I'm so happy that I found you guys! I've been feeling this way for a little over a week. Ok when I first wake up, but a of balance and woozy with achy eyes and slight pressure around my eyebrows. As I start to get ready for my day, the pressure seem to build in my head and I feel a little car sick as I try and ignore the sense that the contents of my brain feel like they are moving around like the inside of one of this magic 8 balls. Stronger headaches come and go throughout the day. I usually feel best when I'm physically active. I too struggle with anxiety over this, it's really scary. My GP did some blood work, tested my thyroid, all was fine. He sent me to a neurologist who thinks it's all migraines and I'm stressing out and making it worse. My neurological exam was normal and I had an MRI yesterday and I'm waiting on the results. I've got an appointment with an ENT Monday because my ears are often full and painful and pop when I swallow. The headache pain often mimics sinus pain and I do have allergies, do we'll see. We should all keep coming back her each week to check in. Hopefully we can help each other get through this! Healing and blessings to you all!
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so this is the best thread for this issue..., I found this post over a year ago and have just been watching everyone's posts before replying about what I have found. I thought I was the only one, but so many of you sound to have the similar issues. I agree with anxiety being a culprit. Soon after I wake in the morning, I feel like I didn't sleep much, and almost buzzed kind of feeling = just not myself and clear.
I am 32 now and have had symptoms since I was 22. i come from a Broken home, lost step dad to alcoholism, moved all over the country with little roots to "home". Have a love/hate relation with my mom...Went to Psych for some time but didn't get any result
What is very interesting and shocking to my Rheumatologist is that when I am taking a pain killer like Vicodin or Percocet I am at ease and the symptoms go away. Even Valium appears to work. All blood tests come back negative except for when ANA test is run, Its not off the charts but there is something above the normal values,... I think its just that i'm Celiac and the auto immune disease is triggering.
My Dr. tried Cymbalta which is for Fibromyalgia and multi-sypmtoms, but all it seemed to help was my lower back pain and mood swings. That was a lot to say, but the more we tell eachother the more we can learn. let me know what you guys think of the painkillers having a positive effect for me. 1-2 a day and its the best i've felt in years.
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so this is the best thread for this issue..., I found this post over a year ago and have just been watching everyone's posts before replying about what I have found. I thought I was the only one, but so many of you sound to have the similar issues. I agree with anxiety being a culprit. Soon after I wake in the morning, I feel like I didn't sleep much, and almost buzzed kind of feeling = just not myself and clear.
I am 32 now and have had symptoms since I was 22. i come from a Broken home, lost step dad to alcoholism, moved all over the country with little roots to "home". Have a love/hate relation with my mom...Went to Psych for some time but didn't get any result
What is very interesting and shocking to my Rheumatologist is that when I am taking a pain killer like Vicodin or Percocet I am at ease and the symptoms go away. Even Valium appears to work. All blood tests come back negative except for when ANA test is run, Its not off the charts but there is something above the normal values,... I think its just that i'm Celiac and the auto immune disease is triggering.
My Dr. tried Cymbalta which is for Fibromyalgia and multi-sypmtoms, but all it seemed to help was my lower back pain and mood swings. That was a lot to say, but the more we tell eachother the more we can learn. let me know what you guys think of the painkillers having a positive effect for me. 1-2 a day and its the best i've felt in years.
i'd be interested to hear if anyone else tried this?
I am 32 now and have had symptoms since I was 22. i come from a Broken home, lost step dad to alcoholism, moved all over the country with little roots to "home". Have a love/hate relation with my mom...Went to Psych for some time but didn't get any result
What is very interesting and shocking to my Rheumatologist is that when I am taking a pain killer like Vicodin or Percocet I am at ease and the symptoms go away. Even Valium appears to work. All blood tests come back negative except for when ANA test is run, Its not off the charts but there is something above the normal values,... I think its just that i'm Celiac and the auto immune disease is triggering.
My Dr. tried Cymbalta which is for Fibromyalgia and multi-sypmtoms, but all it seemed to help was my lower back pain and mood swings. That was a lot to say, but the more we tell eachother the more we can learn. let me know what you guys think of the painkillers having a positive effect for me. 1-2 a day and its the best i've felt in years.
i'd be interested to hear if anyone else tried this?
