no testicles since birth, we are married for 10 years

You're not alone! There's me

I have twins one boy and one girl. They are 11 and I want to know how to talk to my on about this. Thanks chris

My son who is now 5 was born with the disappearing testicle deal. He seems to have one small nub in one scrotum. They did an exploratory laproscopic procedure and said on the left side there was dark matter, the remains of the undescended one. They removed that. I know that a Wake Forrest they have a military support, a grant of some sort, to develope the regeneration of the testicle organ from the persons own stem type cells. I don't know where they are at in the process of that development. My hunch is that it will take years, but it is a start. I actually have our name on a contact list at Wake Forrest to be contacted. Dr. Anthony Atala is the main man there for the regenerative Biotech Dept. (or what ever they call it) My hope is that my son will benefit from this and not need injections, perhaps he may even have children of his own, I don't know.....

I'm 22 years old and i too like most of you was born and i think either immediatly or shortly after (few months or years) suffered a condition known as "testicular torsion". I knew something wasnt right with me due to the numerous visits to the doctors i had growing up. I later found out (age13) that i could never had kids, my testicles due to the testicular torsion were shrivelled and not viable. I later had to have surgery to remove the unviable testicles, it was found that they could actually only find one. It is worth mentioning i had several surgeries relating to my testicular torsion from the ages of 7-18 so it isnt impossible that the other testicle was removed between this period. 

Age 13 i found out i couldnt have kids, and everything else that went with not having testicles. I was devestated. At first i didnt understand, not fully, but looking back at my actions then, i can see now i was affected by the news, affected by being different. Everyone around me growing up were developing beards, my younger brother started developing a bearrd to. The always think i am younger than he is, im 6ft4 so something i get away with it and they'd think me older. 

I too thought i was alone, you see so much info about most ailments but close to nothing about this. Today is the first time ive seen others with this issue. 

Whats life like living with this?. Well, its difficult lol, i think it is even more so diffuicult keeping it a secret. Ironically enough most people dont see it, which is my main worry. That i could one day be stood infront of my peers and someone would shout out "hey, you look like you have no testicles". I've tried to keep it locked and at the back of my mind but as most of you know, its impossible. I've been lucky enough to have had enough courage to go out there and find relationships. I say lucky but sometimes i think the testosterone medication i was on just made me turned on lool. turned on, lucky, lucky to have been turned on lool who knows. I have had a few relationhips, even a few sexual relationships. Anyway, i always end up ending my relationships, i couldnt bare the guilt of burdening another person i eventually end up caring for with the possibilities of never having children the conventional way Or maybe i was to scared they wouldnt want to be burdened. 

Due to my condition i have moments where im super depressed and suicidal. Luckily i have my family and a few very good friends. I dont know how im going to handle the fact i cant have any biological children. But knowing im not in this boat alone is both sad and helpful. I now know im not alone. 

I am beginning to see that it isnt the end of the world, Maybe we can all help eachother. Mothers out there who need some sort of support group, i know i wish my mum had one. Dads who dont know how to deal with the situation and ofcourse US, The ones burdened with this. 

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I'm 22 and a twin too, i have a sister also. My mum and dad just told me the facts and let me know it wasnt the end of the world but they didn't really make it easy for me to talk to them about my fears. I would say listen, like seriously make him comfortable. My parents were strict so it was difficult to talk about sex for an example. So be your sons bestfriend because hes going to need one, be a person he can say anything too. He will have alot of questions as he grows up. Also reassure him that he is infact normal. Dont show your fears or sadness. He has a sister, treat them both equally, treat him like you would treat his brother, if he has one. Because he will notice if he is getting special treatment and that will make him feel different. My dad didnt tell me about my sistuation, instead my mum did. I wish my dad did. It was a 5min conversation with my mum and awkward as hell. i was 13. There isnt any scenario where you tell him and he dosent get sad about it. Just give him you shoulder and make him know youll always be there to talk about ANYTHING. Also make him aware that he isnt alone. I hope that was helpful.

My son is nearly 14 and we thought he had 1 working test, which we found out a week ago isn't, when he was asked if he wanted false ones was yes, I want to look normal! This was a shock to me as didn't realise he felt different. If he does growing up in England with no shared changing rooms etc, I would say think about how your son may feel in the future!

I was born this way. I struggled in grammar and high school. I became a introvert and created my own imaginative world in my room. I had a growth spurt where I grew 8 inches in 3 months. It has taken me 35 years to figure out why I am the way that I am. My health started to deteriorate and I need to be put on testosterone gel to improve my health at the age of 50. It has been 5 months since taking it and I've started seeing signs of facial hair, hair on arm pits, increased stamina, more energy, and more confident in myself. You can be normal and a blessing to someone else. It takes time to overcome the mental aspect of it all. It is so important to stay healthy. And no, you're not the only one. There are many of us, others have not come to the surface and deal with themselves.

I have very small testicles, about the size of peas, if that big. They have been that way since birth, I get erections and when I masturbate I can shoot a load that fits in a teaspoon. I am married, but am sterile. I have been taking testosterone shots for 30 years. What is your email?

i go to a urologist. he monitors my blood and prostate routinely. i ve been on a topical gel for the past 15 years as this seems to be more physiologically correct as opposed to shots which give you a large dose then tapers off over time. unfortunately, at this time there is no way to cure this other than with hrt. there also is an implant which you can get that last for about a year a good urologist could tell you

i hope you found a new urologist by now. surgery to lower testicles (orchiopexy) should be done by the time a child is old enough to tolerate surgery.

I've been there buddy. hopefully you have implants by now. ask your doctor about topical hormone gels as it is more physiologically accurate. except for having kids life can be excellent. good luck.

in your country that the healthcare system pays for sex changes, there is no reason i can see not to get your son testicle implants. he will feel better about himself. also check with a good urologist to see if his hormone levels are correct.. good luck

Hi

My son was born without any testicles and has had  shots of hormone treatment.

I was thinking of making a support group for this sort of stuff on facebook but wasnt sure if there would be many people that would want to join.

Its good to see other people's stories 

What do people think?

Thanks In Advance

There is a beautiful woman that would accept and love no matter what. There is so many was to have sex. Believe it or not...not everyone wants children. Not everyone wants penetration sex. I'm a woman and if, I fell in love with someone with your condition. It, would not have made any difference...I still would love and stay with you no matter what. Its called LOVE, NOT SEX...

There is a beautiful woman that would accept and love you no matter what. There is so many ways to have sex. Believe it or not...not everyone wants children. Not everyone wants penetration sex. I'm a woman and if, I fell in love with someone with your condition. It would not have made any difference...I still would love and stay with you no matter what. Its called LOVE, NOT SEX...