I need advice on treatment of CRMO please. My 9 year old duaghter has been very brave putting up with pain for 4 years now, gradually getting worse, in her knees, elbows and hands. We got the final diagnosis last week and I am sad for her.
She is getting Voltaren 3 times a day, paracetamol and tramadol are added when needed, which is every day sometimes 4 times day! She goes to school as much as possible and has a GREAT attitude.
I am looking for a more effective treatment and the name of a good doctor in the Paris area - please, anyone with info out there, contact me.
Good luck to those out there who are suffering.
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Hi, my daughter is 10 and looks as though she has CRMO. Doctors are in the process of confirming by going through all of her records, after three years of being treated for chronic osteo. Very frustrating. I've been looking for support and came across your post. I don't have any answers for you but thought I'd connect.
Good luck.
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