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Have Tried Tests For B12 Deficency? Try this numbness and all other symptoms could be the causes of B12 vit...
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Ive been following this thread, due to dizzyness, fatigue, memory problems, emotional non control, panic attacks, occcasional slurring of speech, and was told originally, i may have a potassium deficit, then i was told possible silent migraines. My next thing to rule out was simple partial seizures. I had an MRI friday, they found 14 lesions consistant with MS. MS is a really clear amswer for all of these symptoms and commonly goes without diagnosis. Not all MRIs show clear lesions like mine, but please, people, look into it. Its an auto immune disorder, which i was able to identify with my eczema. It flairs up with stress, weather changes, being sick, and my monthly cycle. To the person who said they had bathroom issues, thats common of someone who's. MS is in the spine. Its really hard to get a diagnosis sometimes, but push for it. The sooner you start treatment, the less permanent damage to your body you do.
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I also forgot to mention, it can cause vision issues, numbness, tingling sensations, panic attacks, mood swings, extreme fatigue, partial. Paralysis, headaches, basically a whole host of issues. Its your immune system attacking the lining of your brain synapses, so it causes your electric currents to misfire in all linds of ways.
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Thank god for these post, for a while i thought i was going crazy, for me symptoms started about a month ago and at first just thought i was tired not getting enought sleep, but as you all described to a T my symptoms have not improved and i have been to the doctors with no results or cure. I have another doctors appt with another doctor in a week since the last one brushed me off like i was making this ish up! i am glad to have this to give to him so i can be very specific and hope to avoid taking or doing treatments that are not neccessary, so thank you all, if i find a solution i will be the first to post it. Feel and live better to all! thanks again for making me not feel crazy
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Hi All,
I realize most of these post are pretty old but thought I'd add to it anyway. I've been experiencing all the same symptoms for about 3 weeks now. All initial blood work has come back fine. I have had severe anemia in the past so we thought it might be that again but iron levels are also fine. My doctor now suspects Lyme's disease. I went for blood work Friday, should have the results in 5-7 days so can't confirm anything yet but thought it was worth posting. Have any of you been tested for that? Lyme symptoms can also mimic Fibromyalgia and some believe Fibromyalgia is caused or symptom of Lyme's Disease, just thought I'd share and hope everyone feels better soon!!
I realize most of these post are pretty old but thought I'd add to it anyway. I've been experiencing all the same symptoms for about 3 weeks now. All initial blood work has come back fine. I have had severe anemia in the past so we thought it might be that again but iron levels are also fine. My doctor now suspects Lyme's disease. I went for blood work Friday, should have the results in 5-7 days so can't confirm anything yet but thought it was worth posting. Have any of you been tested for that? Lyme symptoms can also mimic Fibromyalgia and some believe Fibromyalgia is caused or symptom of Lyme's Disease, just thought I'd share and hope everyone feels better soon!!
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Thought I'd also add the symptoms list for Lyme's, there are 3 stages and the bulls-eye rash is only present in 1/3 of detected cases...
Stage 1: Early localized infection (1 to 4 weeks)
Some people with Lyme disease will have flu-like symptoms with or without a rash. These symptoms may include:
Lack of energy, which is the most common symptom.
Headache and stiff neck.
Fever and chills.
Muscle and joint pain.
Swollen lymph nodes.
In some cases of Lyme disease, the person does not notice any symptoms during this stage.
Stage 2: Early disseminated infection (1 to 4 months)
If you do not have early symptoms that trigger the need for treatment, the infection may affect the skin, joints, nervous system, and heart within weeks to months after the initial infection.
Symptoms at this stage may include:
Being tired.
Additional skin rashes in several places on your body that develop as the infection spreads.
Pain, weakness, or numbness in the arms or legs.
Inability to control the muscles of the face (paralysis of the facial nerves).
Recurring headaches or fainting.
Poor memory and reduced ability to concentrate.
Conjunctivitis (pinkeye) or sometimes damage to deep tissue in the eyes.
