Hi all,
I thought I would post here on the off chance someone reading this has the same thing I had.
In October 2017, I caught a viral infection which I didn't end up shaking. Past the acute stage i.e. fever, bad cough, fluey stuff etc. which lasted for a couple of weeks, the lymph nodes in my neck remained swollen, I frequently felt nauseous and dizzy, and I felt mentally and physically exhausted even with 10+ hours of sleep a day. Being an avid cyclist, I went from training 6 days a week, on top of gym work, to the low point where I was struggling to make it up a flight of stairs without wanting to keel over. Before I got sick, I was training hard with the hope of qualifying for the Comm Games, so this transition was quite difficult. After realising that this wasn’t going to go away anytime soon, I had numerous blood tests (and repeats of blood tests) of everything under the sun (cat scratch, mono etc.) which all came back negative. I also tried two different types of antibiotics. Eventually my GP(s) ended up saying it was likely to be post-viral fatigue and left it at that. As my glands were still up (at this point for 2 1/2 months) and I still felt generally unwell with no real sign of improvement, I got a referral to see a general physician a few weeks later. Unfortunately, after a pretty thorough examination, he found nothing. *I should also mention that although I had this going on, I was still picking up colds, so while I was waiting to see him I saw a naturopath who gave me a load of supplements to support my immune and adrenal system. Unfortunately, this didn’t seem to help me.
Feeling quite desperate, I asked to be referred to an ENT specialist as I noticed a bit of pressure in my sinuses. After a bad bout of tonsillitis four years ago I used to get tonsil stones every now and then, so I thought it would be worth a try. After a brief check he didn't seem overly concerned, but he recommended I get them out anyway, just in case. After the tonsillectomy, he informed me that my tonsils were chronically infected to the point where there was a lot of scarring, debris, my tonsils were full of infected tonsil stones etc. and there was no doubt that they would have been affecting my health. He also mentioned that he removed some adenoid tissue at the same time. It is now three weeks and one day post-surgery and I am incredibly unfit but I am so unbelievably happy to say that I am finally healthy and myself again. This whole process has taken over 4 months and there were so many awful moments where I thought that at the ripe age of 20, this was going to be something I would have to deal with for the rest of my life.
I would really like to emphasise that I am no way trying to trivialise cases where people have CFS, undergone treatments and suffered significantly more than me for a significantly longer period of time. In my case, I really cannot stress enough that I don't believe I would have gotten any better if my tonsils had not been removed. So if you have any doubt about your tonsils or adenoids, push for their removal because particularly in public health they will be incredibly reluctant and will most likely tell you “just to keep an eye on them.” I really hope that this is able to help someone. Do not give up until you find your answers and don’t ever think that this is all in your head. You know your body better than anyone.
Best of luck.
I thought I would post here on the off chance someone reading this has the same thing I had.
In October 2017, I caught a viral infection which I didn't end up shaking. Past the acute stage i.e. fever, bad cough, fluey stuff etc. which lasted for a couple of weeks, the lymph nodes in my neck remained swollen, I frequently felt nauseous and dizzy, and I felt mentally and physically exhausted even with 10+ hours of sleep a day. Being an avid cyclist, I went from training 6 days a week, on top of gym work, to the low point where I was struggling to make it up a flight of stairs without wanting to keel over. Before I got sick, I was training hard with the hope of qualifying for the Comm Games, so this transition was quite difficult. After realising that this wasn’t going to go away anytime soon, I had numerous blood tests (and repeats of blood tests) of everything under the sun (cat scratch, mono etc.) which all came back negative. I also tried two different types of antibiotics. Eventually my GP(s) ended up saying it was likely to be post-viral fatigue and left it at that. As my glands were still up (at this point for 2 1/2 months) and I still felt generally unwell with no real sign of improvement, I got a referral to see a general physician a few weeks later. Unfortunately, after a pretty thorough examination, he found nothing. *I should also mention that although I had this going on, I was still picking up colds, so while I was waiting to see him I saw a naturopath who gave me a load of supplements to support my immune and adrenal system. Unfortunately, this didn’t seem to help me.
