My three year old daughter, who we thought had autism, has recently been diagnosed with a rare condition called 22q13 deletion syndrome. We are happy we know what is wrong with her now, so she can receive better care, but knowing there is so little knowledge in regard to 22q13 deletion syndrome is hard. I would love to hear from other parents of children with 22q13 deletion syndrome, but they seem impossible to find. If anyone here knows about any resources, I would be very grateful indeed.