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I have a 40 year old sister who has been ill for 10 years, diagnosed with many different things, none were correct, we finally went to the mayo and they called in a Neurologist who specializes in "Rare Seizure Disorder". She is having right temperal lobe siezures that cause the autonomic system to shut down. She is in organ failure and is currently on seizure meds for this. Due to the seizure her stomach motility stops and she has had many ileus's and has had surgery twice for organs going out. None of these with a diagnosis. We are probably going to brain surgery. The good news is we finally know what is causing the horrible vomiting and diarreah and organ failure. She got down to 89 lbs and was about to die. Every time she ate she got horribly sick and in pain. She talked about "fuzzy brain" and has some of the same symptoms. Find a neurologist that specializes in rare forms of brain seizures. Thank God we found one. Marion
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We are just starting this awful journey with our 10 yr old daughter. and this is the first post after 7 days of searching that comments on "waking up with the pain." She will sleep all night and when she opens her eyes..within minutes she is in severe pain around the belly button area. I am an ICU nurse and I was convinced she was just crazy...the doctors had to convince me that this is real. They sent us home from Childrens after 5 days and all tests negative including intbation and scoping both ends with a DX of IBS....she doesn't display IBS symptoms...she is more Cyclical abdominal migraine pain...but why first thing in the morning or why waking her up in the morning with this pain from a dead sleep...feeling frustrated in California..I am and ICU RN and I can't fix my own daughter...she keeps asking me WHY!!!!
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Dear sir, My name isAbdul Aziz,iam 28 years old,i have epilepsy in past 20 years.i tried both ayurvedic&alopathic medicines. This disease started at my 8th age.before my first seizure i did a long time journey in sunlight.after this the seizure happend different times.approximatly 2 -3 times in a year. in this period some foods[grape juice,beaf,curd,banana,liver] are dangerous to me.after eating these kind of food the chances of become seizured is 90%.at last iam totally avoid these kind of foods and continued ayurvedic treatment. At my 14th age due to long term ayurvedic treatment,epilepsy is just controlled. in this period iam not become seizured,but vomitting tendency started.vomitting in daily morning after break fast is part of my daily life.this situation continued till my 19th age. At my 19th age iam become seizured 2 times .iam continued allopathic medicine.vomitting stopped, in allopathic medicine iam not found any development.iam alredy done an MRI scan on this period. in this perid at my 24th age iam become seizured at two times..iam almost seizured during sleep,after midnight. At last iam become seizured now at my 28th age after long 3-4 years.please help me to find out what kind of epilepsy is this, i have any genitic ,physical ,metabolic reasons to become seizured? OTHER DISEASES: 1.lipoma on left eye orbit.at child hood.disappeard after homeopathic medicine. 2. long lasted COUGH at childhood. 3.before three years ago the same lipoma appeard again in same area.now i have lipoma . 4.urinal problem.started after having alopathic medicine at 19th age.alopathic medicine ZEN RETRADE tab,CLOBA tab. 5.tierdness,small skin problems(dry skin). IAM MOSTLY BECOME SEIZURED AFTER THIS: 1.after eating beef,banana,liver,curd,grape juice 2.after hard work during sleep at night. 3.not well brushed my teeth. . 4.due to mental tension. 5.due to irregular timing of having food(ramzan). 6.not sleeped very well. 7.smelling of petroliym products,paints. MEDICAL TESTE'S DONE: 1.MRI Scan. 2.Endoscopy for vomitting. **NO PAIN IN STOMACH. iam not sure what kind off epilepsy is this.
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