Feeling quite desperate, I asked to be referred to an ENT specialist as I noticed a bit of pressure in my sinuses. After a bad bout of tonsillitis four years ago I used to get tonsil stones every now and then, so I thought it would be worth a try. After a brief check he didn't seem overly concerned, but he recommended I get them out anyway, just in case. After the tonsillectomy, he informed me that my tonsils were chronically infected to the point where there was a lot of scarring, debris, my tonsils were full of infected tonsil stones etc. and there was no doubt that they would have been affecting my health. He also mentioned that he removed some adenoid tissue at the same time. It is now three weeks and one day post-surgery and I am incredibly unfit but I am so unbelievably happy to say that I am finally healthy and myself again. This whole process has taken over 4 months and there were so many awful moments where I thought that at the ripe age of 20, this was going to be something I would have to deal with for the rest of my life.
I would really like to emphasise that I am no way trying to trivialise cases where people have CFS, undergone treatments and suffered significantly more than me for a significantly longer period of time. In my case, I really cannot stress enough that I don't believe I would have gotten any better if my tonsils had not been removed. So if you have any doubt about your tonsils or adenoids, push for their removal because particularly in public health they will be incredibly reluctant and will most likely tell you “just to keep an eye on them.” I really hope that this is able to help someone. Do not give up until you find your answers and don’t ever think that this is all in your head. You know your body better than anyone.
Best of luck.
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Chronic fatigue syndrome explains all of this. I am going to a rheumatologist to get checked for it. PLANET
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Lyme disease has many of the same symptoms. Just thought that would be worth mentioning.
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By total chance and reading all the messages thought I would post in the hope somebody is out there experiencing what Iam and can advise/help .
About 6 weeks ago was fine active 42 year old male football few times week swimming all happy getting married next year all excited etc etc
Started experiencing some bizarre symptoms feeling unsteady on my feet like I'm on a boat and you get that unsteady feeling back of my eyes really sore physically my glands on my neck have severely swollen out at each side suddenly extremely fatigued as in coming in from work staright to bed totally the opposite of how I normally are .
As weeks passed inside of both my hands especially at night would burn up to point just not normal you know your own body then the stools started changing to lot of mucus oily/greasy looking my guts really sore loud gurgitating noises when foods passing down .
To me its red flags for an infection went to my GP I cant take metronizidole it makes me vomit physically when I take it got reffered to firstly ENT specialist who acknowledged swollen glands [cant miss them] but believes my upper half is not causing this with the stools and gastro issues reffered me to gastro Dr who wait for this told me to go a gluten free diet and done no further tests . now with me losing weight also and yep anxiety fully active in me getting worried as I waken up and simply don't feel ok I demanded I get reffered to a specialist ended up speaking to a Infectious disease specialist and currently am getting bloods done in next few days . Honestly would do anything to get over this
horrible .
About 6 weeks ago was fine active 42 year old male football few times week swimming all happy getting married next year all excited etc etc
Started experiencing some bizarre symptoms feeling unsteady on my feet like I'm on a boat and you get that unsteady feeling back of my eyes really sore physically my glands on my neck have severely swollen out at each side suddenly extremely fatigued as in coming in from work staright to bed totally the opposite of how I normally are .
As weeks passed inside of both my hands especially at night would burn up to point just not normal you know your own body then the stools started changing to lot of mucus oily/greasy looking my guts really sore loud gurgitating noises when foods passing down .
To me its red flags for an infection went to my GP I cant take metronizidole it makes me vomit physically when I take it got reffered to firstly ENT specialist who acknowledged swollen glands [cant miss them] but believes my upper half is not causing this with the stools and gastro issues reffered me to gastro Dr who wait for this told me to go a gluten free diet and done no further tests . now with me losing weight also and yep anxiety fully active in me getting worried as I waken up and simply don't feel ok I demanded I get reffered to a specialist ended up speaking to a Infectious disease specialist and currently am getting bloods done in next few days . Honestly would do anything to get over this
horrible .
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Hi have you tried safe soda his site explains lots and has lots of testimonials of healing. Also have you googled dr Henry Wright autoimmune diseases. Lots of info and testimonials of heath changes for better
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Has anyone checked your parathyroid? Vitamin D, vitamin b12, blood calcium levels? Have you found a diagnosis or just tossed aside with a "syndrome" that makes all your symptoms in a group but doesn't tell you the root cause?
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