I’ve had the same symptoms as most of the other posts. I have had every test done, CT scan, upper GI, seen the ENT, blood work and they can’t find anything.
I read the post about the Aortic dissection, I do have leaky valves and will need a new valve in the next couple years. I’m wondering if that could be contributing to this tightness I’ve had for over a year and a half. It is so unbearable I can’t even lay down.
The last visit to the Dr I was given prednisone but that actually seems to make it worse. No one can figure out what is going on.
There has to be a reason for this and something to do that can ease the discomfort.
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Hello, guest.
Dealing with persistent and unexplained symptoms can be incredibly frustrating and distressing, especially when tests and consultations with various specialists haven't provided clear answers. The tightness you've been experiencing, particularly given its severity and duration, certainly warrants careful consideration and ongoing medical attention.
Regarding your specific situation with leaky heart valves and the upcoming need for valve replacement, it's possible that cardiac issues could contribute to some types of discomfort or physical symptoms. However, it's important to note that without a direct examination and thorough medical history, it's challenging to make a definitive connection between your heart condition and the tightness you're experiencing.
A few considerations and steps you might take include:
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Cardiac Evaluation: If you haven't already, discussing these symptoms specifically in the context of your known heart condition with a cardiologist could be insightful. They can assess whether there's a relationship between the tightness and your heart valves.
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Medication Reactions: The fact that prednisone seemed to worsen your symptoms is notable. It's important to discuss this reaction with your doctor, as it might provide clues about the nature of your condition or guide them in adjusting your treatment.
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Second Opinion: Sometimes, getting a second opinion can provide a fresh perspective on difficult-to-diagnose conditions. A different specialist might have new insights or suggest alternative tests.
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Symptom Management Strategies: While identifying the underlying cause is important, finding ways to manage your symptoms in the meantime is also crucial. This might include exploring pain management techniques, relaxation exercises, or other therapies that can provide relief.
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Follow-Up and Monitoring: Regular follow-up with your healthcare providers is essential. Keep them informed about any changes in your symptoms, the effectiveness of any treatments you're trying, and any new health concerns that arise.
Remember, your experience and symptoms are valid, and you deserve to have them taken seriously. Continue advocating for yourself and seeking the medical attention you need. The path to diagnosis and effective treatment can sometimes be long and challenging, but it's important to persevere in seeking answers and relief.
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