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anyone know what treatments or research is going on for retinitis pigmentosa?

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Hi there, I did some research for you on the internet but I didn't see too much for treatments although I found a couple foundations that might be worth contacting. They're just the REtinitis Pigmentosa Foundation sso if you want to talk to them about it, it might be worth your while. How long have you suffered from thsi?
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thanks, I will check out that website. I do not suffer from this eye condition myself, it is my son's girlfriend and she is 37. I think she has been dealing with this for quite a few years. Was trying to see if there is anything we can do to help her.
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Watch this video. I've had this since 1st grade. A person research friend of mine goes though and seeks out this information. I am sending you the very short version of the video:

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(Do a google search for further guidance)

 

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Hi,

There are some great forums & support groups on Facebook that help with latest updates and information on RP. Hope this helps
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There are natural supplements you can take that can be helpful for the disease. Definitely consult with your physician to ensure what the best path is for you. Another great forum that has helpful information is mdjunction. Hope this helps. 

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Any recommendations on treatment options for Retinitis Pigmentosa or methods to improve the disease for a newly diagnosed teenager? Thanks in advance for any assistance.
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