Hi , I am looking for information on pamidronate treatment for CRMO, please let me know where it is being used for CRMO, by which doctors, what are the long term effects?
Thanks
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Hi, My daughter (16) is being treated at Emory Childrens Center at Egleston in Atlanta, GA. She is currently receiving Pamidronate treatments 1 per month for 6 months. It completely gets rid of her pain however it has yet to completely get rid of the inflamation. I'm afraid we are desperate to get rid of CRMO and I have been told the long term affects are minimal.
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I see it's been almost a year, but mom2four I was wondering how your daughter did with pamidronate treatments? My son is about to have his first infusion. He has been told his CRMO is the worst the doctor has seen. My son has not been able to walk the last 3 months and has been on Prednisone. Any information would be great! Thanks!
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