S.O.S. Missed period, discharge, pain

Hi honey! I TOTALLY understand you being "What if it's this or that!" But just keep thinking to yourself "It ISN'T Cancer!" It is NOT a death sentence! And there are MANY people in your position and get the right treatment! I know of a LOT of people with thyroid/pituatary issues! Doctors WILL help you with this and get you regulated! That's the only worry I have when people start reading things on the internet! It has the WORST case scenarios! And it also has some people whom are hypochondriacs! So be careful OK? I know from personal experience that you can get yourself into a TERRIBLE state and your mind will keep playing the worse case scenarios! I want you to wait till you've received the test results back and find out what the diagnosis is and what the treatment is! BEFORE you research anymore OK? For every condition there are 100's of scenarios! So just keep that in mind! And as you are doing, keep on doing what you have been doing before this "diagnosis" listen to your body, make plans, achieve what you want to achieve, and leave the medical stuff upto the doctors! What you have to do is take care of YOU! Your body, Your mind, and YOUR HEALTH! After whatever diagnosis comes, then look into different foods that can help you overcome and fight it head on! Look into alternative therapies and taking it easy on yourself! And TAKE whatever advice and help is offered! Like I said honey, this isn't a death sentence, it's a "blip" in your life's path!! Think of it as another obstacle to overcome! And that you WILL overcome it! Also, after your diagnosis, find out WHAT will be expected to happen after treatment! So IF the treatment they offer you, will include making you sterile - and that's a big IF! Then look into having your eggs frozen, - if you want children! I will tell you one thing an old work mate of mine had SEVERE problems with her thyroid! She was on medication for years! While they were trying different cocktails! She now has 4 children!!!!!! So don't despair OK? Like I said, for every negative comment on websites, there are 100 that are positive that aren't written! Because when you have a positive outcome, it's very rare that you continue to research and find websites where you would feel inclined to give your 2 cents worth!

It is the same for this site! I give advice, because of MANY!!!! different things that have happened to myself and my loved ones! It is a learning thing for both myself and others! I first logged on here looking for answers, about one particular thing and low and behold now I'm a Supporter for others! So that's just the way it goes! I KNOW it's hard NOT thinking about it honey! I KNOW! But you will drive yourself insane with the Whatifs!!! Please keep us updated, and I'm sure I speak for everyone else on here! We wish you HEALTH, LUCK and HUGS!!

Hi Kalli, I would really like to hear how you are doing since you had your MRI beacause it sounds like you were giong through a lot of hell thinking about it. Let me know what came out of that! I appreciate it :-)

Sorry for not posting sooner. Last few days have been worse then a blind circus.

So where to begin. I got my results on Friday after talking to 20 different people. The doctor went on her vacation that day and the nurses where unable to tell me anything (RNs are not qualified to read a sentence from a report). So I ended up going over to the hospital records to read my doctor's report myself and to find out that basically, my results are inconclusive.

Nothing was found but that doesn't mean nothing is there just that nothing is big enough to be seen. Makes sense? If the whole MRI thing seemed to have told me a whole lotta nothing to you, you are right. Good news, it isn't a huge tumor. But, I already suspected that. My prolactin levels are high 60s which is normal if you are pregnant, not if you aren't. (people with large tumors have levels in the 200 range). The normal range is between 5-30. I keep being asked by family if they said anything about my birthcontrol doing this. My OBGYN is who found it... I think that since she just switched my BC (I was on Yaz and it can cause heart problems), I think she would say something if this was my Pill.

This means that if I have anything, it would be really small. Really really really small. They are actually called microadenomas. At the same time, I was offered the MRI before going to see the surgeon because, well...surgeons frighten me. The ones that I have seen have a major god complex and the whole idea of someone who has the ability and knowledge to cut me up and poke around at my insides just kinda freaks me out. Maybe I watch too many horror flicks.

So anyway I was told that if nothing was found, I wouldn't have to see the surgeon, nothing was found. Now, I still have to see the surgeon. I am wondering if the MRI wasn't just a way to shut me up.