Occasional rapid heartbeats (palpitations) or, in rare cases, serious heart problems.
Stage 3: Late persistent infections
If Lyme disease is not promptly or effectively treated, damage to the joints, nerves, and brain may develop months or years after you become infected (late Lyme disease). Symptoms at this stage may include:
Swelling and pain (inflammation) in the joints, especially in the knees.
Numbness and tingling in the hands, feet, or back.
Severe fatigue.
Partial facial nerve paralysis, which usually occurs within the first few months after the tick bite.
Neurologic changes, including problems with memory, mood, or sleep, and sometimes problems speaking.
Chronic Lyme arthritis, which causes recurring episodes of swelling, redness, and fluid buildup in one or more joints that last up to 6 months at a time.
Heart, nervous system, and joint symptoms may be the first signs of Lyme disease in people who did not have a rash or other symptoms of early infection.
Stage 1: Early localized infection (1 to 4 weeks)
Some people with Lyme disease will have flu-like symptoms with or without a rash. These symptoms may include:
Lack of energy, which is the most common symptom.
Headache and stiff neck.
Fever and chills.
Muscle and joint pain.
Swollen lymph nodes.
In some cases of Lyme disease, the person does not notice any symptoms during this stage.
Stage 2: Early disseminated infection (1 to 4 months)
If you do not have early symptoms that trigger the need for treatment, the infection may affect the skin, joints, nervous system, and heart within weeks to months after the initial infection.
Symptoms at this stage may include:
Being tired.
Additional skin rashes in several places on your body that develop as the infection spreads.
Pain, weakness, or numbness in the arms or legs.
Inability to control the muscles of the face (paralysis of the facial nerves).
Recurring headaches or fainting.
Poor memory and reduced ability to concentrate.
Conjunctivitis (pinkeye) or sometimes damage to deep tissue in the eyes.
Occasional rapid heartbeats (palpitations) or, in rare cases, serious heart problems.
Stage 3: Late persistent infections
If Lyme disease is not promptly or effectively treated, damage to the joints, nerves, and brain may develop months or years after you become infected (late Lyme disease). Symptoms at this stage may include:
Swelling and pain (inflammation) in the joints, especially in the knees.
Numbness and tingling in the hands, feet, or back.
Severe fatigue.
Partial facial nerve paralysis, which usually occurs within the first few months after the tick bite.
Neurologic changes, including problems with memory, mood, or sleep, and sometimes problems speaking.
Chronic Lyme arthritis, which causes recurring episodes of swelling, redness, and fluid buildup in one or more joints that last up to 6 months at a time.
Heart, nervous system, and joint symptoms may be the first signs of Lyme disease in people who did not have a rash or other symptoms of early infection.
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I realize most of these post are pretty old but thought I'd add to it anyway. I've been experiencing all the same symptoms for about 3 weeks now. All initial blood work has come back fine. I have had severe anemia in the past so we thought it might be that again but iron levels are also fine. My doctor now suspects Lyme's disease. I went for blood work Friday, should have the results in 5-7 days so can't confirm anything yet but thought it was worth posting. Have any of you been tested for that? Lyme symptoms can also mimic Fibromyalgia and some believe Fibromyalgia is caused or symptom of Lyme's Disease, just thought I'd share and hope everyone feels better soon!!
