honestly helped me alot knowing im not the only one. Just gotta stay positive and reassure yourself that tomorrow is going to come and nothing bads gonna happen. Your not alone on this!

Whooping cough is caused by bacteria, Lyme disease is caused by bacteria and it is now suspected that autoimmune diseases could be caused by bacteria. A healthy immune system provides protection against bacteria and viruses but if the immune system is in a compromised state when these enter the body it can be hard for it to recognize its own tissues and distinguish itself from harmful invaders. There is increasing evidence that some infections closely resemble our own proteins and this could play a role in the bodies attempt to attack and destroy its own healthy tissues. I’m not suggesting that whatever’s going on with all of us comes from the same bacteria or virus; there are so many different types, or am I suggesting that everyone here has the same whatever-the-heck-it-is but its coincidental that a lot of the symptoms are similar. Clearly our bodies are under attack from something and if you ask me, it’s not an external cause like stress or anxiety. I think the medical industry is at a loss, understandably so, and that’s fine but to tell people they are just stressed or anxious is B.S!! Just tell me you don’t friggin know!! I just turned 50 in February, a very young, vibrant, active, great sense of humored bit of a wiseassed 50 year old and I have suffered my share of stress and anxiety over the years and let me tell you, this is not that! I know what anxiety feels like, I know myself and know when something not right. If they don’t figure out what it is I’m actually okay with that as long as anything “major” is ruled out. However, I do feel for the younger people and my thoughts are with you, for all that’s worth.

I have to share this…today I was at my sisters for Mother’s day and my Mom, great lady, love her with all my heart and I know she’s concerned, says to me once again…maybe it’s just stress. I calmly and very seriously looked at her and said, maybe… or maybe a big giant flying pig flew down and hit me on the head while I was sleeping and I just woke up dizzy ;) everyone at the table laughed. Well at least my wiseass comments are still in check!! I don’t suggest anyone else try that comment because people might actually think you have gone crazy, from me it’s expected ;) but really…that makes just as much sense to me as stress!!

Hope everyone’s doing okay, thanks for being here, glad I found this site and to all the fellow dizzy Moms…Happy Mother’s Day !!

IT may not be anxiety but being anxious makes it worse. I can understand people gettig anxious with this thing, its quite irritating. Those of you who play sports, go ahead and play, do whatever you accustomes of doing in your regular life, nothing is going to happen. If between 12 and 18 you are still alive you aint dying from this anytime soo, I have it for ten years now. Its not as bad as it use to be cuz I give up being frightened and worried, I just go about my life as usual. ITs hard but you get used to it. Sometimes I feel like I am going to fall in public, lol but I just keep walking and nothing happens. Sometimes I feel like I am going to pass out but I keep on going, nothing happens. Whatever it is just keep moving.......

I find that when I worry about it more the worst it becomes yeah and I get myself so worked up about it that I feel like passing out it's been 2 years since the birth of my baby girl 1st baby and afew days after that or maybe straight after the birth it all started for me. It's horrible some days and toleratible other days.

This may be a very bizarre question but I figured id ask it haha. Does anyone here get a sense of relief for a few seconds after they sneeze?!

Hey Mike, clearly this whole thing is bizarre so that negates the possibility of any questions sounding bizarre ;) To answer, no, not that I've notice but I'm assuming you do if your asking. I'm sure they have but am curious, have they completely checked your sinus and ears???

And yes regarding the stress factor, definitely stressing over it is absolutely not going to help anything, will make it worse!! Like Helping Hand has said, you gotta just try live your life, it may not be ideal and have to make sure you minimize risks, I certainly wouldn't go play football or any other contact sport...lol but HH has had it for 10yrs now and still going strong. A good example for the rest of us to realize we're most likely gonna be okay :) I think as long as we make the effort to rule out anything serious and get checked from time to time, we're good :)

So, I went to Lyme Specialist yesterday, she took more blood and running some different tests. Had a MRI today and back to waiting for results but I'm not stressing, it is what it is...

Gambs, you will play football soon, you will see. I stoppped driving my car for a month. When I decide to get my life back I started driving again and here I am not, no accidents after all this time. I just know when the weather is cold, I feel worse but it does not last, I speak to myself, I say hey you are here now you are going to be here until its your time, move on. Have nice day.