Ok so sorry about the above rant. I'm sure you can understand my frustration. After I got my result, read them myself and had my.. OK so now what, moment. It took 3 different doctor's offices to tell me that I still need to go to see my neurosurgeon this Wednesday. The surgeon's nurse couldn't/wouldn't even tell me anything because they need to examine me first.. Which I swear is another phrase for gimme more money.

As for my thyroid, I am being referred to an endocrinologist but it may take three months because my thyroid is just off enough to matter. This means that the people who have thyroids that just aren't working get ahead of me. This is completely understandable.

So this past Saturday I went to get extensive blood work done to totally check my levels (I feel like a pin cushion and have so many holes in my arms from all the blood work that people are going to think I'm using.) In mid September I start a low dose of thyroid supplement to try to fix things until I see the specialist.

There is a small chance that the prolactin is linked to the thyroid issue. I'm hoping this is the case and it will just fix when my thyroid is controlled. We'll see.

Don't think I sound ungrateful, I am. It isn't a large tumor, my thyroid isn't completely shot. At the same time, no one can tell me anything and I dont know what it is so I'm kinda an overly emotional, sarcastic bundle of fun right now.

I'm scared because I have to travel to see Dr. Scissorhands 2 and 1/2 hours away and I hate hospitals and somehow I felt better when I thought I knew what it was, how it was taken care of and that everything was going to be simple. I think this is the same fear that makes children look under the bed at night.

I keep having to get bloodwork, the MRI guy gave a really crappy injection (I felt like I was being marinated). And after all this c**p, no answers. And I really think this would be easier if I was a child so that all this whining didn't make me sound like a brat.

Anyway please forgive my immature behavior. I hope my next post is more composed.

Thank you for your concern, as always.

Kalli

IMMATURE?!!!!! No way honey no way!!!!! You are having TOTALLY mature and natural feelings about this unknown! You want answers PERIOD!!! There is NOTHING immature about that! You are right, you start getting your mind around - "what if its this etc" and now it's even more unkown! The best thing to do, IS get some anwers and then you can ask away to the specialist! This could be from your BCP - I've heard quite a few things lately about YAZ and Depro! so you never know! A surgeon will NOT just do surgery for no reason honey! ESPECIALLY neurology! So be aware of that OK? He probably wants to take a look at you, look at your file, your results etc, have you do the basic neurology tests and then make a decision or come to a conclusion! This is better than just going on your "merry way" thinking about "well what the heck is it then?" He might just be able to give you a few more answers that you need!

And you know what honey!? RAMBLE on!! Get it out of you! Any of us on here - whom have had difficulties with our health - KNOW exactly how you feel! Your like "why me?" "What the heck is happening?" "What do you mean you don't know?!!!" etc. etc. etc.! So don't think for one moment we don't get it OK?

So write down what you need to know, and WANT to know! And ask away! He makes good money so get your monies worth out of him ;-) ;-) XD XD XD Make him sweat!!!

Also nurses CANNOT tell you what they see or read! As it is against their job code of conduct! Those glorious things are up to doctors! Even when you are having an ultrasound, they can't tell you what is happening with the baby! So don't be mad at them for that OK?

It sounds quite a bit more promising than before! And IF there is something THAT small, this is a good thing!! OK?

So please let us know how you make out with the specialist and take someone with you, just incase you forget what he says or forget what to ask! Because sometimes when you are trying to listen to someone REALLY hard, you totally forget what to say or what they said! I swear it's like you start doing your ABC's or your grocery list and you stare at the doctors like this :-D Then when you are driving home you're like - "AWH!!! I forgot to ask him .....!" So take your list and a paper and pen and write down stuff or get the other person to write down and remember for you OK?

Good luck and LOTS of hugs and of course health to you honey!

Thanks So much!

My Fiance is going with me. He is amazing. He holds my hand during the bloodwork, asks questions himself with the doctors and just gives me the courage to deal with it. OK, so I'm young and in love. Sue me :-P

I found a list of questions from the Pituitary awareness site to take with me which is good because I never remember what to say. You are right, we nod so much that we forget to open our mouths.

I'm so happy that I didn't sound like I was whining. When I get nervous or upset my sarcasm reaches max level. I tend to make really bad jokes.

