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hello, I'm new here, anyone around my age 30-50 have retinitis pigmentosa? I was recently diagnosed with RP, my vision has kinda not been to good the last 6-9 months...so just wondering if anyone else here is in the same boat......

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Had it since I was in 1st grade....

 

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Yes i am im 17 and iv just been diagnoises with this and im worried :( what will happen to me????
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HI,
Yes I just turned 50 which is a problem in itself:)...but was diagnosed 2 years ago...very frightening
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Hello,

My son was also recently diagnosed but I have been told that if the eye is taken care of propely (i.e. taking natural supplements, etc) the progression of the disease can be slowed down. I am hopeful that the same will occur for my son. Have you attempted to consult with your physician on any supplements that may be good for you? Hope this helps. 

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hi,
I was advised to take vitamin A palmitate-!5,000 iu and Lutein 12 mg daily... also added Omega 3 (check out Dr. Barnes 's regime on FFB
Good luck
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BTW -how old is your son?
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Thanks for the reply! I have heard this as well - will begin to try & hoping for the best. Appreciate the response.
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