Try celexa or zoloft I have alot of th same problems and I've been check from MRI and blood work my vitamin d is low but I deal with not being able to focus when I wake up in the morning or after a nap I feel ok then the focusing problem will happen it's anxiety n depression together when you have anxiety depression cones with it I never knew that I dont feel depressed but its there my anxiety has me scared to try zoloft but if. Wanna feel back to normal I need to start taking it your suppose to start on 25 mg for the first week then move up to 50mg also you have to give it 3 to 5 weeks tops before you really feel a real difference also google anxiety symptoms n it will give you over a 100 symtpoms n it's crazy all the head symptoms are that take a look.

i have many of the symptoms you guys describe....could it be BRADYCARDIA???

Hey Guys,

Yes, it could definitely be from low iron, that's one of the first initial tests your doctor should do with routine blood work up.  Four years ago I was EXTREMELY fatigued and then started having on and off dizzy spells and my bloodwork came back severely anemic, even my reserves were depleted.  The red blood cells carry oxygen to the brain and iron is needed for a healthy red blood cell level, without proper oxygen levels the brain can't function and other organs can't function.  That's what I figured it would be this time, even though this time it wasn't dizzy spells, it was constant.  My iron levels are fine this time but that doesn't mean that yours are, you could just be anemic.  Only at your doctors advise you should then take iron supplements and improve your diet with iron rich foods.  Then you should be tested again and if it hasn't raised they will check for any internal bleeding, could even be something simple like hemorrhoids, an ulcer or for women heavy cycles.  Mine cleared up in a few weeks with the supplements.  My sister's the same but they found out her body just can't absorb and store iron so she's on bovine iron prescription strength medication.  She now has heart damage due to the anemia.  Another sympton of anemia can be, and this is strange, craving ice, damage some teeth when I was anemic...lol, some crave dirt or paper, it's referred to as Pico or something.   Lots of different things have many isolated symptoms which include dizziness, so it's a entire picture that has to be pieced together.  I'm still waiting on my MRI results but got a call from the Lyme specialist today, she ran additional tests other than the standard blot for Lyme and there is a band that shows elevation for Old Lyme, which means if I have it it's been for sometime.  This is not conclusive, what happens is the bacteria once it's been in the body leaves the blood system and goes into the tissue, then it encapsulates itself in a cyst type bubble and can't be detected in the blood.  I've been on antibiotics for about two weeks and the dizziness is gone.  I still have the fatigue, brain fog, spacey feeling, aches, knee and back pain but at least I'm not dizzy anymore, at least that's something :)  I'm going to stay on the antibiotics for at least a month and a specific diet that helps the immune system fight it and see how it goes and still waiting on the MRI results to hopefully rule out anything else that could be going on.  If it's Lyme, I think I can trace it back to about 15 years ago when I went to a doctor because I had absolutely no motivation to do anything due to fatigue and was experiencing brain fog, I couldn't remember anything and I was so mentally sharp up until then.   He said I was probably just depressed and put me on antidepressants, that's what they did for everyone back then.  I remember thinking, okay...I've never felt hopeless, sad, suicidal but he's the doctor so okay.  Of course looking back, I think they just numbed and masked some things.  I've been off them for about two years now and no depressive problems but a while after that started with the back and knee problems.  One of the antidepressants I was on is prescribed for pain of arthritis.  Please don't think you have Lyme just because of this.  Make sure your doctors listen to you, run all the necessary tests, dizziness can be from something simple to something serious, heart problems, anemia, mild stokes, CFS, ear or sinus problems, vision problems (make sure you go to a good OD, not lens crafters for this) it can be so many, many things and you have to work with your doctor to make sure they can fit the whole picture together...good luck to all :)

morning..
looks pretty close to you and I being in the same boat.. possible stage 2 Lyme.. wondering what antibiotic your doc is giving you.. they say only a few can actually breach the brain barrier and really get into those pockets where they live.. don't forget a cycst buster to get them from hiding to well once your immune system doesn't look as stressed from the first month or two of AB.. please let me know which type and the actions your doc is taking.. TY