I'm not angry with the nurses, they were really sweet. It is just irritating when I know they have the record, it is written out what was found and they just can't tell me. It was like, someone, somewhere, knows what the hell is going on with me. As I said, I wasn't angry just frusterated.

The fear and shock has ebbed into, get it over with already. I am a college student and I'm really diving into some tough classes this semester and praying that my profs understand that I'll have to go to the doctors whenever they fit me in.

I'm trying to beat the depression and just general fatigue from the waiting and the unknown and that isn't even getting into the anger. I don't even know who I am angry with. I just get angry.

I'm depressed over nothing. Believe it or not, I miss my period. I know that sounds funny but having your period means you are ok. When you don't, it means something is wrong.

I want routine again. I'm tired of the pelvic cramps and back pain, the fatigue and nausea. My breasts shouldn't be this damn sore and I keep getting migraines (from the stress) that feel like there are a thousand little drums in my head. I sleep about 12 hours a day because I get so tired its painful and even then I'm tired all day. I just don't know what to do about any of it and all anyone tells me to do is to "calm down". Which then makes me feel crazy because I can't. I'm going to be 22 in a a little over 2 weeks and my fiance's birthday is this Wednesday and instead of celebrating I have to go to the doctors. Which makes me feel guilty even though he tells me not to.

I have people telling me that since the MRI was clean I just should stop going to doctors and I can't explain to them just how crappy I feel. I want to have kids in a few years and since my periods have stopped, that means Ovulation stops too. So I am being called a Hypochondriac and all through this my Fiance is the most supportive and loving person on this planet which makes me feel guilty because I am worrying him and putting more stress on him.

I have to believe it is nothing complicated now but I still have to find out what it is.

That just about sums up everything.

Blessings.

HYPOCHONDRIAC!!!!!!!! >;) How dare they say that, you have a test results saying something IS going on! Tell them to b****r off for me OK?! ;-) Have you had a blood test to see if you are pregnant? Because even though an ovarian cyst can have the same symptoms of pregnancy, it sure does sound like you are!! Have they done a pelvic ultrasound on you? If not have one done!

I did get tested for pregnancy. It was neg but I'm wondering if it was too soon. The doctor did it and it was urine test. Can't they be wrong if your hormones are too low on the onset of pregnancy?

I also took 3 home tests beforehand. All neg. I'm wondering if I should take one again.

I had an ultrasound. Nothing was found.

Maybe I should ask for a blood test for pregnancy?

Right now I think I'd be happy if this was all a little one. A baby is a lot nicer then a tumor.

Do you think all my emotions being wonky is just another symptom?

Thanks

Kalli

Hi hon! Definitely take a blood test! Like I have said to other women on here, before I became a Supporter I would have said that a HPT test would be dead on! But since being on here, there has been so many women that have taken countless HPT tests AND urine test from the doctors office and they came out negative! Then they had a blood test and it was POSITIVE!! So go get one done OK? No use wasting your money on more tests! And let me know OK!

Wish I thought of this sooner. I have to go to a neurosurgeon tomorrow. I can't back out now or I'll have to pay the fee anyway.

Oh well I'll ask him when I go.

Thanks sweets!

Once again, I am speechless. Damn me for looking up information. I might be pregnant. Oh sh*t, I might be pregnant.

According to another website, the pelvic cramps maybe the uterus stretching. Missed period... well duh. Fatigue, sore breasts, mood swings, high prolactin (the doctor said that my prolactin was perfect if I was pregnant) dizziness, and headaches. Nausea (thought it was nerves)

The reason that my urine test at the doctors could be neg could be my BCP. (my med student friend confirmed this). The only true way to test is a blood test. So now I have to wait until tomorrow to find out.

Oh c**p. Dear oh lord oh c**p.