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don't know if you will even see this but I found your sysmptoms very similar to mine and was wondering if it was ever diagnosed.. right now they are treating me for a false positive test of Lyme.. but thoughts of it being a benign thrombosa still have me wondering.. a thrombosa in an inflamed or restricted vein that drains blood away from your brain once it is used carrying high co-2 I believe.. as the day goes on levels increase.. exerting/sweating helps me feel better possible reducing those levels.. at rest for the night I recharge and am most of the time good in the am.. as the day progresses so do my symptoms.. in 6 months now with no answers.. hope to hear from u.. ***this post is edited by moderator *** ***
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Hi Ro,
Thanks for sharing, I'm so sorry you have been dealing with this for 6 months with no relief or answers in sight as of yet. I should be getting the results on the Lyme this Friday but in the meantime my doctor started me on antibiotics today to start treating me for it. I'm not sure I can do anything physical right now with all the dizziness, are you dizzy when you start and it goes away. They have advised I don't drive and I'm lucky I can work from home but not sure how long that will be acceptable. I'm concerned about this being long term. I wake up dizzy and it's continuous through the day, sometimes even a bit nauseous. I have absolutely no concentration and am having trouble making heads or tails out of work emails. Last year around this time I went to my doctor concerned about my memory and concentration levels, was really letting the ball drop at work. They put me on ADD meds, which helped until a few months ago. A month after that doctors visit I went back due to back and knee problems and was diagnosed with Osteoarthritis of my spine and possible tendinitis of the knee. I have maintained pain somewhat with aspirin preferring to not add additional heavier drugs to what I already take. This winter I started having numbness of my finger tips but just wrote it off to the cold and me getting older, never even though about having it checked out. I have been exhausted for I don't know how long now. Then the dizzy spells started on and off about 3 weeks ago and a week ago Saturday I woke up dizzy and it continued throughout the day to the point where I went to an urgent care facility. I'm not the type to go to the doctor unless it's a necessity...lol. All my vitals looked good, followed up with the doctor, he did normal blood tests and all good so now he suspects Lyme. So, I'm waiting on that and can't believe I'm actually hoping it comes up positive so we know what it is and it can be treated. I can't imagine what everyone is going through with no answers for so long. If it comes back negative I will definitely discuss the possibility of thrombosa with him and keep you posted on that. I'm curious to know how long have you been on antibiotics and is it helping at all. There are different strains of bacteria from Lyme and all don't respond to certain meds, What my doctor put me on if for early stage treatment and I think I've had this for at least a year if not more. Sometime IV treatment is needed to combat later stage Lyme and that can cause all kinds of side effects. Here's hoping we all feel better very soon!!!
Thanks for sharing, I'm so sorry you have been dealing with this for 6 months with no relief or answers in sight as of yet. I should be getting the results on the Lyme this Friday but in the meantime my doctor started me on antibiotics today to start treating me for it. I'm not sure I can do anything physical right now with all the dizziness, are you dizzy when you start and it goes away. They have advised I don't drive and I'm lucky I can work from home but not sure how long that will be acceptable. I'm concerned about this being long term. I wake up dizzy and it's continuous through the day, sometimes even a bit nauseous. I have absolutely no concentration and am having trouble making heads or tails out of work emails. Last year around this time I went to my doctor concerned about my memory and concentration levels, was really letting the ball drop at work. They put me on ADD meds, which helped until a few months ago. A month after that doctors visit I went back due to back and knee problems and was diagnosed with Osteoarthritis of my spine and possible tendinitis of the knee. I have maintained pain somewhat with aspirin preferring to not add additional heavier drugs to what I already take. This winter I started having numbness of my finger tips but just wrote it off to the cold and me getting older, never even though about having it checked out. I have been exhausted for I don't know how long now. Then the dizzy spells started on and off about 3 weeks ago and a week ago Saturday I woke up dizzy and it continued throughout the day to the point where I went to an urgent care facility. I'm not the type to go to the doctor unless it's a necessity...lol. All my vitals looked good, followed up with the doctor, he did normal blood tests and all good so now he suspects Lyme. So, I'm waiting on that and can't believe I'm actually hoping it comes up positive so we know what it is and it can be treated. I can't imagine what everyone is going through with no answers for so long. If it comes back negative I will definitely discuss the possibility of thrombosa with him and keep you posted on that. I'm curious to know how long have you been on antibiotics and is it helping at all. There are different strains of bacteria from Lyme and all don't respond to certain meds, What my doctor put me on if for early stage treatment and I think I've had this for at least a year if not more. Sometime IV treatment is needed to combat later stage Lyme and that can cause all kinds of side effects. Here's hoping we all feel better very soon!!!
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I think I posted this under the wrong name, ugh brain fog, so forgive me for repeating myself....
