I read your post that you have had the surgery, I would like to ask you some more info on it. I have just recently been diagnosed with SCDS.
I live in Arkansas and my doctor is Dr. John Dornhoffer at UAMS in Little Rock, AR. I an in need of the furgery desperately but I am very scared of it. I have had this for 10 years, and I have the very same systoms as you. My e-mail is _[removed]_.
I would appreciate any of your information on the surgery ect that you could share.

Thank you so much and God Bless you.