You know what honey?! HALF of the world would not be here if it wasn't for unplanned pregnancies! IF you are pregnant, this ISN'T the end of the world honey! At the beginning of this roller coaster you started thinking the worst thing possible right?!!! And NOW?!!!! Night and day honey night and day! I wanted 7 children, I have 2 and - not being a religious zealot or anything - believe that each child WHEN LOVED and CHERISHED and WANTED are Gifts from God! I think they are little miracles! But that's just me hon! EVERYTHING is still possible no matter if you have a child on your hip or not honey! My girlfriend became and RN when my god daughter was a baby! So your dreams do NOT have to be put on hold honey! They can be accentuated - Do you think I'm biased!!!!. ;-) XD ! I'm sorry honey if I'm coming on strong - this is your decision! But after ALL the emotions you have had throughout these last couple of weeks, don't you think a baby would be a FAR better outcome than all the rest of what you were thinking?! So hang tight and get a blood test, lets go from there OK? Oh and start taking your prenatal vitamins!!!! LOL JK I'm just making you see the lighter side of this that's all OK? Let me know OK honey - lots of hugs and love to you!

I'm 22 and a college student. My fiance just got a job after he graduated and we are living with his parents while we get up on our feet (they are amazing). Times could not really be worse for a baby right now. Well... maybe but it comes close.

I am prochoice but only because I could not make this decision for someone else. I wouldn't want someone else to tell me what to do with my body.

Saying that : If I am, my Fiance and I will keep it because we couldn't go through an abortion. A few days ago I thought I might never have children. And how could anything that came from my fiance and me loving eachother be bad?

I'm just feeling a little panicked... ok a lot of panic and dealing with the what ifs and how ifs and Oh craps.

You are right, this is better then a tumor but my thyroid is still off and I'm praying it is that. To every god I can think of I am adding prayers that it is neither a tumor or a baby.

Please don't think less of me. I love children. I just didn't think it would happen so soon.

Kalli

Ok... so I just went to the bathroom a little bit ago and I noticed a very little bit of brown stuff. It is like the stuff that comes out at the end of your period. It was only a little bit. I keep checking to see if there is anything else and there isn't.

What does this mean?

Kalli

It could be the beginning of your period!! When you have a brown discharge it is old blood - which in your case would match! THUS also the other symptoms right!!? If I feel like I've been on a roller coaster, I can only imagine how you feel! You know sometimes, when all of a sudden we calm down and think "OK It's this or that!" then your body relaxes and your period comes on! It is AMAZING how our bodies are SO intune to our nerves and our worries! The best thing to do hon, IS to get a blood test, lets get this out of the way, one way or another! IF your period doesn't totally come on by tommorrow, when you go see the neurologist, just mention in Passing ;-) "OH I might be pregnant!!!" So he will want to send you for a blood test - this way you don't have to pay anyone else and it will be done and answered!

Also honey I would NEVER think badly of someone not wanting a baby at this moment in time! EVERYONE has there good times and bad times and sometimes it isn't great timing! And accidents happen, I'm Prochoice too, but just like you I just don't want anyone telling me what to do or not to do! Thats all! I'm on the fence about abortion, I've known many women who have had, and a very dear friend of mine who was forced to give up her son for adoption. And the way I see it what she went through is FAR FAR worse than anything the other women went through! It's a personal choice! My main point was that it would be the lesser of the two that's all! My husband and I were in the process of adopting a young man 2 years ago, he was NEVER wanted, he was ALWAYS abused and he was lost! I damned his "mother" up and down, for keeping him so long! So I am also an advocate for children to be wanted and cared for! And I am not saying you wouldn't care for a baby, just you need to be in a good place to be able to take care of him/her!

This will be a good thing to get this all worked out for you! It will definitely help yours AND my nerves!!! ;-) XD SHEEZ!!!

Anyway, wait till tommorrow and definitely bring up about wondering if you could be pregnant. Because he would want to know that before sending you for any other tests OK? Good luck and health honey! Lots of hugs!

Thank you so much!

I read online about implantation bleeding and I'm kinda worried that its that. I don't know. Before I do anything else I am going to ask for a blood test. I just want to know.

I think maybe after this whole ordeal, I'm going to take a nap lol. I will post when I get home tomorrow and I have a feeling that I'm going to have a heck of a story to tell.

Thank you for your concern and while I feel bad that I am causing others worry, it is sorta nice at the same time.

I feel like I am in a bad suspence novel and I'm just waiting for the climatic ending. Maybe I'm really an alien or adopted or part manbearpig. Ok so that last part was from southpark. :-P

I guess until whatever I must say goodnight.