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Autism is a complex spectrum. What might people mean when they talk about "mild autism"?

Autism is a spectrum, and a complex one for that matter. What do people mean when they talk about "mild autism" — a term that in no way represents any official diagnostic category? What diagnosis would someone with autism considered to be mild have, what are the symptoms, and does it require treatment?

What is 'mild autism'? What are the diagnostic criteria?

This question doesn't have a one-sentence answer, so pull up a chair and grab a cup of coffee.

The previous edition of the diagnostic and statistical manual of mental disorders, the DSM-IV, differentiated between Autistic Disorder and Asperger Syndrome — conditions that were described by different people historically and came to be seen as two different, though overlapping, clinical entities. While "Autistic Disorder" may have been seen, by some, as "severe autism", Asperger Syndrome could be seen as a milder form.

People diagnosed with Asperger's under the old DSM-IV didn't have significant or any speech or cognitive delays and might be less obviously autistic; they may have more effective adaptive skills that allow them to function in a neurotypical world and display a greater wish to socialize with others. 

This all changed when the DSM-5, an updated version of the diagnostic and statistical manual of mental disorders, was introduced. Autism Spectrum Disorder became a unified diagnosis, and those who would have been diagnosed with Autistic Disorder and Asperger Syndrome alike instead fell under the wider umbrella of ASD. Not everyone diagnosed as autistic has the exact same symptoms, however. 

To "qualify" for a diagnosis of Autism Spectrum Disorder, a person has to:

  • Face struggles in emotional and social communication and interactions — this may include finding it hard to share emotions and not being sure how to start a conversation or reply to something someone has said.
  • Finding it hard to maintain relationships — this may include children not being interested in the same things as others and therefore having trouble with friendships, or not being sure how to live up to social expectations. 
  • Differences in non-verbal communication, which can mean anything from not being able to make eye contact to having a posture and gestures that are considered "odd".

They also have to meet at least two of these four criteria:

  • "Stereotyped or repetitive" behavior, referred to as stimming in the autistic community. This may include hand-flapping, spinning, repeating words, or flicking objects. 
  • A very strong need for routines and rituals, and trouble coping with change. 
  • Specialized and intense interests that are very important to the person, often to the exclusion of most other things.
  • Over- or under-reacting to certain stimuli, such as loud noises, bright lights, large crowds, clothing textures, and so on. 
Autism Spectrum Disorder can, under the DSM-5, be diagnosed with and without cognitive and speech delays, and some people will consider "without" to imply mild rather than severe autism. It's also been separated into "levels", and they too have a great impact on others' perception of whether a person's autism is mild, moderate, or severe.

Let's take a peek:

  • Level 1 autism might also be called high-functioning or mild autism. People diagnosed as having this kind of autism are said to require support to function optimally and navigate social relationships. Their inflexible behaviors, such as a strong need for routines and a hate of change, interfere with functioning.
  • Level 2 might be called moderate autism. Here, people require substantial support and have differences in social communication, maintaining relationships, and dealing with change or stimuli that are immediately apparent to outsiders. 
  • Level 3 would be called severe or low-functioning autism. Someone who would previously have been diagnosed with Autistic Disorder would be more likely to fall into this category. Rather substantial support is required, unexpected or unpleasant encounters cause extreme distress, and a person may be non-verbal or speak very few words.

Many people in the autistic community reject these levels outright, not just on the basis that they can be dehumanizing but also because they're not very helpful — it is entirely possible for one and the same person to function at a "level 1" level one day, while meeting the descriptions for "level 3" the next day. A person can also have traits from both level 3 and level 1; say, they're non-verbal but can write beautifully, communicate using alternative and augmentative communication devices, function very well in their daily environments, but face meltdowns in new situations. 

Everyone on the autism spectrum is autistic. Everyone on the autism spectrum is different. Nobody is a "little bit autistic", though; people are just autistic in different ways. So, what does mild autism mean in practice? It's a label many people use to denote to what extent an autistic person can pass as non-autistic. Because it doesn't mean an awful lot, it would be better to ask "What are this person's needs and how can we best support them?". 

What should you know about treatment or intervention options?

In his book Autism and Asperger Syndrome (The Facts), researcher Simon Baron-Cohen notes that parents of children with autism, including those who would previously have been diagnosed with Asperger's, are constantly bombarded by a vast spectrum of treatment options. Not all are helpful to autistic people, not all are science-backed, and some are actively harmful. 

He points to a supportive family environment and special education as helpful interventions and mentions speech therapy, art therapy, music therapy, and explicitly teaching social skills and rules as potentially helpful. Baron-Cohen also urges parents to evaluate the merits of each intervention individually and scientifically, rather than jumping on the latest and potentially damaging bandwagon. 

Autistic people now seen as being on the "mild" end of the spectrum would previously have been considered odd, quirky, or eccentric — sticking out, but able to function well. One person mentioned in Baron-Cohen's book compares it to left-handedness, seen as a flaw to be corrected not too long ago but accepted as a variation of normal now. While some autistic people benefit from certain interventions, others absolutely don't require any particular treatment. Rather, just like non-autistic people, they simply need support, understanding, and acceptance.

  • Baron-Cohen, Simon, Autism and Asperger Syndrome (The Facts Series), ISBN-13: 978-0198504900
  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA
  • Photo courtesy of SteadyHealth

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