Hi Ro,
Thanks for sharing, I'm so sorry you have been dealing with this for 6 months with no relief or answers in sight as of yet. I should be getting the results on the Lyme this Friday but in the meantime my doctor started me on antibiotics today to start treating me for it. I'm not sure I can do anything physical right now with all the dizziness, are you dizzy when you start and it goes away. They have advised I don't drive and I'm lucky I can work from home but not sure how long that will be acceptable. I'm concerned about this being long term. I wake up dizzy and it's continuous through the day, sometimes even a bit nauseous. I have absolutely no concentration and am having trouble making heads or tails out of work emails. Last year around this time I went to my doctor concerned about my memory and concentration levels, was really letting the ball drop at work. They put me on ADD meds, which helped until a few months ago. A month after that doctors visit I went back due to back and knee problems and was diagnosed with Osteoarthritis of my spine and possible tendinitis of the knee. I have maintained pain somewhat with aspirin preferring to not add additional heavier drugs to what I already take. This winter I started having numbness of my finger tips but just wrote it off to the cold and me getting older, never even though about having it checked out. I have been exhausted for I don't know how long now. Then the dizzy spells started on and off about 3 weeks ago and a week ago Saturday I woke up dizzy and it continued throughout the day to the point where I went to an urgent care facility. I'm not the type to go to the doctor unless it's a necessity...lol. All my vitals looked good, followed up with the doctor, he did normal blood tests and all good so now he suspects Lyme. So, I'm waiting on that and can't believe I'm actually hoping it comes up positive so we know what it is and it can be treated. I can't imagine what everyone is going through with no answers for so long. If it comes back negative I will definitely discuss the possibility of thrombosa with him and keep you posted on that. I'm curious to know how long have you been on antibiotics and is it helping at all. There are different strains of bacteria from Lyme and all don't respond to certain meds, What my doctor put me on if for early stage treatment and I think I've had this for at least a year if not more. Sometime IV treatment is needed to combat later stage Lyme and that can cause all kinds of side effects. Here's hoping we all feel better very soon!!!
Hi Ro,
Thanks for sharing, I'm so sorry you have been dealing with this for 6 months with no relief or answers in sight as of yet. I should be getting the results on the Lyme this Friday but in the meantime my doctor started me on antibiotics today to start treating me for it. I'm not sure I can do anything physical right now with all the dizziness, are you dizzy when you start and it goes away. They have advised I don't drive and I'm lucky I can work from home but not sure how long that will be acceptable. I'm concerned about this being long term. I wake up dizzy and it's continuous through the day, sometimes even a bit nauseous. I have absolutely no concentration and am having trouble making heads or tails out of work emails. Last year around this time I went to my doctor concerned about my memory and concentration levels, was really letting the ball drop at work. They put me on ADD meds, which helped until a few months ago. A month after that doctors visit I went back due to back and knee problems and was diagnosed with Osteoarthritis of my spine and possible tendinitis of the knee. I have maintained pain somewhat with aspirin preferring to not add additional heavier drugs to what I already take. This winter I started having numbness of my finger tips but just wrote it off to the cold and me getting older, never even though about having it checked out. I have been exhausted for I don't know how long now. Then the dizzy spells started on and off about 3 weeks ago and a week ago Saturday I woke up dizzy and it continued throughout the day to the point where I went to an urgent care facility. I'm not the type to go to the doctor unless it's a necessity...lol. All my vitals looked good, followed up with the doctor, he did normal blood tests and all good so now he suspects Lyme. So, I'm waiting on that and can't believe I'm actually hoping it comes up positive so we know what it is and it can be treated. I can't imagine what everyone is going through with no answers for so long. If it comes back negative I will definitely discuss the possibility of thrombosa with him and keep you posted on that. I'm curious to know how long have you been on antibiotics and is it helping at all. There are different strains of bacteria from Lyme and all don't respond to certain meds, What my doctor put me on if for early stage treatment and I think I've had this for at least a year if not more. Sometime IV treatment is needed to combat later stage Lyme and that can cause all kinds of side effects. Here's hoping we all feel better very soon!!!
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I am positive for MS. I have an answer. For mine, i hope you all get answers. For yours.
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